Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Jul 18, 2017 11:32 PM

Hi everyone,
I am having a lot of pain lately. I had a really bad flare up yesterday and had to take it extra slow today. On my bad days my depression is soul crushing. I feel useless and I get so fed up with the pain.
How or what do you all do to help with the bad days/ depression?

Thank you

Jul 19, 2017 6:16 AM

Hey @LimaVel25 . I been getting on here getting extra support. Just a reminder that I'm not alone really helps . And you are never alone . We are all here for you. I'm sorry you had a hard day .

((Gentle hugs)) sending preyers your way.

Jul 19, 2017 8:34 AM

I reached out to friends about being in such a funk for 2 mos. I had to forgo paying rent so I could save money up to get pre pay for a biopsy.
Some advice I got besides the eat better (don't we all want to do this and would if we could?)

Start a journal (if any kind)

Open curtains again
(if that is something you got out
of habit)
Join a support group
(who wants to hear about me?)

Try to exercise in some way or form...point just move and getting more coffee or going to lil room doesn't count 😜

Paste affirmations bathroom mirror, fridge, visor in car, other places you'll see it...

Change 1 mindset from negative to positive...how/what got you in this bad place?

Last but not least: Reach out to someone outside yourself that can check on you to talk about a change, how it's working etc...they can hold you accountable

I'm not saying I did every single one of these things, but I had to do something as I knew 2mos in bed is not me...chronic pain has a way of holding us prisoner and then other forces can really rob us of our lives...being aware of all these things empowers us for change...and may be our time to reflect..many hugs and prayers...
All my best

Jul 19, 2017 3:37 PM

Thank you so much for this. I really appreciate it.

Jul 19, 2017 7:10 PM

I would just lije to put in my 2 cents. I was told by a shrink that I had depression. Then he gave me all these drugs to take. He said these would improve my life. But, they did just the opposite. I was moody, nasty and i felt like i was in a bad dream all the time. And after several medication changes and dosege changes i finally figured out that the drugs cause depression. The dr's just prescribed them to justify there existence. I quit taking them and returned to being a human instead of an alien with bad things on my mind. And people wanted to be around me again. My advice is to use your family and friends instead of drugs. My life is much better not being on those so called medications. Thats my opinion as well as all my family and friends.

Jul 20, 2017 11:04 AM

Sorry to hear your in a flair I am too at the moment and it's really not fun but you need to remember your not alone we are all on here to help you if you need it, Remeber you have got through every bad day so far so you can get through this one, I hope the pain eases of soon, Sending hugs 😊

Jul 20, 2017 11:06 AM

@Mbek57. I stopped my meds for the same reasons about 3 years ago. I only take my bipolar med. When I get depressed I talk to my hubby or get advice on here .

Jul 21, 2017 12:55 PM

Hello :) the same thing happens to me. I've been on Prozac, and I mean I think my mood has improved, but somedays it's just like I'm being crushed by sadness and anxiety. What works for me is I try to walk or stretch just because if I let myself sit and do nothing I just fall deeper into the hole. Going to the movies sometimes. Or hanging with my friends.

Jul 22, 2017 12:23 PM

@Shmegs I used to take Prozac . Now they want me back on it but I don't know if I want to . I really don't like taking medication. So I am picky on what I take

Jul 22, 2017 3:09 PM

I feel you there. I was totally against going on them, but I was feeling so bad emotionally that I was just like whatever I'll take em. I've improved I think, but I definitely want to go a more natural route. As of now though, since I was just diagnosed in March and that's when everything kind of rained down, I'll stick to them. @Westrengirl

Jul 22, 2017 6:12 PM

Oh, when I have those kind of days, I focus on the things that make me feel happy. For me making myself comfortable and taking a nap helps keep my mind off my pain and depression, when all else fails climbing into a warm bath with candles and listening to something I enjoy. I started listening to the Comedy channel when I get depressed

Oct 17, 2017 6:41 PM

Hi there, I am sorry that you are feeling depressed and I hope you feel better soon and I know what its like when the pain causes Depression. On my bad days I try and do my Arts and Crafts. I also do EFT tapping. (there are loads of videos on YouTube) I tend to use Brad Yates and David Childerley they both do tapping videos on pain relief and healing. I have also used Distant Healing in the past as well. If you Google Harry Edwards Distance Healing you can submit your details and they will send you healing for 6 weeks they will send it free and you can make a donation if you want. They are very good and I have used them in the past.
I hope you give the EFT and Distant Healing a try! I also hope you feel better soon.
God Bless

Oct 17, 2017 7:09 PM

There have been many peer reviewed studies that St. John's wort works as well as prozac. Just check with your Pharmacist in case of any interactions.

