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Doctors are confusing

Aug 12, 2017 3:45 PM

I had an appointment with some specialist who told me my pain is all in my head and that all I can do is try not to think about things that usually cause me pain, he still did refer me to physio though. Now I've had one appointment with the physiotherapist told me that the problem is caused by part of my spine is all damaged due to me falling down the stairs 3 months ago. I'm now going to be doing physio to try and help with the pain. Just now I had loads of pressure at work to pick up extra shifts, my job involves doing heavy lifting and things like that and now I can't do it, I've told my manager that and now my shifts and job loads have all changed and I'm afraid I will lose my job as I can't do what was stated in my job description. I also have stress due to things at home, my head is so full of everything I'm struggling to focus on anything, I can barely sleep, and I don't know what to do anymore. I keep breaking Down because I just feel useless and like I can't do anything. I know this is a bit of a rant but I'm just lost

Aug 12, 2017 4:22 PM

I'm so sorry your going through all of this😞 What a stupid doctor! I will be thinking of you and I really hope everything goes well for you πŸ’•

Aug 12, 2017 4:35 PM

I totally know the feeling.... especially when you feel that absolutely nothing is going rightπŸ˜• Can we help in any way?

Aug 12, 2017 5:34 PM

Abiii, I and I think everyone else here completely understands and gets what you're saying. Unfortunately that's about all any of us can do for each other right now...I'm in the US and I knew this was going on here because of the govt sticking there noses into the doctor's job...but that's a whole other story...I've been really shocked though that it seems to be world wide...I think we all better start thinking about the real agenda going on behind the headlines like who's making money off of treating us this way and why it's really happening... because I think we all know its not an opioid epidemic that's making this happen... but again that's a whole other topic to discuss...my thoughts though are that with all the stories I've read just on this app...and there has to lots of other apps and places where people talk...with what is probably 100s of thousands of people being treated and told the same garbage about their pain... something is probably going to happen soon...someone is going to find the strength to lead the charge, if you will , someone is going to get all of us together to hold our doctors and our govts accountable for the unmeasurable suffering they are causing for basically no reason. Like I said before on here...most of us don't have the strength to get thru each day with the pain we are in, much less fight city hall...but someone somewhere will....and I'm sure we all pray soon. Opioids are just the latest bad guy for the media to scream about and the politicians to stand on their soap box about because it's popular right now... before it was heroin, cocaine,meth, pot...they've done all those so now it's pain medications turn...I don't now when but at some point we are going to find a way to say NO MORE. Doctors you are here to help us feel better NOT worse. So I guess what I'm saying is you're not alone, there are people who understand and are going thru the confusion and suffering too. I don't know how that helps... because I get it, that after you read this...you get to go back to your life and the pain...my writing this doesn't change that reality....I guess all any of us can do is hope for a new day when it doesn't seem like our doctors are trying to confuse us and make us suffer.... All my best for what that's worth

Aug 12, 2017 5:45 PM

Everything seems to going bad all the time, I appreciate the concern, the pain and doctors I would like to talk about with someone but I don't know how to private chat someone as I'm still new and learning how this app works. However the home stress I don't feel like I can discuss as it's kinda personal, idk tbh how to express how I feel about things as everything is just messed up currently. Things just seem to go wrong for everyone on this app, people get to the point they feel they can't go on anymore, others use medical marijuana and stuff like that and others like myself just get left suffering because doctors don't seem to understand the problems we all go through. It sucks that people suffer like it, it's not fair on us all as it affects us all in daily lives and prevents us from living life to the max.

Aug 12, 2017 7:43 PM

@Abiii. Awe sweetie . So sorry to hear your life Is a mess . πŸ€—πŸ€— you will get through this. We are all here for you. Pm anytime you need to vent.

I hope your manager can work with you. Light duty or something . Sending prayers your way. Please keep us updated.

((Gentle hugs))πŸ€—πŸ€—πŸ€—πŸ€—

Aug 12, 2017 8:45 PM

I am sorry things are tough right now! Just know that there are a lot of us that understand what you are going through ! Message if you want to chat! Take care! 😊

Aug 13, 2017 2:09 AM

Unfortunately, life is unfair...and it seems it takes too long for the pendulum swings ever so slowly...but we get knocked down and we get back up..remember the song by Chumbawamba: I Get Knocked Down
And when we do get knocked down, we may be a bit slower in getting up bit we DO GET UP (not yelling, just emphasis)
We learned not to be quitters and if we gave up; it would go against our principles..the one thing we have control in our lives:..

