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Do you get to sleep when in pain?

Feb 29, 2016 3:08 AM

I've been taking meds and distracting myself with TV and solitaire but sometimes it doesn't work & I have to drive my grand daughter to school, so need to sleep and wake fully :>[ Any ideas welcome.

Feb 29, 2016 4:29 AM

I wish I had some for you. It's so hard. Pain keeps me up as well. I fall asleep and wake up again. Sometimes I just don't get to sleep at all. I've tried all the distraction techniques and tv, music, guided meditation, etc. I am almost always tired. I wish you all the best in finding ways to sleep better. {{{Hugs}}} 💕🙏🏻🌻

Feb 29, 2016 4:55 AM

I use an audiobook to help me get to sleep but I can't tonight or should I say this morning. I have a problem of getting to energetic and hyper sometimes and having racing thoughts and it keeps me up a day or two. I think I will sleep in a few hours though.

Feb 29, 2016 7:21 AM

I used to have trouble getting to sleep so downloaded a sleep aid app from amazon it is called deep sleep with Andrew Johnson. It helped me some nights my knees, hips and shoulders will be so painful they wake me up.

Feb 29, 2016 7:41 AM

I use my muscle relaxer and essential oil diffuser to help me get to sleep but I always wake up a lot from the pain within 30 mins anyways. It's like messing up in a video game, I have to decide whether to TRY AGAIN? Or put the idea of sleep out of my head until I pass out from exhaustion.

Feb 29, 2016 7:56 AM

Omgoodness!!!! I am not alone, once more! Sleep is so foreign to me anymore. We struggle with so much! I am an hour early to my pain management appt, cause I didn't want to oversleep past my alarm! I don't have a schedule of sleeping. I have such a difficult time getting to sleep, staying asleep, & 😳 then even staying awake! 🙄 I have tried all of the above as well as I also now take Trazodone ... My stay asleep is currently in a good place. Good luck to you!

Feb 29, 2016 9:18 AM

Sleep...well, I try to sleep a lot but often I'm running on under 4 hours. My dad caught a cold and was kinda hallucinating from working 3 days straight with 9 hours or so, and then he was thinking the trash cans were people...that's kinda new all the time, surprised by shadows and sometimes there seems to be a cat stalking me on the edges of my vision...anyway, basically, I sleep enough. If I'm at constant 10 pain (happened a while back) I just go until I pass out from exhaustion, which meant a few hours per week. The rest of the night was just spent staring at the cowling, trying to be anywhere else, and creating stories with the lines on the ceiling.

Things that help me are Phenibut and kava (dad gets them as bulk supplements) which I take for a week, then switch to kava and valerian. I also have an app called twilight which tints the screen to red, so your body will start going to sleep from light earlier. I also use it during certain headaches. My dog also helps me sleep (when she doesn't wake me up every couple hours lol), plus tension/relax meditations, which I hardly ever do because they take a ton of focus and sometimes make my muscles spasm.

Feb 29, 2016 9:40 AM

You guys are the best. Thank you for the ideas. I'd never thought of a sleep app or red light.
And you're all doing the same dance that I do with sleep and thoughts, etc.
I honestly thought I was alone in this. And grrr, my primary care doc keeps talking to me about "sleep hygene". Oh brother!
So thank you, all.

Feb 29, 2016 10:27 AM

She said to sleep in a cool room with the window open. An oxymoron in the blazing summer here and in winter it's below freezing. But I keep it a bit cracked because I'd hate for the energy bill to be too low.

She said go to bed early, which is no problem since I practically live in bed from the pain and fatigue (which is not sleepiness).

And don't do anything in bed but sleep. I have to do things to distract myself from pain but I don't play soccer or drums in bed, if that's her concern.

And wake up early, yes, okay. Sometimes that's easy, if I'm still awake from last night's pain &/or racing thoughts. Does that count?
Hmm, maybe I need a new doctor.

