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Do the new CDC opioid guidelines have any difference in your pain levels?

Jun 24, 2017 6:04 PM

I'm curious it's been a year and a half possibly two years since the CDC has released several guidelines for opioids and other scheduled II, III VI medications used in pain, anxiety, spasms and similar diseases. How if you been affected by these guidelines both federal and state and do you think they have prevented overdoses by those undergoing treatment with pain management doctors?

Jun 24, 2017 6:30 PM

Pain Management only answer is injections (may take up to 10 before beneifit) because "We don't give narcotics as it has been proven it doesn't work for long term use"

But no insurance now and can't afford to go to PM...hope this helps..

Jun 24, 2017 7:00 PM

How have I been affected? My doctor of 13yrs moved his practice back east, the dr (if you can call her that) that took over his practice told me on the very first visit" I don't want any chronic pain patients in my practice". Since then I have tried to find a new doctor which is nearly impossible even without the pain issue because I do not have any insurance ( I am too poor to qualify) for Obamacare-crapola, Medicaid Medicare etc and you can't get past the receptionist around here even to pay cash in full each visit. The doctors I have seen have attacked me verbally, been angry, accusatory, suspicious, without any compassion let alone remembering" do no harm". I have been on some kind of pain medication for my issues for over 30 yrs. Youd think that would be enough proof, but nooooo. They are either scared of these "guidelines" or just find it easier not to have to deal with the Feds looking at them cross-eyed because they are actually trying to treat and help their chronic pain patients. We are treated like we have done something wrong, like every pain patient is selling their pills or abusing them themselves. We are tried and convicted simply because we have pain. If you haven't noticed by now....yes I am angry,bitter and just furious that because our govt has gotten in-between doctors and patients ( they have no right) that those of us in serious pain don't get help from anyone. I had a life when I had the proper meds, now I have nothing....no more hopes, dreams anything for the future .... because as long as there is this new hysterical attitude about pain meds I will have no future accept more and mord pain. After being alone for over 20 yrs, I finally met my soul mate about 6 yrs ago. He wants to get married like yesterday, but I have told him I will not marry him until I get some help handling this pain, and for me what works is pain meds ( along with others) that work in tandem with each other. I will not marry someone I love so dearly only to have him have to take care of me. I was my mother's sole caregiver for 30 plus yrs and I know what it is to watch someone you love suffer terribly and not be able to do anything to help them. It is hell....I won't do that to him. The doctors seem to forget this crap put out by the govt are GUIDELINES...not law...they are basically suggestions. As for as the overdose question...the more restrictive they are with peoples pain meds, the overdoses of say heroin are skyrocketing... because and this was a real news story...little old morman ladies and morman mothers are going out and buying heroin to handle their pain,when their legitimate prescription get yanked so they can continue to raise their families or continue to work to help their husbands pay the bills etc so they don't loose their homes etc. Also what the mass media and the govt ( one in the same in my opinion) are not telling everyone is that from the beginning,they put acetaminophen in hydrocodone,not to help with the pain, but to stop people from abusing it. ( Taking more, or snorting,shooting) it. What they have accomplished is that when a person gets yanked off say oxycodone or higher for their pain and put on lower dose hydrocodone....they have to legitimately take more to deal with the level of pain.... these people or the victims in most overdose cases you hear about nowadays not because they took too much pain medication, but because acetaminophen is a hepo toxin....it is toxic to our livers. They are dying or overdosing because their livers fail....that's thanks to our govt!!! And by the way, I don't want anyone here to think I'm some sort of street thug because I know this stuff about people shooting or snorting drugs. Up until a few years ago I couldn't have told you want even pot looked like. I have been force into this knowledge doing as much research as I can trying to find out what in the world is going on with our Medical community and our govt. I have had only two GPs in my life and both were old fashioned doctors and both were before all this govt stuff came along. So when I lost my second GP because he moved I was thrust into this garbage because I never knew it was going on before. I was shocked and appalled. Anyways I have alot more to say on the issue but this is already way way to long, sorry... but I am truly furious that because of something some guy in Washington figured out a way that it is more profitable for them to restrict pain meds ( and you know it has nothing to do with protecting the populous) it's about the money with our govt guys...always....my life has been literally taken from me without cause...no trial...no conviction...just guilty. Of being in to much pain... how that for land of the free???