Oct 19, 2017 6:05 AM

Hello:) I'm currently on Abilify, Zoloft, Wellbutrin. It's taken me a good long while to find the right medications but I would not be here today if I wasn't on them, oh and ECT (electro convulsive therapy)
Feel better ❤️

Oct 27, 2017 3:11 PM

I try to make sure that I'm grounded and not using all/nothing statements (ex. My pain will ALWAYS be this bad. I'll NEVER be better. NO ONE likes me.) It sounds silly, but sometimes restating thoughts like those can help: right now my pain is really bad. I may not be pain free, but I can learn to manage my pain better. Maybe some people don't like me, but that's ok.
Another thing that helps me is the dialectic idea, which is allowing two seemingly opposing thoughts to be true: while I might never be pain free, I can reduce my pain. I'm not better right now, but that's okay because I'm taking steps that will help me to get better.
Unfortunately these don't work for everyone, and may not work all the time. Another trick I like to use is watching "feel good" movies and anime, Disney and Studio Ghibli are my go-to for that.
I hope that some of this helps

Oct 27, 2017 6:52 PM

Depression really sucks. Many antidepressants did not work for me but finally I have found to that work pretty good. My depression comes and goes along with my back pain. I don't have any family for support but I do have a couple good friends that understand what pain it does to a person. Therapist... Well, they're not telling me anything I don't already know to do. It's hard to do those things when you're feeling down. Depending on my mood and my back, I'm finding that I am cancelling plans with friends more often and missing doctor's appointments because I just don't have the umph or care to do anything.Friends get tired of me canceling on them all the time and eventually stop calling all together. The good old days before pain were wonderful. Now it's just not worth it at all

Oct 27, 2017 7:04 PM

The best thing you can do is reach out. To your family, friends, your doctor... anyone. They’ll want to help. Not everyone’s advice will be what you need, but you can pick what to try and find something. And hearing from everyone will let you know that people care. Remember that not everything works for everyobe. Those statements made about medication not working and only existing to to keep psychiatrists jobs is false and dangerous. If you choose to try the medication route, that makes you brave and strong. Just choosing to wake up every day when you have chronic pain is brave and strong. You are somebodies hero.

Nov 04, 2017 3:33 PM

I'm not sure what you're talking about with me only exist in to keep the psychiatrist jobs. I think you might have read it wrong. And by no means is my depression that bad where I'm having suicidal thoughts or anything. I just miss the life that I once had. I love how the doctors tell you to,,, just do one thing a day,,, start out with walking on the beach one day a week,,, just do one chore daily. Please! I know what I need to do is just being unable to do it. Sometimes I tell myself it's playing laziness. So I get up to do something and I'm freaking exhausted Within 5 minutes. My arms feel like they're going to fall off. And as for family, I have none. My parents passed away in 2007 and 2009. And oh boy what fun here comes Christmas :( I am so thankful for God for what I have and today I'm in a good mood. But not good enough to go out and about. I could just lay on this couch all day and watch TV and being in that position does not hurt my back unless I don't rotate my back every 20 minutes. Thank you so much for the reaching out part. Hope you have a wonderful weekend

Nov 04, 2017 6:22 PM

Rest and doing at least one thing productive no matter how small. Eat only good food even if it not much. Drink water and good suppliments. When I have them tramadol

Nov 04, 2017 6:24 PM

Walking around helps with my OCD and adhd. Thinking positive. Talking to God, maybe cussing at Him.

Nov 19, 2017 1:15 PM

Some days I cannot do even one thing. I just sleep or rest all day. I will get out of bed & sit in chair but that's it. I don't eat anything that needs prep so I'm usually eating no prep carbs. Those are the bad days. Then I have days of prayer & closeness to God and find motivation/strength there for doing some basic like washing dishes or watering my plants. Then there are those days of drive where I will do something that is bugging me like clean all the dirty light switches. I think it's been centuries since last done. On this day I also pruned vine in backyard that was making a walk around the pool difficult/dangerous. So when I have no energy for much of anything I find peace in remembering my busier days & know that eventually I'll get productive again. So much of our self esteem is in what we do instead of who we are. I am remembering who I am.

Nov 19, 2017 1:25 PM

What we do instead of what we are. Amen

Dec 27, 2017 10:40 PM

I'm so sorry I deal with chronic pain as well as many other health issues and I feel the same way a lot of the time I just have to keep telling myself it could be worse because it really could be so much worse Here's used to you hopefully feeling better soon

Dec 28, 2017 6:48 PM

Spunky -great advice! Tamtoad excellent point... I am always talking about what I use to do.

Dec 29, 2017 12:06 AM

Surround yourself w/ 😍 ones if you can....write your feelings down good/bad

Mar 07, 2018 9:11 AM

exceptance is a good start. although easier said than done. i think tha folks above made some good points☝️. when a flare happens jus rest an only do what yu can. i know how it feels to feel useless. but look forward tha next day when yur feelin better an tackle some things yu wanna get done. it does help. an if yu have a swing at home have yurself a bice glass of sweet tea an bask in tha sunlite on the swing. it feels fabulous. tha warm sun in a achin body works for me. maybe it will for yu as well. 💪. hang in there.