Aug 13, 2017 3:30 AM

@westrengirl thanks, and I know I will eventually get through it but for now I'm struggling with everything. I don't actually know how to pm yet on here so I can't.

Aug 13, 2017 3:31 AM

@christmas7 I know a lot of us are going through this and it's horrible that so many people suffer with conditions and that there is nothing that can be done anymore

Aug 13, 2017 3:32 AM

@spunky that's true we do eventually get back up again and I'm afraid I don't know that song haha, and quitting does sometimes seem like an option though as things become to hard to continue. The only good thing is that my fiancΓ© won't let me quit, he doesn't want me to give up like I used too and now he makes me stick and continue.

Aug 13, 2017 1:00 PM

Hmmm, maybe we can start a thread and everyone says what their favorite pick me up...or our fight songs and maybe we can make a Music to fight pain or even one to Rejuvenate us...
Make a 2 CD compliation and sell them then all the monies we can buy our own doctors! Bwahahaha!

Aug 13, 2017 1:08 PM

Yeah! You tell me where the doctors are I can buy...I'll start saving right now!! Ha hahaha ha ha!!

Aug 13, 2017 2:01 PM

Abiii, what you are going thro sounds like you are feeling depressed. You have soo much going on from stress at home then the fall down the stairs which means you can't do what you could 3 months ago so that has caused extra worry about whether your job is safe or not.

Let me be the first to say that you are NOT useless, you need time to heal both physically and mentally. Be kind to yourself and give yourself time to feel and cry if you need but at the same the don't wallow in the feelings if you can help it.

You may need go to a doctor about having a scan or x-ray to see what damage there is to your spine and the best course of treatment on top of the physio and to also talk about how you're feeling. Maybe they can refer you to a counselor to help you talk through your feelings and maybe you might need an antidepressant for the short term to "pick" you up a bit.

Sending you positive vibes and warm healing hugs xx πŸ’ž

Aug 13, 2017 2:06 PM

Spunky and Brokenblossoms I'm right there with you, I'm seeing my Rheumatologist on Tuesday and I intend on having words with him because he says I have to come off my slow release morphine because it's not "helping" me.....well the last 3 months has proved that it is helping me and everytime I try to drop another 5mg I go into a flare which means I have to go back up again, I tell ya this is driving me crazy, I have no quality of life as all I can think and feel is pain 😞

Aug 13, 2017 2:15 PM

I'm sorry your going through this πŸ˜” you need to let your body recover from falling down the stairs, If you ever want to chat pm me πŸ’•

Aug 13, 2017 3:32 PM

I'm sorry Sezzy...how can they tell it isn't helping? Just because some study says long term meds don't? They block pain...pot blocks pain, gabapentin et all do the same thing..so logic would dictate if one doesn't work then all would quit working the same...
Maybe examing why this is going on is a worth while endeavor...but then what? How do we reclaim what helps us?
How do you folks in the UK, in Europe and Africa and US, how do we stop this global assault?
Seems to me it would be easy to MAP docs that are writing bogus scripts against patients that benefit from documented history
Of illness...I could be wrong...but computers can be programmed to meet any criteria and spew out data...Are you going to record your conversation with doc?

Aug 13, 2017 4:09 PM

That's the thing, I've tried gabapentine carbomezapine and pregabline and for me they make me sooooooooooooooooo tired that I feel worse, the pain gets worse and I can't function at all so I've found a combination that was mostly working, Amitriptyline at 110mg pm with 12 hour slow release morphine am and pm. My doctor has added duloxotine to the mix but I'm not entirely convinced that it's helped much at all! As with anything you get days where there's no control of the pain but I wasn't having soo many flares and my base pain was manageable and I'd been on the morphine dose at the strength for nearly 9 months without having to go up on the dose.
I'm managing on half the dose but finding that I'm getting more fibro flares 😞 but funnily enough my trigeminal neuralgia pain is a constant background pain rather than the dominant pain.....I say touching wood!....

Here in the UK things are pretty much moving in the same direction as you guys.

I'd never thought about recording my appointment, I don't think he'd be happy with that!!!

Aug 13, 2017 10:06 PM

@Abiii. I sent you a pm. πŸ€—πŸ€—

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