Hi, new here and wondering if anyone else has had the same thing.
I'm in the UK, so I get access to the NHS, that I usually sing about how wonderful it is (I have Brittle Asthma, so they've saved my life a lot). A few years ago after a misdiagnosis I became seriously sick and had major surgery. Fast forward a couple of years. And pain. Excruciating abdominal pain. Far worse than childbirth. (And I've done that twice, once without so much as paracetamol). It's been over a year, and they've done some scans and some bloods and they just don't care what it is. two Emergency admissions were pancreatitis, but the rest of the time there's 'no reason' they can find for the pain. They've ruled out the blindingly obvious and then stopped. And it's crippling. Now, when it gets so bad I'm taken to hospital, they throw painkillers at me and send me home! I don't want painkillers, I want them to fix it. I've begged to see my old surgeon to see if he can shine a light but waiting. Waiting for pain team. Waiting on everything. Still. Their latest guess is one of my breathing meds causes the pain - that means it isn't their problem.
Anyone know how to get them to keep looking? If they don't know what the cause of the pain is how can they resign me to buckets of painkillers?
My best mate wants to take a loan out to take me abroad to a specialist, it's got that bad
Any help greatly appreciated x