Jun 24, 2017 10:05 PM

I know what you mean ... it is terrible....and hat that honestly life is not worth living when in pain .. if never thought like that because of my boys and husband ... but honestly what kind of life is this for them when both parents have weekend off (Father US Army, Me Goodyear plant administrative assistant) and we don't go any where because it rather hurt in my home than in a zoo or beach or museum... and ruin there good time its just bull**** all of it ...

Jun 25, 2017 2:08 AM

They might only be "guidelines" but they are enforced as if they were LAW. My doctor has said that it could be her LICENSE TO PRACTICE if she ignores their "guidelines"

I used to be on 75mcg fentanyl patches plus 15mg Oxycodone 2x day at my last appt they just dropped me to 50mcg after having been at 62mcg for 4-5 months I was told that THE CDC ARE NOT GRANTING ANY EXCEPTIONS PERIOD!!

Since when is there a law or a ruling in Washington that DOESNT HAVE EXCEPTIONS!! Hell, even thou shalt not MURDER has execeptions (i.e. Self defense, etc...)

I have 3 more sets of my 62mcg patches (a 50mcg+ a 12mcg patch) and I'll be DAMNED if I'm gonna drop my dose ONE NANOSECOND BEFORE I ABSOULTELY HAVE TO!!!!

Jun 25, 2017 3:46 AM

My new dr said within the first 5 minutes of me meeting her that due to "new guidelines and moral beliefs" she doesn't prescribe any opioids, or medications that could be addictive. So she took away my Vicodin and my Ativan. (Again, all without knowing me or what my conditions were.) My Ativan is used for anxiety and I only take 0.5mg maybe once a week. I even had a letter from my previous psychiatrist and doctor asking her to keep me on it, because it has kept me stable. She told me if I had any pain problems to see a pain specialist.

Jun 25, 2017 4:51 AM

Keep the replies coming!!! I think all the chronic pain patients should unite and March on Washington in mass and have some educate themselves to speak before one of those Senate dub committees or something and present 100s of thousands of letters from patients who couldn't attend. The only problem is, I think they know we are in to much pain to do all that... we're having trouble getting thru a day of just cleaning out homes if that....I just can't figure out where the money is for them to be doing this... because we all know...there ain't nothing that goes down in Washington that doesn't make somebody a ton of money. Don't think I'm a nut job but I said this in another post...my fiancée and I know if at least three elderly friends that had their pain meds yanked for no reason and like they weren't having enough trouble getting around....without there meds they basically were sentenced to life in there chair with no HOPE...and once the strip you of your hope there is no reason to go on.....they very quickly passed away...one of our friends compassionate doctor who did prescribe pain meds to help his patients ( like that's what they are there for) got so much pressure from the higher ups at this govt funding clinic for the poor...committed suicide....I think part of this agenda is a sort of passive euthenasia. No joke, no craziness....just think about it. I mean, please know I am nit knocking what anyone here had posted...I have read every post on here because I am so so hungry for any and all info regarding this...but people sometimes loose site if what they have...their blessings...when I read that people are sick of this med or that med or they have 7 doctors etc and they are sick of trying this or that... just stop and think....if you feel hopeless and alone now....try doing it with NO doctor for 6plus yrs and no meds of any kind nothing for the pain that can drive a person either mad or to suicide...no meds if any kjn...for muscles, for anxiety, for sleep. I have nothing but hopelessness and despair... please don't think this is a pity party or sob story. It's just a reality that I am sure 100s of 1000s more are going thru too. There is a reason torture has never gone away since the beginning of time....most human beings will do ANYTHING to get the pain to stop...see passive euthenasia...I guess not so passive at all. I guess I'm trying to say, please be thankful for what you have...and pray for those who are going thru the same pain,anxiety,depression,fear etc. With no doctor, no tests, or exrays,CT scan,MRI,bloodwork, therapist, and medications of any kind
...be thankful, be aware if those who feel they have no other option but to just make it stop....please just make it stop. Sorry alittle off the subject maybe...I don't know and again sorry for how stupid long this is...but that's me...I've been dealing with this for way too long alone so I guess I've got alot to say....God Bless you all

