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Sep 28, 2015 6:54 AM

I know we are all in different places as far as our diseases & pain levels go but there's one thing we possibly have in common, distracting ourselves from the pain.

Depending on how bad it is, depends upon the activity. I love being outside but unfortunately due to severe chemical sensitivity and close neighbors and a neighborhood association, I don't get to hang out in nature as i could when I lived in Illinois (a historic village) and had a creek & bluffs in my back yard. I really miss my family up there and walking outside and seeing wildlife on a regular basis. Anyway I digress!

I'm a classically trained artist, so on especially good days I enjoy painting, drawing, sculpture (really really good days) and decorating picture frames and wooden boxes. Anyone else into art and creating? I love to knit and find it is a great help with the physical therapy. (of course the art isn't something i get to do all the time, it's too much for my pain levels and chemical sensitivity. Plus I can barely keep on top of house chores but have been blessed with a man who understands and helps when he can.

When it is all too much and find it is difficult at times to keep my mind on anything, I zone out and watch TV. It's awesome (in a way) because i can watch the same tv show more than once and still be surprised bc i don't remember much of what happened Hahaha :)

But I also love to read, any readers out there? What do you like to read?

I do wish I could have a normal life but I've stopped looking back at what my life was before and have started trying to make the best of what i have now (and don't listen to those who criticize my life, since most of my illnesses are "invisible", I am often labeled as lazy, crazy, etc etc etc). So this is why i ask you about what you do to help keep your mind busy?

(oh and I love plants and have a couple planters on the porch but even that is difficult bc of the chemical sensitivity, which knocks me off my feet for days if hit with exposures that are not possible to avoid with neighbors living do closely.)

Anyway! Look forward to hearing from y'all (and i know this isn't about pain directly but I think how we are choosing to deal with our issues is as important as our treatment. I know if I don't have something to keep me looking forward to another day, I get we've seen more depressed than i already deny that I am.)

:) big hugs all around

Sep 29, 2015 5:45 PM

Hi Kitty,
That sounds amazing that despite all the pain and limitations you are still finding activities to keep you sane. I think keeping our minds busy from the pain is half the battle. I recently stopped working and was just at home and found the only productive thing I did was cook and clean and the rest of the time I was depressed with pain so I would do research on the Internet. A vicious cycle !! But I have decided regardless of the pain I will try and go into work 2 times a week. That way I am not concentrating on the pain. I do like drawing even though I am not good at it but I rarely do it as my left hand really hurts and I can use it much. I also like making jewellery as well. I do try to read or listen to tapes I like self help, business types of books but I am trying to start reading something light hearted. I Wish you all the best on your journey.

Sep 30, 2015 12:03 AM

I am actually really frustrated because my determination to distract myself has blown up in my face.

I am in so much pain from doing my art that I am back at square one where can't move my right arm. That's why I learned how to write and do things with my left arm. Looks like I will be using my left hand as my dominant again. Looks like my distractions will be TV and frozen dinners for the fam since we are on our last homemade frozen meal.

Frustrating to tears. So I understand why not many replied. It's hard to find distractions. I have had excruciating pain in other parts of my body but when my shoulder and wrists start this, is game over. This pain took me out of art school. The docs think it is bursitis but I suspect that it is carpal tunnel syndrome that has progrrssed

Sep 30, 2015 1:07 AM

Ohhhh no I am so sorry to hear that :( I think to keep sane we all need to find something and keep at it. I think I will have to learn to use my right hand soon .. Since I am left handed. I have just come to terms that this is how it's going to be I will have good days and some really bad days. Just have to make use of the good days. Sending you positive energy ;)

Sep 30, 2015 3:24 AM

I wish I had a distraction NOW !!!! It's 3 30 am. I'm wide awake level 10 pain. Moved to guest bedroom to try and read but ended up here instead. Hugs to All

