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Diagnosing EDS

Apr 04, 2017 5:51 PM

Hi everyone - so I had my first rheumatologist appointment last week as I have had severe muscular pain and joint pain, most recently in my hip and neck .. dr confirmed fibromyalgia and hypermobility but didn't go into my neck pain or family history. Most recently too I have had bad reactions to local anaesthetic not working so I'm thinking more the EDS route ( that and I have already had a connective tissue complaint) how can I get them to check my neck and spine as it literally feels like its crumbling as well as my hope of ever getting treatment!! I have a second opinion appointment next Thursday - thanks x

Apr 04, 2017 6:11 PM

Wish I had the answer for you! My PCP is fighting with my insurance to get a neck MRI as mine keeps locking and when it snaps loose everything goes black for several seconds.

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