Jun 25, 2017 6:56 AM

Amen BrokenBlossom! I had typed a whole litany of things I have been thru and was too disgusted and hurt to restate being labled/flaged and BANNED from dictors, hospitals and pharmacies...now I have to drive 250 miles to get dammitalls because codiene doesn't work long term!
I didn't tell him I had been on same level of codiene for over 20yrs! And you're right, tried, convicted and sentenced...
So, Spinepainsifferer is that the kind stuff you want to know?

Jun 25, 2017 7:10 AM

an after thought, I contacted an old pain management clinic and was asked if I was ever arrested? 😳! Now what praytell does THAT matter?

Jun 25, 2017 10:08 AM

Well I guess that's why the call it "practicing"medicine....they don't KNOW what they are doing....they are only practicing! Same deal with "practicing law " I've never met a lawyer either that seemed like they really knew what they were doing !!

Jun 26, 2017 6:32 PM

@Spunky that makes no f* in sense!! What does a criminal record have to do with your need for medical care?? I suppose that if you say that u had ever been arrested for ANYTHING (even a traffic ticket) they'd probably dismiss u as a patient or deny u services!! I guess those with a record aren't entitled to care for chronic pain!!

Jun 26, 2017 6:34 PM

@BrokenBlossoms I think the idea of testifying before congress is a fantastic idea‼️ I've got some connections with the head of the RSDSA who might be able to help us.

Jun 26, 2017 7:50 PM

Oh kmaoboe there isn't anyone less capable emotionally, physically,and mental than me to speak before those jerks ( nice word for them, I try not to swear) now your going to make me look like some loud mouth that's got alot to say with nothing supporting it. Haha I'm lucky if I can make it TO the store...going in is another whole deal 🙄😉😏 I've always been a behind the action type even when I was capable. That why I said have "some" educate themselves. Even with all the research I've done...it's not nearly enough.... besides probably wreck it for everyone by telling them off... oh my I just got this mental picture of me being dragged out physically by the guards....kicking and screaming HA ...I can see people watching ...thinking there goes Broken Blossoms again... oh my gosh I can't type this ...I'm crying from laughter... glad you liked the idea...

Jun 26, 2017 8:30 PM

Kmaoboe, I realized my post back to might sound like I was taking it lightly or funny...I guess I was maybe trying to cover my sadness over not being able to do much of anything any more...I hope someone more capable and self educated will like the idea too.

Jun 26, 2017 9:12 PM

I have autonomic small fiber neuropathy (extremely painful), osteoarthritis, bursitis,etc, etc. Last Monday underwent a total knee replacement. There's no question that it's a brutal, painful surgery. So why was I prescribed only two dialysis per day? How was I supposed to endure an aggressive physical therapy program on that? I live by myself, am 69 years old and suffer from a long list of medical issues including sarcoidosis, fibromyalgia, copd, asthma, heart failure and others, I really need a proper amount of medications to get through this. Btw, I'm allergic to codeine and it's by products such as hydrocodone, vicodin, roxycodone, etc.

Where are the stats that show opoiod deaths have decreased?

Jun 30, 2017 9:37 PM

Not only decreasing but why haven't they listed actual epidemic numbers?
Are they counting chronic pain sufferers in the epidemic crisis/addictid count?
Would be interesting to see.

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