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DOES ANYONE HAVE POLYMYALGIA RHUEMATICA??

Apr 30, 2016 10:09 PM

Does anyone besides me have (PMR) Polymyalgia Rhuematica? I have not met anyone with PMR. I am beginning to think I am the only one...although my doctors tell me I am not. Is anyone on Chronic Pain have PMR? I would like to talk to you to see how you are managing your illness. I feel like Kermit the Frog... It's lonely being "green". It's lonely having PMR! It's the chronic pain and all the other diagnosis that unites us. 👨‍❤️‍💋‍👨

Apr 30, 2016 11:29 PM

One of my dad's aunts that i have never met has it. Apparently they were talking about me and she started talking about how fibro is a waste basked diagnosis and I should try to get diagnosed with what she has. 😕
Anyways. Given the large number of undiagnosed here and the ones who feel the given diagnosis just doesnt cover it im sure there are others here that have it but just don't know yet.
Hugs

May 01, 2016 9:39 AM

Thanks. It baffles me that I've not run across others who have not met others diagnosised with it. I wonder if others are misdiagnosised?

May 01, 2016 9:42 AM

I think a lot of people are misdiagnosed. I think the most common misdiagnosis is fibro and then once someone has that label absolutely everything is considered fibro because they don't want to look deeper. Symptoms for fibro overlap a lot of conditions

May 01, 2016 11:49 AM

MySistersKeeper what exactly is PMR? Is it similar to rheumatoid arthritis? I've never heard of this before. I'll google it and see what I can find. {{{Hugs}}}💕🙏🏻🌻😊

May 01, 2016 10:18 PM

Wow after doing a bit of research I would bet that alot of us might fall into this diagnosis. I think that way too many patients are diagnosed with fibro as a catch all by doctors to lazy to do the real diagnostic work. I think fibro has become a catch all for patients that are complex and having pain. Thanks for the post. I am sure you are not alone. Besides Kermit is awesome!

May 01, 2016 11:22 PM

My diagnosis is definitely correct with fibro. Tried reading about poly-rhue, is it more centralized pain and they don't attribute fatigue to it?

May 02, 2016 2:28 AM

Alwayzinpain I had never heard of PMR - Polymyalgia Rhuematica until diagnosised Actually it was my neurologist who diagnosed me tHen he referred me to my rhuematologIst who now manages my illness.

May 02, 2016 10:58 AM

I've read about this before, on the College of Rheumatology website. They think my sister may have it. They're running lights off tests on her to find out.

May 02, 2016 2:22 PM

Maybe. I have mostly pain in my upper body and lower body, but I have many other symptoms that are characteristic of fibromyalgia and not polymyalgia. So maybe if they are related and/or can be coexisting.

May 03, 2016 6:25 PM

LMB you maybe right. Why are so many diagnosis with Fibro and not Polymyalgia Rhuematica not that I want more people to have PMR because one doctor told me PMR is like having Fibro ten times worst. Just would like to compair notes with someone who actually have the disease.... I want someone to be like me...it's not easy being green! 🐸

Apr 23, 2017 2:47 PM

I have a tentative diagnosis of PMR. It's an old post so if you are still wondering, reply "yes" and I'll share my thoughts and experiences.

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