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Disc degeneration

Feb 14, 2016 7:53 AM

Just found out that my severe lower back and leg pain and legs giving way is actually down to having disc degeneration in my lower spine. 6 crumbling discs catching nerves. Has taken me 2 years to convince my gp that it wasn't just fibromyalgia. I knew it was something worse and I was right. Finally had an xray and an MRI to confirm my worst fears. I'm 46 and soon to be wheel chair bound! Some have trouble convincing their gp of fibromyalgia. I have it the other way. Anything that is wrong with me MUST be fibromyalgia! Same as I suffer with depression. Anything that's wrong with me MUST be in my head!! Grrrrr to GP'S.

Feb 14, 2016 8:31 AM

BishBoshManor, I'm sorry that you're diagnosed with this nightmare. I have the same issue in both my thoracic and lumbar spine and it is not a fun ride. On the other hand, I'm glad that you now know what is causing that additional pain.. You know your body better than anyone!! No doctor can possibly tell you that something isn't wrong in an area that you're in pain and be correct!! YOU live in your body, not them. I pray there is something that helps you to get some relief from the pain. Gentle {{{{Hugs}}}} and prayers for a more peaceful and less painful day. 💕🙏🏻🌻

Feb 14, 2016 1:29 PM

I am also 46 with my entire spine messed up due to DDD, herniated discs and so on. They kept telling me it was fibro and I too knew it was more. It is very frustrating and now that they know the issues it doesn't seem to make anything in treatment better. Even the physical therapist was at a loss because what helped one thing hurt the other. What has helped is i asked if we could work on spine muscle strengthening and core muscles. I told her I know my spine is messed up and the only chance in hell I have is keeping the muscles strong to hold it. I have to do them everyday but it has taken my pain down a couple notches overall.

Feb 14, 2016 7:53 PM

Bishboshmanor, I'm so sorry it took so long for the gp to listen. I walked the same path with my PCP, taking 2 years to diagnose sjogrens, hypothyroidism, & dementia. I've been fighting DDD in my spine since the 80's, and at 54 it's joined by tares, facet stenosis, and OA moved into the knees & hip joints. It's not going to be easy, but you will hopefully find new ways to do things so you don't have as severe pain. Modifying my cooking by prepping at the table so I can sit, has helped a lot. And I no longer take baths because I can't get in and out. I'll keep you in my prayers. Hugs!

Shammagren you are right about the muscles. They think part of my imbalance & falling is due to weak leg & back muscles. I had PT in October-November, and I'm in it again, for the legs & especially the OA in the hips. I ordered one of the stretch straps (you put your foot in) they use in PT, so I can do the same stretches at home. It seems they're also used in yoga too. 🙂💕🙏🌼

Feb 15, 2016 7:17 AM

Flappy have you tried a ball? If you sit on it you have to have good posture. My PT recommended it and sitting on my butt is an exercise I can handle lol.

Feb 15, 2016 10:33 AM

I'm so very sorry friend. I am 100% in Agreeance. I feel your pain I have had DDD since 5/2007 but I am still down most days. L3,4 and 5 lost fluid when i fell down a flight of stairs in the militaryaring my gear. Life throws fantastic curve balls. The nerve damage from my hip to toes I would have to say is the worst pain ever. My GPs ruled it as permanent sciatica, DDD, lumbago, fibromyalgia but only treats the nerve pain and doesn't even do that right. I am so sorry for your pain. The only thing I can tell you is that on your good Days slowly work out your core soon enough you'll be able to work out other things but start slow because the moment you tweak something you're down for days. And if your doctors or anything like mine you're going to be screwed from the start so it's up to you so annotate and keep track of absolutely everything that goes on with your body from now on.

Feb 15, 2016 11:34 AM

Ducky... thanks for your reply. That's helped alot. I am gathering all the info I can get. I DO have to direct my GP. Also need a the evidence so I can claim financial support. I am off work more than not and will soon lose my job for sure.
Thanks to everyone else who has answered too. ❤🐻x

Feb 15, 2016 1:30 PM

Shammagren, I'll have to get a ball and try it. Thanks!

Ducky, at PT this morn they had me lying flat while raising one foot up about 3-4". I could feel the abdominal (,low) muscles tightening, along with thigh muscles. Is that the core muscles? My left leg is 3x weaker than my right, but the abdomen is ugh, out of shape bad! 🙂💕🙏🌼

Feb 15, 2016 3:44 PM

Flappy talk to your PT about the ball for strengthening back and core. That was who recommended mine because most exercises hurt to much because of all my spine issues

Feb 16, 2016 12:22 AM

Bishboshmanor you are very welcome And I would love to hear how it goes forFlappy for you I did do those exercises those are for your core and you won't see a huge change overnight but eventually it'll start getting a little bit easier but like I told bishboshmanor, results are all in time but you can still tweak your back if you don't be mindful. I enjoyed my physical therapy and ask they offered. Take advantage. But be careful. Traction shower to be the most painful but I won't give up. I also tried acupuncture which surprisingly help the first time I did it unfortunately I kept doing it and my condition went back to normal. I am a Guinea pig and I believe in trying everything before the last Resort. Keep me posted! Good luck to you all! My mom just massages my leg lol. The nerve pain down the leg sucks but find a good Masseuse Lol It may be a temporary fix but at least it feels good for the moment

Feb 16, 2016 12:24 AM

Sorry ask=all and shower=showed

Feb 16, 2016 8:21 AM

I will. Insurance won't cover pool therapy or acupuncture. I'm considering returning to my chiropractor, since the Ortho surgeon days there's nothing they can do for me. Thanks! 🙂🙏💕🌼

Feb 16, 2016 12:00 PM

BishBosh, I am 35 and I also have what the ortho is finally calling a compressed disc at L4 I think and sacroilitis. At this point, I'm inclined to do nothing with it surgically because it's not herniated out and not causing me issues. If it gets to that point, then yes I will consider it. He also wanted to see if I wanted to do an SI joint fusion but that answer was No as well.

Feb 16, 2016 7:02 PM

BishBosh, you're in the UK right? Get your GP or if you're having physio already to get you referred to hydro

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