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Doctor Problems and more Frustration

Mar 06, 2017 8:40 PM

I finally got seen by a rheumatologist, after 6 years. I went in hoping for an answer as to my chronic pain, but I walked out more irritated. The rheumatologist doesn't know why I have chronic pain, he said that I could have the start of fibro myalgia but only have 6/14 pressure points or I could have my own disorder. His suggestion is to try Lyrica or Cymbalta and physio. I became most irritated when he pulled up a copy of my MRI report for a slipped disc in which my neurosurgeon said it was not touching nerves so it can't hurt that bad. While come to find out I have a complete herniation at T11-T12, Degenerative Disc Disease at T11-T12, and spinal cord & nerve impingement (pushing on both Spinal cord and nerves). Now I'm completely lost as to where to turn next or completely give up. I need suggestions or support.

Mar 06, 2017 8:43 PM

Since I've been in chronic pain since I was 11, I do meet all criteria for 3 types of Juvenile Arthritis but can't be diagnosed as I was sent to adult rheumatologist.

Mar 06, 2017 9:17 PM

OMG what is wrong with healthcare. I'm sorry you are going through this.

Mar 06, 2017 11:25 PM

Get a second opinion from a more competent neurologist or neurosurgeon. I had a neurologist tell me nothing was wrong with my neck, two weeks later i saw a neurosurgeon and he did emergency surgery because my spinal column was being compressed. He said i could have been paralyzed at any moment.

Mar 07, 2017 9:09 PM

AmbrielleLyn. Try
Chiropractic, with a Chiropractor who does non-force like SOT. Sacro-Occipital Technique, I am a D.C., no pain, MS for 6 months

Mar 07, 2017 10:36 PM

GaryA. I was thinking of starting chiropractic treatment for my fibro but a little worried. It sounds like it worked for you! That's Great 👍
I was told a long time ago that I have a curve in my neck!

Mar 07, 2017 10:52 PM

AmbriElleLyn, I am sorry you are going through this, I am to the point where I don't trust doctors, they think everything can be fixed with pills!

Mar 08, 2017 12:47 AM

Happy to talk to you about Spinal Cord Stimulation treatment and how it has helped others with similar conditions

Aug 10, 2017 8:41 PM

I have also had my pain belittled and made to feel like there is no help. The problem is there's no concrete test for most of these chronic disorders. It's just the doctors best guess. It's very frustrating. As a teenager I tried many meds. And now I prefer to deal with the pain rather than deal with the side effects.

Aug 11, 2017 12:36 PM

Have you tried tens? My insurance refuses any surgery in the Thoracic region because there is no flex ion in the area. Tough! Look into PT Tens or spinal cord implant. Other options that may help you.

Aug 11, 2017 12:59 PM

I'm sure we all have felt like you!

I am also undiagnosed😐 it could be RA, Lupus, Fibro.....who knows? But my rheumatologist is also probably the most unsupportive and unsympathetic person ever! Is there a forum or board we can lay a formal complaint at?

I am also looking for a new doctor!

So you are not alone.... will keep you posted on a good doctor if I get one! ❤️

Aug 12, 2017 2:42 PM

Nienie, with you being in South Africa I am not sure your procedures for lodging a complaint. I guess the beauty of a capitalist society we can hit them in their wallets and threaten their licenses...

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