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Don't think I'll ever get use to this part

Feb 08, 2016 9:23 AM

I had a relatively good day yesterday morning and early evening. Later in the day the pain got a little worse but tolerable. But this morning I wake up to swollen knuckles golf ball sized tender points in my butt and both legs burning rods in my ankle headache and overall crappy ness. Thank GOD fatique is not as bad today but while the pain like this who wants to do anything. Sadly I've got some places to go and driving is gonna a GOD job today. But how do u plan a life around this kind of pain. If I had to go to work like this I would be in tears by mid morning. I'm almost there now. I just want to sleep the day away so I don't have to feel this.. My heart is racing and pounding out of chest. I can only figure it because of the amount of restraint I'm using to not cry or scream with discontent and agony. Oh joy now the muscle spasms are starting. Gotta go hands or locking up .

Feb 08, 2016 9:57 AM

Its so hard you go to bed thinking tommorow you will have a breakthrough no something else always happens...i forced myself to do some yoga this morning ive been feeling sorry for myself and inactive since infection ..something has to give :(..feel better honey!

Feb 08, 2016 10:11 AM

What I really hate is going to bed the night before feeling somewhat better and know that you will wake up in extreme pain. I can't sleep in a bed. I have to sleep in a recliner. But in the morning it hurts terrible. I wish I didn't have to sleep. Sometimes I will avoid sleep for a day just to avoid the pain.

Feb 08, 2016 10:14 AM

Profiler i have actually contemplated that ..no sleeping!

Feb 08, 2016 11:24 AM

Michellled.. I know what u mean.. I dragged myself out the bed to run my errands and the stiffness was tolerable but I did ask a lot of strangers for help today. I had some heavy things to pick up so I just grabbed some people and thankfully they all.helped. it hard to fight the need to go back to bed. I'm so tired now. And really don't want t to adult today..ha..but I'm.gonna drag along. But I really really hate these days.

Feb 08, 2016 11:27 AM

Me tooo! I have Percocet left over from inf trying to not take it!

Feb 08, 2016 12:34 PM

Yes I've got loratb leftover from my last surgery and I'm holding it too.

Feb 08, 2016 2:36 PM

I am right there with you had to call off today due to pain and no sleep.

Feb 08, 2016 2:38 PM

Maryinmt. I'm sorry your in pain and still have to worry bout your job. I'll hope you have lower pain levels soon.

Feb 08, 2016 2:39 PM

Thanks I have had to cut back to 20 he's a week. I am trying to get disability. I have my psych exam on the 22nd.

Feb 08, 2016 3:24 PM

I completely understand everything everyone is saying! For me, I have been in recovery from street drugs & alcohol for 12 Years now. For the past 3 years I have been taking narcotics + many others for pain. We are all going to do what we think is best for ourselves, however if I have anything that could relieve my pain, you better believe I am going to take it! Staying sober is the most important for me, next is self care. "Not a sermon, just a thought"

Feb 08, 2016 3:32 PM

I was hooked a year ago didnt know it and so i just stopped felt better out of my system but jeez at times i want that coma!

Feb 08, 2016 3:35 PM

That takes a lot of strength to stop! No one really likes the coma. I don't want to be misunderstood, I am not personally promoting getting hooked on any pharmaceuticals. If there isn't a concern for using the medications as directed - that I what I meant to relay. My apologies for any misdirection. 💗

Feb 08, 2016 3:36 PM

No no thats not what i thought youre implying at all!I think its more in my head dont do it know what i mean?

Feb 08, 2016 3:39 PM

Oh phew!!!! If it's a concern or the pills are talking to you from the cabinet, perhaps it's best to return them to the pharmacy? You know, for self care. Don't flush them though! Not sure where you are, but I am but the Potomac, & it is so polluted by pills/meds...

Feb 08, 2016 5:31 PM

Its actually just percocet for my kidney infection i trust myself had them for awhile and not getting refill lol so if i really hurt i will! Ty;)

Feb 09, 2016 5:18 PM

Newfibrogirl, that's how I was during my recent flare. I'm just glad it ended before I got my tooth pulled yesterday. I hope you feel better soon. Hugs, love, & prayers! 🙂🙏💕🌼

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