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Don't know what's wrong

Apr 07, 2016 11:33 AM

I have been bounced from doctor to doctor and they keep telling me different things. My pain is all on the right leg but is now spreading up my body. I'm on gabapentin 300 mg 3 times a day plus naproxen 500mg twice a day. It takes the edge off the pain just enough so I can fake my way through the day.

My husband is now starting to think I'm making up my pain and this is not helping me at all. I don't know what to do anymore.

Apr 07, 2016 1:11 PM

I wish i had some words of wisdom for you. I was lucky enough to have a doc that believes in fibromyalgia and was okay to diagnose me. All of us have encountered someone who didn't believe us from time to time but i havent had the displeasure of living with someone like that. I am sorry you are going through this

Apr 07, 2016 7:01 PM

Rayleen, are the doctors of different specialties or the same, like PCP, rheumy, orthopedic, neurologist, pain specialist? Are you keeping a log of when it starts, what you use to help, does it help, etc? Are these doctors in a small town or a big city? That alone can make a difference. Another difference is (or what I've noticed locally) younger docs are more up to date and willing to investigate. Are any blood tests showing abnormal inflammation levels, or other abnormalities?

I'm sorry to hear your husband is doubting you. My hubby wasn't supportive for several years. He kept saying things like he'd be glad when I could return to work. I took him to my rheumy appt one day. When he said he'd be glad when I could "come off all hat medicine," I thought my doc was going to blast him! She whirled around and angrily said, "you apparently don't understand what your wife is going through. Her illness is for a lifetime and she can't come off her meds. She went on to educate him, even on issues outside her specialty. He looked Iike a scolded school boy! Lol. Since then he tries to go to many appts, just so he can learn more. And he's become my biggest supporter. Invite your husband to go with you. He can possibly provide info on what he sewed that will help the doctors diagnose you. Hugs & prayers you will get a guild doctor who's willing to investigate until they find the cause. 🙂💕🙏🌼

Apr 07, 2016 7:12 PM

I know how you must be feeling right now. My husband and I ended up divorced over him not believing my pain. To make matters worse the doctors did nothing even after my fibromyalgia diagnosis (that would take over 6 more years to get help for pain).

I so wish I could tell you how to get your man on board. This is not your fault and he needs to "man up" and support you. Which is what I told my man when he came crawling back...man up or keep moving. He now gets on anyone who doesn't believe me and is my biggest defender. He goes to all my doctor's appointments and his comments and concerns are even in my chart notes!

Don't give up on him as someone wise from this forum told me... men don't know how to deal with what they can't fix.

Wishing you patience, strength and relief.

Apr 08, 2016 11:22 AM

I live in a big city in BC Canada. I have been to my GP, who sent me first to a physiotherapist. When that did not help she started me on pain meds. That was six years ago. I then went to a chiropractor because I was told the problem was a rotated SI joint. When that did not help my GP then sent me to have an MRI done after I asked for one. The radiologist said there was a significant budge to my L5 S1 disc and the report was then sent to a neurologist for a consult. The neurologist said that I should have epidural steroid injections before trying surgery.

With this I was then sent to an anesthetist for said injection which hurt me more than what was going on in the first place. A couple of months after this treatment I became worse and my GP then prescribed Percocet. While taking them I went from 147lbs to 115lbs in one month. We stopped those meds and I was finally sent to a neurosurgeon. But once I got there he showed me my MRI (I'm a nursing student so I knew what I was looking at) and there was almost no budge and very little decompression. He told me that it would be malpractice if anyone were to operate on me. So he wants to send me for nerve mapping but made me feel like everything was all in my head and I was making all of this up.

I went back to my GP and she has now perscribed me gabapentin and naproxen. I'm waiting to hear back about the appointment for nerve mapping but in Canada everything medical moves at a snails pace, so I'm here in pain trying to raise 2 kids and take care of a disabled husband.

I'm trying to find ways of coping but it's just becoming too much. I don't know what to do anymore.

Apr 08, 2016 11:25 AM

Oh and the pain has just in the past couple of days spread up my back to my arm and hand.

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