Sep 30, 2015 8:22 AM

Kitty, I am sorry that you are in such pain. That's aweful. I usually distract myself by reading, watching tv, drawing, listening to music or coming here to check up on everyone and see if I can be of assistance to anyone. THAT is my favorite distraction because if I can help just one of you feel better, my day is better. I've always been a caregiver by nature, have great empathy for those who suffer and like to make people smile. I'm sending you gentle {{{{Hugs}}}} to give you a lift and I pray you feel better soon. Oh yeah, the other thing I love to do is dance!! I rarely do it any more because of my pain but when I have the energy and I hear a song I like, I'll grab my Mom and swing out a Lindy... LOL!! Wish I could do it more so I understand about missing things. The most missed thing is being with horses. I've ridden all my life, had 2 horses and want to get another one. The way I see it is that if I'm going to hurt no matter what I do then I may as well do the thing I love more than anything in the world. All the best to you, Kitty. Feel better and know I'm here if you need me. πŸŒ»πŸ™πŸ»

Sep 30, 2015 12:39 PM

Dear kitty,
I have a lot of plants in my house that bring me confront when I am unable to go outside into nature. Which relaxes me. I quilt , read, and currently tie-dieed all my curtains for color. I put a lot of lights in my house as I live in the Pacific Northwest and don't get much son. I turned my bedroom in to one big spiritual alter. My family on the walls, an alter and all my favorite color as I send a great deal of time in bed during the winter months. I read 3 to 4 books a week. I signed up for Amazon unlimited about 10.00 bucks a month. I read everything. I bake a lot for relaxation but give it away so I don't eat it. I am single and have a care giver five days a week which leaves me time and energy to do these things. I also started a coloring group called color vision on fb. We color out of adult coloring books and post the finished pictures, where we got them, what pens, paints,pencils we used. Real fun and beautiful. In three weeks we have 179 members from all over the country. Well that's all for now. Peace be the journey. MoShell

Sep 30, 2015 4:36 PM

I LOVE to listen to music, read if I can focus long enough, work with homeless animals and like Alwayz said, come here and see if I can help. Alwayz, thank you for that. You have been a bright spot this year. There is not a whole lot else that I can offer you Kitty, in terms of support. Please know that we are here for you if you need us. I don't care if it's 2 am, I am usually up anyway with pain at that point. Please don't hesitate to use this community as a sounding board.

Sep 30, 2015 5:25 PM

This may sound weird, but I like to color to keep my mind off the pain. I have my own coloring book for adults that helps with stress, and my own coloring utensils.

Oct 02, 2015 12:10 PM

I ha and coloring books too! Thank you all for your support. It means so much to me. I'm crying tears of joy because I can feel the care in y'all's words and that means do much. I had better get off here for now till the boyfriend labs for the weekend so he doesn't think I'm crying because he is leaving lol.

I mean it. Y'all are awesome and the support is so much more than i could ask for. I will post more soon.

Biggest hugs and loads of hope.

Btw, I love plants and wish i could hang them all over my house but my animals have decided that they are tips (of course they are all vetted by the database to be nontoxic) nonetheless my boyfriend has yet to realize that when you have cats, they kind of run your life. Hahaha. πŸ˜ΌπŸ’•πŸ’•πŸ’•

Oct 02, 2015 1:56 PM

Kitty I read Right now I am into reading paranormal shifter books I also have amazon unlimitedprime, and just type in your kindel search free romance, mystery, fantasy or paranormal. You will be amazed at how many free books there are out there. I like to read fantasy, vampire,historical romance,mystery. I wach TV also.I used to crochet but can't anymore mh hands hurt to bad. Hugs and n prayers everyone.

