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Dehydration. ... .I'm confused

Aug 03, 2015 9:38 PM

I seem to always be dehydrated, and I'm going someone has tips on keeping water in my body. I've been to the ER 3 or 4 times due to dehydration, but then they tell me I have a normal amount of water in my blood. I drink at least 5 gallons of water per day, but water always goes through my body in about 10 minutes. I asked my neurologist about it, and he didn't have any answers and my GP doesn't think it matters.

I've tried having salt with water to help with electrolytes, but I technically have enough to be normal. Still, my nose and mouth and face and skin ask feel dry. Drinking water feels like sand paper in my mouth. I've never met another person who drinks as much water as I do. Any ideas about how I can keep water in my system? Thanks.

Aug 04, 2015 4:18 AM

I think a lot of us would like an answer to that one

Aug 04, 2015 6:56 AM

Ferritbandit, do you sweat a lot? Because if you do you may need to take a salt tablet. You would have to get it from the pharmacy and yes it's without a script. I have a similar problem. Except mine is a with a palpitation in the heart because I sweat a lot and don't have a lot of salt intake. The salt tablet is 180 MLG and you take once in a day when your going to be really active and know your going to sweat it out. It works for me and my palpitations have stopped. And no dehydration. But Consult your Doctor first before doing so.

Aug 04, 2015 8:09 AM

FB, have you tried Gatorade? That might be a good way of keeping electrolytes in your system longer. Especially if you sweat quite a bit.

Aug 04, 2015 9:09 AM

It's an interesting question. I suffer from permanent thirst. My mouth is always dry and I carry loads of bottled water in my car when driving so the passenger is my water supplier, lol.
I have no idea why this happens. My skin is frequently too dry and I suffer elsewhere which would suggest I don't drink enough.
It's an odd thing. I tend to put it down to the pills I take.
Are there any other symptoms you are getting? When my daughter was dehydrated, her blood pressure dropped significantly. It also takes your veins and arteries away from the surface of your skin. They become smaller and less accessible. I had it happen last year when I was admitted and was put on iv fluids permanently for 24 hours. Once they had a line in that is! That was not fun. Massive bag after massive bag threw liquid into my system. I was sweating loads too due to the fever I had, so that made things worse.
Perhaps the thing to do is keep track of your fluid intake daily, activity levels and the signs of dehydration you're getting. Maybe a pattern will appear.

Aug 04, 2015 10:23 AM

Interesting....I would suggest constant lotions and constant use of lip balm. If you think it's medicine, then download a water intake dairy, there's plenty of those online.

Aug 04, 2015 10:31 AM

I'm not on any meds and I always have the dry skin, cracked lips and dry mouth issues. It gets even worse when my digestive system decides to misbehave. I drink a lot of water. The doctor said to track it and get back to him because you can actually drink too much water and cause more harm by diluting your blood to much. Personally with my food intolerances things like gatorade, poweraide and vitamin water are out. I can't even have more than half a cup of fruit juice without sending my digestive system into fits. And i don't sweat, maybe if i sit in a sauna for at least 15 minutes i will drip a little but in general i don't sweat, i skip that stage and go straight to over heating. Any ideas for something that's not medication caused?

Aug 04, 2015 3:06 PM

Dry lips, dry mouth with a rash on right inside cheek, dry nose & throat & skin, with dry gritty eyes... All together = Sjogrens diagnosis for me. That doesn't include the painful joints and muscles. Wouldn't have known I had sjogrens had the oral rash not developed requiring a biopsy after 4 months! Rheumy doc simply said increase water to over 100 ounces each day. Trotting to the potty every 30-45 minutes, unless I force myself to 60 minutes. Sjogrens also adds complications to IBS-constipation. The gastroenterologist doc said drink Gatorade or Powerade with water, specifically to help electrolytes. Not working very well. Lip split the other night, fingers splitting, and lip balm nor Vaseline are helping. I do wish I knew a sure fire way how to keep hydrated. I feel like a sponge that soaked up water but was thrown into the sun and dried up so badly it shrunk even smaller with curling edges! Lol. 🙏🌼

Aug 04, 2015 7:16 PM

Thanks for all the suggestions. I've tried this to help with electrolytes, but can't have Gatorade due to genetic mutations that make B vitamins toxic. I drink tons of water, need to use the bathroom almost every 10 minutes. I do sweat a lot, but mostly just at night. I try to drink water before bed, but usually won't sleep for hours barajar I'm running to the bathroom every few minutes. My docs have said the amount of water in my blood is normal, not too much and not too little.

