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Disability help!

Oct 27, 2016 7:02 AM

Can you apply for disability if you have fibromyalgia? I was also diagnosed with Osteoporosis severe in spine and hips, Disk deteration in spine, Peripheral artery disease. I also have a really high heart rate and have to wear a heart monitor for 30 days.

I'm not sure how to handle even trying to get disability. Can anyone out there help me? I would really appreciate some help and answers. Thank you for taking the time to read this.

Oct 27, 2016 11:12 AM

I did - and that was back in 1999 before it was recognized as a legitimate illness with disabilities. What I had to do was file for fibromalgia as primary then I listed everything else. A psych doctor helped me with that when he did my evaluation. He asked how I did in crowds. I hate crowds - the noise etc. caused me to go into sensory overload. So he had me list phobia of crowds. At that time sensory overload wasn't really recognized so we used phobia instead. I also included my migraines, my asthma, my back issues etc.

When my first time was denied a lawyer suggested I write up a list of everything I had tried at home - above and beyond what the doctors said. So I listed the vitamins, the PT, water aroebics, even the magnets I had tried. The Noni Juice... Anything and everything no matter how crazy it sounded. This helped the review board see that I really had tried everything I could to keep working.

Oct 27, 2016 11:20 AM

How did you apply for ddisability? I don't know how to go about this. Thank you for responding to my post.

Oct 27, 2016 12:41 PM

Wasn't sure if things had changed since I filed so found the above link. It should answer all your questions. One thing to remember - if you go in person to apply do not get dressed up. Go as you normally would be. They have to include into their paperwork how you look. So if you dress up to look good that will be noted and could end up going against you in the long run.

Oct 27, 2016 1:41 PM

I filed way back when, heard from them. Gave all information, never heard back. So then I went to the website you gave me, tried to fill out again. Told me that I could not file because the info I gave them was not what they had on file. This is so confusing, I don't remember what I filed years ago. Any suggestions? THANK you so much for the information you provided so far.


Oct 27, 2016 3:07 PM

Donna - there is a phone number on the website. I would either call them or if you have a Social Security office near you - go talk to them in person and see what happened to your old claim and ask if you can pick up with it or need to start all over. Best of luck in that.

Oct 27, 2016 3:21 PM

Be prepared for a long hard fight. It doesn't matter the illness it's always a long hard fight. But don't give up. Keep appealing every turn down. They bank on you giving up. I'm in Canada but the long hard fight is the same in both countries from what I hear often. It took me three years, many turn downs and appeals. If you're prepared for that then you just know it's going to happen and you just keep fighting for it little less stress. I don't have fibro but Lupus. It's not the reason I was fighting for it back then but I had legit reason. I will say when you do win the back pay is nice as is the victory.
If you do happen to be in Canada there's also disability tax credit. I got 10 years back pay on that.

Oct 27, 2016 4:24 PM

Thanks you all, I'll do as suggested. I'm prepared for a fight, I live in South Carolina so we will see how it goes. All this is so confusing, there's help out there I just know it, but have to

Oct 27, 2016 4:25 PM

go through hell to get there. With everything that I have, you would think that they would help right away.

Oct 27, 2016 4:57 PM

Disaner59, I've been waiting several years after my first denial. My lawyer told me each state is different but in general, on average there is a 15-18 month wait for a court hearing. I just got my letter with a December date last weekend.

Keep up with every trip to every doctor if you hire an attorney or not. Keep this app updated with pain entries. My lawyer asked multiple docs to complete disability evaluation on me; only 3 did (PC, psych, & neurosurgeon). After that is when my date was assigned. I wish you good luck through the process, with hugs love & prayers! 🙂💕🙏🌸

Oct 27, 2016 8:28 PM

Donna, I would suggest going to your local social security office and speaking to someone who can help you fill out the proper forms and get you in the direction you need to be in.
Don't be surprised if you get denied the first time and then have to appeal and jump through more hoops than you ever thought possible. My heart goes out to so many here who are waiting years and going through hearings, etc. still to be waiting longer. It kills me because it's YOUR money taken from every check you ever earned and matched by your employer but the government would rather call it a "benefit" or "award" and hold onto your money as long as they can. I send good karma, well wishes and positive vibes hoping that all goes smoothly for you. {{Hugs}}💕😊

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