Hi everyone I have chronic fautige syndrome and fibro but I'm wondering wether I could have lupus, I have lots of the symptoms so I'm getting a doctors appointments to see what they say but I was wondering wether anyone on here has it that I could chat to? Thanks in advance 😘💕
I have lupus and Sjögren's syndrome, I just saw my new Rhuematologist yesterday. And I showed her the pic of my face with the butterfly rash. And I showed her my scalp and how I have scaling scalp. But before her I only saw a Rhuematologist one time and she said I just had Sjögren's syndrome and fibromyalgia and that even though my test said I had lupus she didn't want to diagnose me with it just yet that was January of 2016. So my new Rhuematologist ordered blood work to see where my levels are because when she examined me and the pic of my face with the butterfly rash, she believes I have lupus.
@LittleLola I'm sorry that I'm on the old app. I'm using my phone to communicate with all of you guys. But my Symptoms are butterfly rash when I'm in a flare and very very fatigued everyday. All my joints hurt and my digestive system is all out of whack. I'm anemic and my vitamin D levels are always very low. I have had blood in my urine and and I get low grade fevers too. I'm praying you don't have it. Hugs to you 💜
Don't worry about it I was just letting you know💕 I'm really hoping I don't have it too but I have extreme fautige and joint pain and a lot of the other symptoms. But it could just be fibro? I will let you know what the results are 😘
I was diagnosed with Lupus 14 years ago and just recently they have added a diagnoses of Fibromyalgia. I'm having added pain from my new diagnoses but am also having a Lupus flare. So much fun. Working on it. One day at a time. Not letting it get me down. Doing my exercises and as much activity as I can without overdoing it.
When I was diagnosed with Lupus my symptoms were joint pain (mainly in my hips and legs), pain radiating across my back, kidney trouble, extreme fatigue (would go to work, come home, go to bed, my parents would call on the phone for me to go to their house a few blocks away for supper, after supper go back home and back to bed, sleep until the next morning and start all over again. Then I started getting sicker. Coming down with chest infections. I would work 2 days and be sick for a week, get better and the cycle would start again only next time I'd be sicker. They did tons of blood tests and finally found out it was Lupus. They put me on Prednisone. Sent me to a rheumatologist. A little over a year later I was talking to my GP about my rheumatologist being upset that she started me on Prednisone before he saw me. She told me that she did it because according to my most recent blood test I wasn't going to live long enough to make it to my appointment. (None of my levels were normal.) She started me on Prednisone on the Tuesday and I saw my rheumatologist on the Friday.
Oh gosh sorry you've been through all that! I have all the same symptoms as you except the kidney problems. I'm going to get it checked out tomorrow as I'm at the doctors anyway for lung pain! Thank you for helping me 😀
Hi..I have SLE which is Lupus I haven't experienced the rash but I have had swollen face,both lips,wrist..an I have body aches an pain in my legs ,knees,shoulders,an breast...hope this help..hope you feel better.😄
I have Lupus and wonder if I have Fibromyalgia too! Seems they often go hand in hand. My biggest Lupus portion is the extreme fatigue. I had a sleep study done to see if there was something else (like Idiopathic Hyposomnia, or even Narcolepsy). Turns out I never stop moving at when I "sleep" ... They noted 412 limb movements in 478 mins (8hrs) of the study!! And I only reached REM for a total of 59 mins of the normal 90- 110 mins throughout the night! No wonder I was falling asleep at my desk!
I have Lupus as well SLE it's extremely painful there's a community on the internet called mylupusteam.com that has been My Sanctuary and feel free to add my YouTube channel Fighting Lupus It all about my lupus Journey. . .hope ur feeling better keep fighting. . .