I was wondering about Sjogrens, but no specialist has ever diagnosed it. At Urgent care, my record incites chronic sinus infections and I'm wondering if that's last of it. I have a lot of salt and iodine, so hopefully that would help. It doesn't seem to do much. Flappy, you once mentioned you have an MTHFR gene mutation as well. It would be a good idea (especially if you have double copy of the C677T mutation) to avoid sports drinks with added vitamins because they usually include the toxic B vitamins/folate/folic acid.

You could try tonic water as an alternative. It also has electrolytes, but not a ton of folic acid. I have been using a chap stick and coconut oil, but most lotions give me hives, heart flashes, and nausea. The coconut oil also sometimes makes me feel hydrated when I'm not.

Gotobef, I think my box could get diluted, if my body didn't get rid of it ASAP. It goes in, and then comes out 10 minutes later. Some pepe say I have a fast metabolism, but really my body treats water like sand. For some reason, my body treats watermelon like water, and I can feel it in my body for once.

PJB, I've been to the ER and recieved IV fluids. It was odd because I'd had several gallons of water that day. I didn't need to be there very long, just a few hours and one bag of fluid. They said my blood seemed okay, but told me to drink more water because I responded well to the IV. I don't think they believed me when I told them how much water I'd had that day.

Aug 04, 2015 8:32 PM

Ferretbandit, all my docs know about my MTHFR gene defect and none have said anything about avoiding sports drinks due to the B Vitamins. The gastroenterologist doc told me to drink them for hydration, just no more than 6-8 oz a day. I'm curious and cautious now. Where did you find out it could be toxic due to our gene defect? I certainly don't need something else to go wrong, especially if I can help it.

I went and found my lab report and this is exactly what it says: "MTHFR-genotype T/T. Patient is expected to have greatly decreased folic acid metabolism and looks folate levels. Patient has the C677T variant associated with improved depression outcome with L-Methylfolate treatment adjunctive to SSRI/SNRI antidepressants.".

Because of that the psych doc has me on 7.5 mg L-Methylfolate along with my antidepressant. The last 2 blood labs had increased levels of all my B Vitamins. That was before I was told to drink Gatorade or Powerade. He will want to have the info on it before taking me off.

Thanks! 🙏🌼

Aug 04, 2015 8:44 PM

Flappy, the C677T mutation is the worst version of the main that people can survive. The next level up, and you'll die before birth. My grandma knows a lot about it. Do you have a double copy? It's been linked to unverified infertility (hence my aunt being tested), and the B Vitamins/folic acid/folate.

I believe your doc is doing the right thing, because our bodies have a hard time breaking down (methylating) folate and B vitamins. Your doc gave you the broken down version, which is good because your body can't make it without it being toxic.

The gene mutation may also have to do with hypothyroidism, and I supplement raw cow thyroid instead of synthetic thyroid because I guess if breaks down a lot easier than the synthetic type, especially with whatever genetic issues there are.

Thanks for the info, and a reference to your records. I haven't seen my grandmother/grandfather/aunt's tests so far.

Aug 04, 2015 9:15 PM

Honestly I can't understand the med terms used in my labs much, or what I've tried to read on it. I'm going strictly on what the doc explained. I have no idea if I have one or two copies. How would I know that, what would it say? This is the past of science I nearly failed, labs, formulas, & genetics. Lol, can't teach this old dog too much at one time!

