Hi everyone, I found an amino* for people with EDS or people that know others with it. It is a really good community that has daily conversations, polls, posts, questions etc.
I hope anyone with EDS will join as it is a really good community that is open to all. I might add some pictures later of it. Here is the invite code for it http://aminoapps.com/invite/FYIU1ZMHB7 or you can search EDS into the app and it is the one with the rainbow zebra as the smaller picture.
Thank you all, Lucy
* amino is an app for apple and android that has all different kinds of communities built in for tv shows, food, animals; basically anything.