Mar 07, 2018 6:15 PM

Sms this guy or text him on WHATSAPP via +1631 542 4860 and he is gonna help you with some o.g kush that is gonna help with the pains

Mar 08, 2018 11:44 AM

I started having depression and OCD 10 years ago, my fibromyalgia was not there yet or that's what I thought. It has taken me 10 years to get estable and since 7 years I recall having fibro symptoms. For me the search for the right psychiatrist and the right meds has been a painful road. Many people, family and friends, hasn't join me during this way, but I am a better self. I still sometimes have my downs, like for a week my OCD has me really bad. I would recommend u to see a therapist, one that you really feel comfortable with, then he/she can tell you if it is not enough and recommend u some treatment. It won't be easy but sometimes we cannot fight by ourselves. Try to find new people that understand your situation, if your actual friends are getting tired, chances are they aren't good friends. Try to go out for a bit everyday, expose yourself to the sun for vitamin D, find something you would like to do to keep you busy. We are always here if you need to talk. Hugs

Mar 18, 2018 9:52 PM

Sometimes a good cry helps release some of that negativity. But I have to put a time limit on it and find something productive to do - even if it is reading a good book to escape or

Mar 19, 2018 4:44 AM

I agree it is frustrating that your not able to do the things you use to..but you have to accept it and find other things you enjoy that you are able to do .I find reading a good book helps with my depression it takes my mind away from my problems.Also living in the here and now not thinking about the past not thinking about the future just getting through each day and trying to enjoy each day .It's not easy but it can help when all you can see is a future of worsening symptoms x

Mar 19, 2018 8:10 AM

The thing about pain is it can be totally overwhelming. It affects every part of your life. People around you. In December till now March now, I had a major flare up. Everyday I was just trying to deal with the pain.
It was so bad I told my wife that " that I would rather die, but I didn't want to hurt her.
All I could do is meds and take it one day at a time.
I found it go to come on here and vent and everyone here understands because they are going through it too.
Don't get me wrong, I don't want to die, but it sure feels like you are going too.

People look at you, but the one thing they can't see is pain. So how is somebody without pain understand if they don't live in your body.
I went to go see a psychologist and I am lucky because I have a wonderful wife who makes my life worth living.
This may not mean anything to all of you, but I believe your pain
Take care of yourselves

Mar 19, 2018 8:26 AM

I find the hardest thing is the fact it's an invisible illness.To everyone you look ok and people don't understand how much pain your in and how difficult it is to do everyday jobs. I find this to be the case at work they think it's just a bit of stiffness they don't realise it affects your whole body.I have psoriatic arthritis and I suffer very badly with tiredness find it very difficult holding down a full time job as a teaching assistant .

Mar 20, 2018 9:41 AM

I couldn't agree more! Not only do others I go to the gym because it helps with the pain and is gRest for my mental Heath. Because I look fit people think you are bit of a fraud. I work full time Which gives me a purpose in life And makes me feel more normal. I hide the extent of my pain from my employers because I don't want to jeopardise my job. I am so exhausted by the end of the week all I want tu do is sleepand then my family miss out.I trY and meditate to help block the pain To get some reprieve from everything.My depRession gets on top of me occasionally but I am lucky to have great support frI'm my wife.Remaking connected to friends and practising gratitude Each day keeps me going.Reading everyone else's story Reminds me I am not alone in the journey.

Apr 26, 2018 9:57 PM

I do art journaling. Easy on the body and helpful to mind and spirit. I can play and let the world face away.

Apr 26, 2018 10:31 PM

I go to a tanning booth when my pain is really bad, the warmth and uvb really make a difference

Apr 28, 2018 5:33 PM

Have you shared any of your journal pages with us. I am trying to start art journaling too. I have all the background in painting & paper use, ect. Have gazillion colored pens & pencils. Just wanted to see what art medium you used.

May 02, 2018 11:51 AM

Positive and inspiration pictures, comments posted around the house. Everywhere you go.

May 25, 2018 8:00 AM

Routines help with predetermined plan of activities for high pain & flares.

May 25, 2018 8:00 AM

Interesting about Tanning bed.

May 25, 2018 11:13 AM

Only!!! Consult a psych dr for medication advice n navigation. With clinical major depression, you can’t lose yourself in a book or seek pleasure from anything so please consult a psychiatrist n not other people who fiddled with anti- depressants...I ended up on Trintellix-the only thing to lift me out of suicidal thinking-planning. Some A/Ds are similar n some quite different. There are new ones coming out. If your gloom is more situational due to battling chronic pain, talk to psych dr. There is an art to taking n prescribing these meds. My psych doc put me on a low dose stimulant which helped a ton.
Chronic pain will bring on depression...the lack of control over your life is threatening. If your dark mood hangs over 10-15 days and more, get help from dr. Not a GP!

Aug 29, 2018 10:07 PM

I have to say i agree with you here.

Ready to start relieving your pain?

Join Community