If I had to guess, just from

Aug 04, 2015 9:26 PM

Oops! If I had to guess, just from known family med hx, everyone with any B vitamin deficiency has been on my dad's side and includes my dad, and a sister and grandmother. The only possible link on my mom's side was a great aunt who died from pellagra at 23-25. A doctor told me pellagra was the same as vitamin deficiency.

I know since the L-Methylfolate was added to my meds I've had less depression, slept heavier, and been less tired... Until Sjogrens jumped on board with thehypothyroidism! I will ask my doctor if there's a risk of getting to much B Vitamins for sure. Since he has me taking 2 tablets he may decrease it to 1. Thanks for this info! You're the only person I've met that has this this too, so I'm not sure if I believe what I read about one in two people have the MTHFR defect.🙏🌼

Aug 05, 2015 1:07 AM

It's okay not to understand everything, especially in medicine. My family had always taken interest in medical info, including reading the research and medical school. My dad and the rest of my family is so geeky, and I didn't understand it at first. The knowledge just builds over time. I'm sure I would fail a test on this information, but I find it interesting anyway.

If I understand this mutation correctly, there are many forms of the mutation. For example, my uncle (he's Japanese, married into my family) has 2 MTHFR mutations. One is the C677T, and the other is a different version. He has less health problems than my aunt who has a double copy. It seems that this mutation is guaranteed to be passed down, and if both parents have it, you're guaranteed a double copy.

It is very possible one in 2 people have some MTHFR gene mutation, but not many people are treated when it comes to chronic pain. My aunt got the test because she wanted to know if she could have kids, or should aim for adoption. Sadly, she needed an emergency surgery and lost the savings for adoption.=(

So far as B vitamins go, some are very toxic while others don't matter. Much of my family with get nauseous/vomit if they take unmethylated B vitamins. I'm beginning to suspect there is a link between hyper/hypothyroidism and this gene mutation. It's just a theory, and my family (and you) are the only sample I have.

I always forget what the "L" part means. I think it means it is broken down differently, but I'm not sure. Let me know about what your doctor says, because they're likely more informed than I am of the top of my head.

Aug 05, 2015 5:51 AM

Thanks for the info. Before I became so sick in 2010 I was able to research and retain info. Now it's like moving a brick wall to comprehend anything medical. I worked in the medical field as a coder and med records tech. I graduated with a 3.8 GPA. A lot of good it's done me now with all these illnesses andmedicines! My brain struggles with basic daily tasks like cooking and reading a book or paying bills. 🙏🌼

Aug 05, 2015 9:31 AM

Fl81 there has been no proven study on to much B of any kind and as for the dehydration bee careful of to much water and load on the cream and lip balm

Aug 05, 2015 2:42 PM

Well, last night I found it a new reason I could be feeling so weird. Bedbugs. I got a ton of bites all over my back, and it explains why I feel so miserable.

Momflyer, what do you mean? The genetic mutation makes it so you can't break down the B vitamins. It's not so much that there is too much B vitamins, but that they are toxic when your body can't break them down. It's not all B vitamins, and folate is one of the worst.

MTHFR stands for methyl tetra hydro folate reductase.

Aug 05, 2015 7:14 PM

I googled "vitamin B toxicity" & "folate toxicity," finding numerous links to both, for and against. It was all very interesting but to much info to absorb it all.

But I did find out that B9, folate if taken in high doses, can cause problems with B12 by masking pernicious anemia. I've been anemic several months. Thanks to what Ferretbandit said, and researching, it's something I want to discuss with my doc. He doubled my L-Methylfolate dose 4-5 months ago.

The saying is, "as with anything, too much of a good thing can be harmful." Who knows, I may not need double the dose of folate, and maybe I can stop taking the iron. 🙏🌼

Sep 23, 2015 10:07 AM

There is a water bottle called the "Hydracoach". I have one and use it all day everyday. You put water in it and you enter you weight etc. It calculates a goal/ttarget (which you can adjust) and every sip you take is calculated towards your goal. It costs about £25 here including P&P. The US website is www.hydracoach.com The UK one is www.hwww.hydracoach.Co. UK but if you type hydra coach into Google it'll come up

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