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Diagnosis from neurologist: nothing wrong!??!?!

Jun 26, 2017 6:30 PM

So I just got back from my appointment with the neurologist. initially the purpose of the appointment was to check for carpal tunnel even though I have a lot more pain in more areas of my body that I feel could possibly be nerve related. however after doing the testing on my arms and my hands the neurologist told me he sees nothing wrong.
Interesting enough I'm in more pain after the tests that before.
So the next step is to see the nurse who initially diagnosed me with fibromyalgia and then to see the colleges to finally hopefully get some answers.

I know I read that fibromyalgia is not something that can be diagnosed with test however tests are needed to rule out other possibilities of what could be wrong.

Has anyone else gone through this and do you have any advice?

Jun 26, 2017 7:24 PM

I went to neurologist last tues. it was pure torcher for me, I was shocked and needles put in my muscles all up my arms hands legs and feet. Had to move for him each time a needle was inserted, horrible pain! I do have neuropathy in hands and feet with moderate to severe nerve damage and yet still don't know why, so more labs to come. Initially md thought fibro, even though ANA was negative, Hoping neuro is on right path with his 18 labs??? I also have pains in other places but my hands legs and feet are my biggest concerns. Not much advice cause I'm in same diagnosis boat, but research and homework is what I do. Good luck to you!

Jun 26, 2017 11:01 PM

thank you
I agree the shocks and needles were terrible. I have a experienced afterwords is just now subsided enough for me to be able to go sleep. Initially I wondered if I had neuropathy as well but since the neurologist told me he didn't find anything assuming that the rheumatologist may have an answer for me. Good luck to u as well

Jun 27, 2017 5:22 PM

Inquire about a skin punch biopsy for Small Fiber Neuropathy. Those of us that have SFN generally "normal" results on NCS/EMG studies.

Jun 27, 2017 10:18 PM

thank you alic63. I will definitely ask about that

Jun 29, 2017 4:30 AM

I have an appointment next week with a neurologist for my feet at feels like I'm walking on needles or hard rocks or pins or something I don't know what's going on and it's all over my feet the top and the bottom both so I'm hoping that he can find some kind of problem my doctor said that she's ran all the tests and she don't know what it could be so she sent me there

Jun 29, 2017 7:17 PM

Mine came back negative many years ago. I've now discovered I have autonomic small fiber neuropathy. You probably need additional testing and if this doctor first proceed with the additional testing, kick him to the curb and keep going through doctors who will test until he determines what's wrong.

Jun 29, 2017 9:57 PM

The blood tests for fibro will only come back positive if you're in the middle of a fairly bad flare. I've had tests which came back negative for everything else so the only thing left was fibro but even then my Dr was reluctant to dx fibro and when my blood test came back showing I had inflammation (not RA inflammation) she sent me to rheumatology and the Rheumatologist DX fibromyalgia within 5 minutes and said I have quite bad wear and tear in my knees.

The only thing you can do is to keep pushing your Dr's to find out what is going on and do your research, I've found that with most GP's I've been to I've known more about my conditions than they have, although some absolutely hate that and one even said he hated "Google doctors"!!! 😱😱😱

Good luck and I'm sending you positive vibes and warm healing hugs xx

Jul 01, 2017 7:10 PM

Harleysweety I hope you are able to get an answer. That's one of the most frustrating moments especially when you something is wrong and you just want some relief

Jul 01, 2017 7:16 PM

Sezzy thank you for the encouragement and understanding.

I think it's crazy how the pain was much worse for quite a while after the test. That has to mean something ya know?

I'm thinking that the rheumatologist will be able to give me an official diagnosis even though the nurse at the pain medicine clinic has already done that.
I know there's Is definitely inflammation. But there is so much more than joint pain.

Lol wow I think that's funny about hating google docs.
I think it's good that there is knowledge out there for us.
The nurse I went to actually commended me for research I did and the fact that I took online assessments to bring them to her. But anyway thanks again. Hoping for more answers soon.

Jul 02, 2017 3:45 AM

You can always get second opinions

Jul 03, 2017 12:46 PM

Zebravado I definitely intend to if necessary. I'll see what happens with the rheumatologist.

Jul 03, 2017 12:49 PM

Update to the results from the neurologist: even though he rold me he could t find anything when I reviewed my recent updates to my health record I noticed that he added paresthesia. So he didn't actually mention carpal tunnel but it's along the same lines I supposed. I'm just glad to know that the procedure wasn't a total loss.

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