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DUT Pain Symposium

Nov 21, 2015 3:24 AM

Hi ladies and gents... I'm an occupational therapist who is attending A Pain Symposium in Durban South Africa.... I'm presenting on back pain, but we've also just spoken about headaches....I have 'professional' and recent personal experience of severe pain .... A quick question - what advise do you have for 'professionals' to improve person -centered treatment? And what one think has helped you with pain management? Strength, peace and grace to you all!

Nov 21, 2015 7:01 AM

The one thing that has really helped me was having a Dr who really took the time to sit down and understand my pain. Dr. Gregory Molter is a DO and is not someone to hand you whatever sample the drug rep has left, saying, "Here, try this."
His patients are people, not annoying customers, and their pain matters. He wants to solve the riddle behind what's causing it so he can take it away! His staff always called within a week after he started me on a new rx, to make sure that I was doing ok with it too and ask questions about side effects. I think they realize that sometimes you feel too sick to even call a doctor!

Between the "affordable care" act and an insurance company feud that patients in my area are caught in the middle of, I can no longer go to him; but he totally set the standard for all Doctors as far as I'm concerned! He was only my Dr for about a year and the old one never forwarded my history to him; but took my almost daily headaches of 5-8 down to a day or two a week, and sometimes less. (I really miss that guy right now that I was diagnosed with FMS)

Nov 21, 2015 9:12 AM

Hopefulhumanmargs, first I would like to say that I hope you have gotten good information at your seminar. I think it's amazing that you are able to attend such a great conference in Africa I have been going to pain management for over 20 years and one thing I have always appreciated it the doctor's full attention and willingness to listen and the desire to figure out what will work to help ease my pain. I find in these times with insurance companies being what they are (that's what I did before I became disabled) doctors are booking 5 appointments every 10-15 minutes and don't seem to be fully "present" with you when you speak to them. I know they don't get paid much from the insurance and that they have their hands tied with authorizations to treat, etc.. But that is no excuse not to give the patient your full attention and listen and HEAR what the patient is saying. Thank you for asking and {{{Hugs}}} and prayed to you. 🌻🙏🏻

Nov 22, 2015 12:32 AM

Hopefull, a doc who listen and cares about me as a human being is key to me too. Without a good doc nothing else gets done. Thank you for caring enough to be interested and ask

Nov 24, 2015 3:14 PM

Thank you for your awesome feedback! Exactly.... I totally agree with you! It's ironic that the health professions were created to provide services in order to care, show empathy and deep compassion for ones fellow human. That was the purpose and what I hope to still take priority in our professions. Without these characteristics, whatever health professional one is, our efforts are superficial and insufficient if intervention is without empathy and the ability and desire to LISTEN! It is particularly important in conditions causing pain....because pain is so disempowering and isolating........ I just love your responses! I agree wholeheartedly! Thinking of you all this evening! And thanks again for your real honest responses! I've shared it with someone who is involved on an international level with public health!.... A side comment.... I may be without a job at the end of the year (found out today), but very grateful the headaches have kept away today. Nothing short of miraculous ;)... Must be because of the support of others. I'm grateful... Keep on! Speak again

Nov 24, 2015 3:45 PM

I am happy to have been able to give you helpful input. Thank you so much for the acknowledgment that patients do indeed need to be listened to and heard. Empathy, compassion and understanding are always appreciated when a doctor cares and wants to go that extra mile to help a patient find the cause of their pain and how to lessen or eliminate it. I've had 29 surgeries in 22 years and have been at a level 8 pain for years. I've been willing and have tried everything offered to help me from therapy to p/t, o/t, acupuncture, massage, stretching, walking, NSAIDs, nerve pain meds (neuronton, gabapenten and Cymbalta) all of which failed and caused me severe side effects. I also have degenerative joint and disc disease. (Along with a long laundry list of other stuff). I've been to rheumatologists, neurologists, pain management, physical therapy, psych therapy. Still having horrible pain and also have to say I am tired of being sick and tired. It is what it is and that is what my life is now. One thing I have to say is that I've been hearing a lot about doctors wanting to take chronic pain patient OFF of their medications. They claim it causes more pain. Sad thing is that chronic pain patients, the ones who live it every day like us, know that's not the case. Can you explain why they think that taking people off of their pain meds when they are getting relief and being able to function? When I skip doses, which I do often because I help my elderly parents with errands and won't drive if I've taken them. The only thing that happens to me is increased misery because my pain levels escalate to beyond my tolerance. If they told me they were going to take my meds away, I'd be pretty upset. A level of 8 is enough to bear. Just wondering why the scientists think they know better how these meds work than the patients who take them. I am glad that your headaches have held off. I know how aweful they are as I suffer from migraines and cervicogenic headaches. I'm sorry that you my not have a job, I hope you settle into another soon. Thank you for caring enough to ask for our feedback. We are a tight knit group of people who hold one another up through bad times and good. We care for and understand one another deeply and have formed many close bonds. I pray that you find support here as well and that you hang around and get whatever information will help doctors to help us. Also, to have a community who will be here for you when you're having a hard time and need a hand to hold. Sending you {{{Hugs}}}, prayers and best wishes.💕🙏🏻🌻

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