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Do you walk even when you are in intolerable pain?

Jul 25, 2015 12:03 AM

I think I look normal as I would when I'm not flairing;
I walk straight,
I stand straight,
I don't limp,
I don't cry,
I don't stay in one spot...

All because I'm hurting I have to do the things above....if I
Lay down I hurt,
Stand too long I hurt,
Sit too long I hurt.

I'm not sure what to do..if I go to ER
They think I'm an addict,
They assume I'm low tolerance to pain,
They see I'm a weak cry baby.

IM SO LOST RIGHT NOW I WOULD DO ANYTHING TO STOP MY CURRENT FLAIR!

Jul 25, 2015 12:37 AM

I've been there too! !! Walking, talking, faking it... but dying of pain.

I hate the ER. I am officially labeled in my chart as a drug seeker with a problem with opiates. Um, NO, try living in this body with fibro, endo, IC, IBS, chronic migraines, recurring pancreatitis...you wouldn't last the day.

Can you maybe take an Epsom salt soak? That helps me a lot. I know it sounds unappealing in summer though. Plus it can be hard getting in and out of the tub. I usually need help.

I understand the feeling of not being able to find a comfortable position. Praying you find some relief so you can rest. Sending healing and relaxing energy to your lower back and leg.

Jul 25, 2015 12:42 AM

Thanks wynn....I have no bath at home, only showers...*sigh*

Jul 25, 2015 12:47 AM

Oh that is bad news. I can't live without my bath. It is a lifesaver. It is still possible for future reference to make warm compresses with the Epsom salts and place them on the sore areas. It doesn't work quite as easily as the bath, but it does draw out some of the tension and pain. I like to get the lightly scented kind from dollar tree. It comes in lavender, eucalyptus, or spearmint.

Jul 25, 2015 12:48 AM

Octobot, first thing that you need to get through your head is that you are definitely NOT a weak crybaby!!!! Let the people who treat you spend ten minutes in your position and see if they EVER want to have to go through that again. You have to do what is right for YOU. If you cannot get any relief from your pain and you need to go to the ER, then you need to have someone take you so that they can drive you home. Make sure the person you bring is familiar with the pain that you experience so that you have backup to explain to the doctor how bad it gets at times and that they have seen it and this is NOT anything more than trying to get some relief so that you can get some much needed rest. If you cannot rest, your body cannot heal and get back to a more tolerable pain level. I know it sucks that we can't get to a level where there is no pain but at least you know what you CAN deal with and if they can get you to that point or a bit better then that would be awesome. If the doctor makes any comments that you don't like then ask him/her if they have ever had a pain that was unbearable. If they say yest then tell them to multiply that pain by ten and think of it never going away and just getting worse over the years. Tell them that if they remember that pain, then there is no way they would want the pain to continue. As I said in the last thread, you need to do what it right for you, You cannot allow the worry about what they are going to think influence your decision to go and get help... I wish you the very best of luck and hope the outcome is that they can help you get back to a tolerable pain level and you can get a good night's rest. Keep me posted;

Jul 25, 2015 2:34 AM

I know if I'm in bad enough pain, I'll hallucinate so much I don't know what's real. Then I start wondering if I'm dying. Then wishing. ... .
One thing you can do is ask for low level alternatives. I've only had one doc that I actually could deal with having around. I was talking to him, said I'm allergic to Tylenol and Ibuprofen use to be wonderful before CRPS, he suggested Quinine. Is not even prescription, but it did wonders.
If you find a decent doc, they should realize you're not just drug seeking. What I don't understand is how my ex-grandpa (who gas a lot more money than my family) can get what seems like a pretty high dose of Morphine just to golf, but here I am and "nothing more than Tylenol 3" it sucks.
I just don't understand it.

Jul 25, 2015 2:31 PM

Hey..

Due to the amount of pain I was going through, I didn't feel like the need to take any judgement. I rationed my meds and took an extra dose of what I already had. I'm not sure if it's the right move and I'm not sure whether I should talk to the doctors about it.

I took an extra dose of codeine, it didn't help, took extra morphine and relief came, but I kind of passed out in bed. I'm very sure I wasn't taking an extreme amount which could result in fatality, but I was so desperate for cure some of you would understand.

I woke up feeling better but with confusion about what has happened. It was about 8 hrs ago since I last posted I think....feeling sore but definitely much tolerable. Just confused and worried what I have became.

Jul 25, 2015 2:38 PM

I like to add I woke up feeling nauseated, and just remembered my partner stuck about 6 over the counter patches. I had some voltaren gel before I passed out. Only just remembered, boy was I a ,Ess earlier.

Jul 25, 2015 5:05 PM

Yes my doctors said when you in pain it's a good idea to walk because the joints gets stiff and they need to be losing up

Jul 26, 2015 5:57 AM

I would let your doctor know. Just to have it in your records is a good idea. They may also be able to suggest a proper course of action in the event of such pain again. Might be safer than chucking in the strongest meds you have to hand and risking an overdose.
Sincerely hope you are feeling better now.
P.

Jul 26, 2015 6:07 AM

Sorry, that last post was directed at Octobot.
I walk despite pain although I'm anything but looking like an average person! I can't walk straight or tall.
IMO I have damaged something in my hip/pelvis that has gotten gradually worse over the years. I can't afford to go private to get an MRI done of the area and they are adamant that since the bones weren't broken, it's fine. Not sure I agree with that!
Walking is a definite must when you can, but we mustn't try to compare to those in good health and with no pain. Don't cause yourself major suffering just to appear normal.
I don't doubt we all tend to do far more than we ought for the sake of others, be it friends, children or work. In the end, it seems to make matters worse.
Prior to my moving, I had an excellent GP. He frequently told me off for fighting my fibro. He would say, 'don't fight it, listen to it and rest when you need to.' Great advice, but I rarely take heed.
P.

Jul 26, 2015 6:53 AM

We are the doctors they are getting paid off our symptoms they don't know how to diagnose our issues.

Jul 27, 2015 7:52 PM

Octobot, I agree with PJB that you should tell your doctor what happened and how long it occurred, what meds you tried before taking extra. Then maybe they can come up with an emergency pack, or something like a letter to keep on you directed to the ER doctors of what happens and how to treat you. I'm glad you're some improved! 🙏🌼

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