I probably should find one who has experience with folks who have multiple chronic illnesses. Oh, and s/he has to accept Medicaid. The game is afoot, Watson.

Feb 29, 2016 10:39 AM

That sounds like what they suggested at the chronic fatigue unit. They said my CFS is due to the pain so I need to find a pain management unit easier said than done.

Mar 01, 2016 1:41 AM

Another thing that is important with sleep is not to look at computers, tablets, and phones a couple of hours before sleep as they can hinder sleep or quality sleep. It puts off blue light that hinders sleep.

Mar 01, 2016 8:28 AM

For me, I try to go to bed early(around 8 or 9 at the latest). I've been dealing with ankle pain at night recently so I usually will put my TENS unit on it for about 15 minutes. Make sure ALL the lights are out, take a hot bath, my nighttime meds(Pyridium, occasionally Ibu, and 2 Benadryl because I itch worse at night). Usually out like a light within 30-45 minutes. If I don't take the Benadryl, then I basically wake up in about 4-6 hours.

Mar 01, 2016 11:07 AM

I can't sleep neither, my partner can sleep as soon as his head hits the pillow. So not fair. I got told to keep a sleep diary, then got told that people need sleep. Like really we do? Jeesh I thought it was a myth. So once I got told off for not being serious and not to be sarcastic, we then had to go through everything to help you sleep. So when I answer yes to hot baths, no alcohol, no caffeine, cool room and everything else, she came up with the answer not every one needs alot of sleep. I go days without sleep, it's horrible the pain seems worse as well. I've come to a understanding that if they don't know how we feel then they can never understand what we go through. Not everything can be learned from a text book.

Mar 01, 2016 4:20 PM

Something always hurts enough to wake me up. I'm not sure it's a good thing to do, but I force myself to stay awake during the day. I try to do something meditative before bed and, for me, knitting does it. The warm wood needles, the rhythmic clicking, watching the string of yarn slowly creating fabric. When I head up for bed I have the same routine. The last thing I do before laying down is to put on a cd, the same cd for years now of a panino playing Disney songs. It acts as kind of a trigger...I hear the music, it's time for sleep. Does it work? I fall asleep quickly, and usually even when I wake during the night, I focus on the music and can get to sleep quickly. It's a battle...I don't always win. But, I've got lots of lovely, warm hats!

Mar 01, 2016 4:54 PM

I don't sleep at all, usually taking a bath st 130am due to the back/leg pain, then crawling back to bed. I so wish there was a better solution

Mar 01, 2016 8:05 PM

I don't so much sleep when I'm in pain and pass out from sheer exhaustion

Mar 01, 2016 8:27 PM

Gulf war vet here with 25 years experience of insomnia and pain. Doc just started me on. Nortriptalin and it's helping so far. I usually wake up 5 to 6 times and never get more than 4 hours. Starting to at least sleep 4 hours straight.

Mar 02, 2016 10:58 AM

No - it takes me hours. I can't stop moving my legs, my pillow is always uncomfortable and the background pain is just like this vibrating, intense awfulness.

Mar 02, 2016 11:02 AM

There are several ways to get to sleep when you're in horrible pain. Problem is staying asleep!! I have spent days awake at a time end d

Mar 02, 2016 2:15 PM

Just got a new med for leg spasms that wake me. Anyone heard of tizanidine?

Mar 02, 2016 2:20 PM

RachAche - what do they say this vibrating awfulness is from?
Redleg, hi. Glad you're sleeping 4 hrs straight & hope it's a sign of better rest to come.

Mar 02, 2016 7:09 PM

Thanks Terri. Yes, you rule. I'm missing my granddaughter's school play right now with my back in spasms.

One of the symptoms that also keeps me down is fatigue. I hope that with pain control I'll spend less time in bed & that the depression will lift with it.

Mar 02, 2016 7:26 PM

Ummn I do rule..(giggling) Just wish my husband would realize this...and all would be as it should!!! Love y'all,Terri

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