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Different Pain Levels

Dec 17, 2015 11:57 PM

Hi ! Family I know this probably is going to sound crazy but here goes. Does anyone when the Dr ask what is your pain level, well my neck is about a 8-9, my back is about a 7-8, and my thighs are about a 6-7. My Dr looks at like I am crazy and repeats your whole pain level. Well I guess it is a 8-10. Are any of you having these same problems. But I really can differentiate the level of pain in different areas of my body. Do any of y'all experience this, maybe I really have gone off the deep end. I hope everyone is having as pain free a night as possible. Sending prayers for all and hugs.

Dec 18, 2015 12:36 AM

Weezie,
I don't think you've gone off the deep end!

I know what you mean, but if your doc doesn't have pain maybe they can't imagine the sensitivity spoonies get as we kean about our bodies. I tend to tell my doc the worst part of my pain, because that's usually the focus of treatment, so anything lower doesn't really matter.

With CRPS, that meant I'd usually say 8 or 9 on the pain scale, which was my worst. The fact that my throat may have only been a 4 didn't seem to matter.

Dec 18, 2015 4:29 AM

I tell my doctor similar things, like my arms are a 5-6, my legs a 5 with the stimulator on, my back is a 9 almost always and my neck and face is a 7-8. It depends on what do too, if I do laundry or clean my back will be worse and I won't be able to concentrate on much else. If it gets to a 10 then I'm hallucinating or I've passed out from the pain.

Dec 18, 2015 8:04 AM

Weezie, I have had that problem. The doctor asks what my pain levels are and I can decipher what hurts more or less. The problem comes in when he says where do you hurt.. The answer, usually, where don't I hurt.. LOL!! It's a real pain in the ass. Every month I go to pain management, they ask me the same questions. In the last years, not much has changed with the exception of more pain and more diagnosis of diseases that cause pain. When I get to pain management I've been without any meds from the late afternoon of the prior day. I won't take anything if I'm going to be driving. So, I'm overdo for meds, have to sit and wait, haven't slept and then I get in to see him and he moves me around and takes range of motion measurements and pain measurements (like how bad it hurts when he presses on trigger points or lifts my arms too high, etc). Then when I finish there, I have to go to the pharmacy and by the time I get home.. I am in such agony, i can't think, I'm nauseated and usually have a migraine by then. The first dose of meds that day doesn't even come close to touching the pain. Maybe you just need to make it easy on the doc and give him/her just one number..LOL!! {{{{Hugs}}}} 💕🙏🏻🌻

Dec 18, 2015 11:37 AM

I've had this happen but since I feared I'd have this problem with giving different numbers I just give and average number and round up. And as for the what hurts question yes. I've had this many many times. Hopefully now that I've got a diagnosis and I seem to be with doctors whonr familiar with it I haven't had to explain why I have different. Areas of pain.

Dec 20, 2015 2:44 AM

Weezie, you are not going off the deep end. I have had this happen as well, but my pain is not whole body. Pain management usually does look at me like I'm crazy, but my lower back is a 5-6 on a bad day, and the back of my right leg is a 4-5 on a bad day(which it is this morning). My mid back is usually a 0 but that's when the muscle spasms are quiet. When they aren't, it's usually about a 4-5 on any day.

Dec 21, 2015 12:34 PM

Weezie, you are not off he deep end! I do the same thing and can tell a difference in pain levels throughout my body. But when the doc asked I give them the highest pain level, because unless they know chronic pain they cannot understand it. 🙂🙏🌼

Dec 21, 2015 3:20 PM

Hey , hello to all, but I started showing my doctor this application we use to chart pain with the picture colored in with all the different pain areas... This has really helped communication and understanding. I feel like I am " being heard". Hope this helps.

Dec 22, 2015 11:39 AM

I don't like the pain scale, it is not accurate for chronic pain people. Some days 10 is really a 14. It makes sense to me different parts of the body have different pain levels
No you are most definitely not losing it. Love and light moshell

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