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Nov 25, 2016 6:34 AM

Maybe it'll go away if I ignore it. I've just been given a name for the constant pain I've been in for several months. For like 5 minutes, I felt relief that I wasn't going crazy and it wasn't all in my head. Then I started wondering how to explain it to people. Chronic Pain Syndrome doesn't really sound like a real thing, even when I say the words out loud it still sounds made up. I don't feel brave enough to tell anyone about it and have them tell me to buck up and stop whining because everybody has pain, right?

Nov 25, 2016 7:54 AM

(((( gentle hugs ))))
Am so.sorry you are dealing with this. I understand what you are saying about the initial relief of having a name but then the let down you feel as you wonder - ok so what's different? Or the knowing that even with a diagnosis many people in our lives still won't understand.

Nov 25, 2016 10:45 AM

Yep. Everyone has pain. Yours isn't as bad as someone else's ("someone has it worse than me") but that doesn't make it any less a real part of you. Your diagnosis, that it has a name... puts you in a group of people for whom it's become a part of daily life, it makes you visible because you're not standing all alone. You can hide behind it and use it as an excuse, letting the pain show, or you can keep it in your pocket for those bad days when you just can't get out of bed... because some days *your* pain is "worse than me"

Now you know that it's not pretend or made up and can be managed. Not every day will be sunshine and theme parks but it'll be pretty great when it is.

Nov 25, 2016 11:19 AM

Hello Nixie 🌷 welcome to the fam sweetheart 🤗
U have come to the right place for 😚understanding and really listening to u 😚 whether it be for information...or just a place to come and vent😉 we all have one of those at home...😶 telling us to buck up... and not moan... but hunni🤗 everyone needs to vent... and u are welcome to lean on my shoulder 😚 any day x

Nov 25, 2016 1:38 PM

Thanks, everyone. It helps a great deal to meet people that understand what's going on. I'm not even sure I understand it yet so I'm just going to keep it away from my family/friends for a while and see how it goes 🙂

Nov 25, 2016 3:34 PM

Hang in there nixie. Take one day at a time. And your medical issues are yours and yours alone. If you don't feel comfortable using those words it's up to you. Only people on here my husband and my mom know all of my medical issues. I don't want others that don't or won't understand to know. I judge myself enough I don't need others judging me too. Unless someone walks in your shoes(which is impossible) they'll never truly understand anyway. Reach out to those you trust and those you need to tell. Otherwise take it one day at a time and weigh the pros & cons of telling those who wouldn't understand or aren't worthy of holding your secret!

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