Its this really long acronym for some messed up neurological disorder. I have been trying to get the genetic test for it but thanks to my insurance, they don't want to have to pay for it. The doctors all thought I had MS but now it is this stupid thing. Heck I'm willing to undergo experimental treatment to get diagnosed with whatever this is. That topped with my joint dislocations and Ehlers-Danlos just sucks. Thanks!
So sorryTnich... So what are the symptoms and treatment.? It seems everything they are diagnosising me with these days they are saying it hereditary... But no one in my family has them. I wonder if I am adopted!!??