Oct 02, 2015 8:13 PM

I can't do any crafts I use to. I offered sewing and crosses stitching especially. But both require a lot of looking down that causes neck shoulder and back pain, which leads to headaches. It also requires constant miniscule movements of the fingers and hands. I can no longer use scissors or needles due to my hands, which I'm positive is developing Arthritis. So my distractions are listening to music, playing with the dog, reading and watching TV. I do walk on the treadmill while watching tv too. 🌼

Oct 02, 2015 9:30 PM

I love fantasy everything like that! Have you read Ilona Andrews? Or Brandon Sanderson, mistborn, but he has a few series. I'm also enjoying reading Laurell Hamilton. The Anita Blake series is pretty funny.

I also like David Sedaris, Engulfed in flames. It's awesome. I think I'll open in up because I'll be all alone in my bed tonight and can laugh as loudly as I want without worrying about waking anyone but the kitties.

Oct 02, 2015 9:37 PM

I love to knit and crochet as well as sew and read.
TV is not really my thing as once I am somewhat distracted from the pain I actually sleep while watching movies.

I have found the last couple of days to be particularly hard me, and I have start many projects only to have to stop because the pain is unbearable.

Oct 02, 2015 10:50 PM

Over the pain, I understand. My boyfriend falls asleep ever time we watch tv together. I have to be really sick to fall asleep with the tv on. And that's been happening a lot lately. It's been frustrating losing all my days to sleep. But when i hey exposures I don't have much of a choice. At least my boyfriend understands.

I love to cook when i can (i chop up the vegetables and freeze them so there isn't as much to do when i cook.) Plus of oi don't cook i don't eat for to severe diet restrictions.

Big hugs!
So happy to have found y'all !

Oct 03, 2015 9:45 PM

Weezie, That's too cool!!! I am a member of a paranormal group. The name of the group is called PAST (Paranormal Activity Study Team). I also belonged to the Long Island Ghost Hunters Association and have had my own home investigated for the presence of TWO spirits that have been here a very long time. I know for a fact that the one follows me around the house. Any time someone takes a photo of me, you will find an orb somewhere in the picture. I always know when he's around because I can hear something that sounds like someone breathing. I always say hello when I hear it and every now and then, you will hear a loud sigh. It's really an amazing topic.
Amanda, Thank you so very much for your kind words. I really DO enjoy coming here and checking in on everyone. It makes me feel good and it also makes me feel fulfilled if I can make one of you smile or feel better. There really isn't any better feeling to me than helping someone out. There are many of you who come to my rescue when I am having a hard day and I appreciate it with all my heart. I never imagined that I would find such a great group of people. It has truly been a blessing to me.

Oct 06, 2015 2:18 AM

I am just getting this! Spent the last few days passed out from one of my diseases so hand been MIA from life (will post about how this affects relationships later)

But just wanted to say how awesome it is that y'all s are into paranormal! I totally believe in that and think I've got a spirit keeping close watch on me lately.
My best friends restaurant was visited by some "ghost hunters" but they didn't find anything. But I have a gift and know that her restaurant is defintely haunted (was built in the 1800s) and I have worked in the restaurant alone before and trust me I wasn't alone!

I am so excited about making new friends. It'd be cool if there were a way to message others on this group through the forum board. Not that we need another "faKebook" or the like.

This place is unique because everyone is supportive. And i habe come across too many support groups which have grown to become something which hurts more than helps.

We have a great group of people here. 'Glad to have discovered y'all (I think I've day is that at least a million times but when attacked by peels in your own support group, finding a good group makes all the difference

Oct 06, 2015 11:28 AM

Kitty, I went to a psychic fair once with my group just for fun and while I was walking around and checking out their wares and waiting for a reading, several came to me and said I was a "sensitive" and an empath. I do know when they are around. When my best friends sister passed away, I was standing in the cemetery and someone kept touching my shoulder. When I turned around, nobody was there. When I got home and was chatting with my friend on the phone, my air conditioner, which was not plugged in, turned on when I said I was touched and wondered if it was her sister. Guess I got my answer Just that very moment. When I go to pain
Management I have to come home and smudge to get some of the negative energy I pick up off of me. At least you don't think I'm

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