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Don't u love new symptoms. Ugh

Dec 13, 2016 6:13 PM

If my list of back issues wasn't enough and my diagnosis of fibromyalgia, i know recently have been diagnosed with ms. Stupid me thought that meant maybe they been wrong about the fibro all this time. Nope. Just one more problem now. And i love the bladder control issues and ED that has come with it. I know I've said this before but feel so alone even though i been married 26 years and have the daughters. Two steps backwards for every step forward lately. Oh and for some reason i have no appetite but I'm putting on weight like crazy. Sometimes lately i wonder if my wife loves me cause she needs to care for me or truly still desires me since i am no longer the man i was. Sorry for complaining but this seems to be the only place i have anymore. Even my friends have turned into hi and bye conversations. Make for alot itv lonely nights.

Dec 13, 2016 6:35 PM

Have you changed to the new MS treatments? My favorite is when my mom yells "is there anything you don't have? " you're not alone

Dec 13, 2016 7:20 PM

Many of the meds we take can cause weight gain too. It is always something.. :( Am.so sorry..

Dec 13, 2016 7:42 PM

Mimikay, I have a very loving husband yet we've only been married for a year. It sad but true he has had a kidney transplant and I think that's what bonds us. We understand our diseases as much as we can and know that we need to keep each other afloat. He knows that my pain meds get in the way and his meds cause ED and we have plenty of stress but more room to be grateful for the good times. I have, so far, since diagnosed with RSD and fibro gone from a size 4 to a 12. But if I can go through hell to grab a piece of heaven I will do it for us .

Dec 13, 2016 11:12 PM

Haven't started ms treatment yet, doc seems to think it's OK to wait three months for a follow up, gave me diagnosis over phone after all my tests results were in

Dec 13, 2016 11:51 PM

Sorry to hear about the MS diagnosis. You poor thing. Maybe get a second opinion if your doctor is taking 3 weeks.

Dec 15, 2016 8:07 AM

Happytoseethesunrise, I am sorry that you're going through these things. It's not easy. Each time you think you can't take more there's a new symptom, pain or diagnosis for which are more meds, side effects and more.. just know that as bad as it seems, it will get better. (And then worse and better). You have to listen to your body and take breaks and make adjustments. You have an entire community to come to. Try to maintain a positive attitude and find the gifts in each and every day.. they are there. We laugh here and get naughty here. Nothing is off limits. We talk and laugh about everything. Sending you well wishes, positive vibes and the best.🤗💕

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