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Feb 29, 2016 4:44 PM

Well I just wanna say thank you to everyone for all the well wishes and prayers for my disability hearing tomorrow. I couldn't find any of my Sjögren's Warriors to get info from. But the Sjögren's syndrome foundation had all the info and pointed me towards the criteria for Sjögren's as a disability. I was amazed to find out that it just became a disability. People with it use to have to file under the guidelines of lupus. Now awhile ago it was a chance I had fibromyalgia and that was it. My mom said you won't get disability if it's just fibromyalgia. Because fibromyalgia is not considered a disability. Well I have Sjögren's syndrome, fibromyalgia, depression and anxiety. But I also have stomach pains, extreme back pain, need a hysterectomy, memory loss, knees really messed up, bad arthritis in my right hip. Eyesight problems and a lot more. Due to no insurance I can't see the specialists that I need to see.
Fibromyalgia needs to be a disability, I don't care if that was the only thing I had I shouldn't have to be almost dead to get Medicaid. My family owns a industrial building on our land and it has been a daycare to a place that helped kids. I think I wanna start a support for people with chronic illness actually a few different small groups specified to chronic illnesses like Sjögren's, lupus, fibromyalgia, etc. And then one big group meeting all together for all chronic illnesses cause we all have so much info to share with each other. Just before I got sick I was planning to go back to school to get my masters degree in counseling. I pray all the time that with the proper insurance that I may not hurt as bad all of the time. When my pain is managed I can do a lot more things. But I need insurance! My family misses me coming out to family functions. I realize this my new norm but I just wanna take care of all my health issues and get to a better new norm. Cause just trying this took forever cause my fingers keep cramping. I pray tomorrow my prayers will be answered!

Feb 29, 2016 6:46 PM

Painedlady, I must have missed your previous post. I have Sjogrens, diagnosed a year ago. I've not had my hearing yet. I wish you all the best, and I'll be praying the judge approved you! Where did the sjogrens foundation point you to? I wasn't aware it was a disability either. Please stay positive and try and rest tonight. Big hugs of comfort & calm! I met with my lawyer tomorrow and I'm hoping he has good news of some sort. 🙂💕🙏🌼

Mar 01, 2016 8:26 AM

Hey Flappy thank you for the prayers. If you put in Sjögren's syndrome/ disability it will bring a lot of info up. Sjögren's foundation should be at the top of the list.

Mar 01, 2016 7:55 PM

I oppose and pray things went well for you today. Hugs! 🙂💕🙏🌼

Mar 01, 2016 8:51 PM

Best of luck to you.

Mar 01, 2016 9:27 PM

I can't wait to hear how it goes for you! I have 17 more months until my court date...😳 I have CREST syndrome disease, anxiety, fatigue, depression, etc! If I could cross my fingers for you I would! Instead here's a good luck gentle (((HUG))) 💞💐🙏🏼

Mar 01, 2016 9:45 PM

Painedlady, I wish you well, acceptance and continued Hope. Please follow through with your idea for a meeting/support group for the people trying to Live and Thrive and just not exist with Chronic Pain.

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