Hi all. I'm new here and am teaching out for help. Hoping that someone might know what is wrong with me.
I got sick August 5 years ago and have not been well since ( except during and up to 6 months after my last pregnancy. Its started out with a bout of kidney stones and progressed from there. Symptoms include chronic muscle and joint pain that has me laid up for days, cholic of the kidneys, random fevers with no infections, muscle spasms so severe they look like a seizure only its just involving my muscles not my brain, hands and feet get so hot i have to ice pack to cool them down, migraines, small sores that show up ( starting out as little blisters that itch) they then turn into scabbed sores that hurt. They feel like they are pulling the nurve endings out through my skin until the scan is removed. Then i get relief, irregular painful bowl patterns and movements, random blood on urine, insomnia with up to 7days of no sleep. I then start falling asleep standing wherever i am almost like narcolepsy but not. Increased inflammation levels, Random weight loss ( not complaining about that tho but it is a symptom) That's the basics of symptoms. I've been tested for lupus, rheumatoid arthritis, fibromyalgia markers are negative, lyme disease, blood work and scans done. I do have low back issues but that is due to something completly unrelated. Through all of this i have been since labled a drug seeker since they cant find anything wrong. The best I have been told is that this appears to be some kind of autoimmune disease but they dont know what. So many sypmtoms fit so many diseases that they dont know where to look and have given up. I have gone through the treatment for rheumatoid arthritis and fibromyalgia. Both treatments made no difference. I am only 33 and i am a good mom. My 14 year old son is very special needs and i feel horrible because i can give him nor my girls the mom the deserve. The mom they had. I have cried many times to my poor husband whom feels so helpless that on some days i feel like im dieing. I have been able to learn how to cope so i no longer require antidepressants which is a positive with all this negative. I am at a loss and if there is anyone out there whom might know what this is please help. I just want my life back.