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EDS III, sneezing, and a burning back

Mar 26, 2015 6:45 AM

I have Ehlers Danlos type III aka hEDS. Last week I sneezed and my spine popped. Instantly my lower back felt like it was on fire. When I put an icepack on it even the ice felt warm. My other half said my back felt warm to him as well. Later that night I was walking across the floor and started to lose my balance, I caught myself from falling and when I did my back popped again. The heat started to dissipate and the next time I put ice on it the ice felt cold, I am taking that as a good sign, but it is still painful four days later. Ugg I need a break! Oh well, time to put my happy face on and start my day. I hope anyone reading this has as great of a day as possible.

Mar 26, 2015 8:01 AM

Scary Ann Sounds like you have had a couple of bad days. Hope you have as much pain free day as is possible.

Mar 26, 2015 7:43 PM

ScaryAnn, that sounds like when the back popped the first time it pinched a nerve, and the second pop released it. I feel your pain because of my cervical neuropathy the last week+. I'm glad it got better for you!! I hope your EDS doesn't cause that to happen often. Hope you had a good day and a relaxed and less painful night tonight. 🙏🌼

Apr 01, 2015 5:34 PM

This happened to me two days ago massive e crack and pain in lower spine. I've been lay on heat pads trying to help it to either go back or ease the pain at least.glad in a warped way it's not just me. I one day I've dislocated a shoulder popped my back and that's for starters

Apr 01, 2015 6:30 PM

Well Bobbs & Scaryann, I hope you're both better soon. Praying so! 🙏🌼

Apr 02, 2015 4:11 AM

I can so relate to the whole "it's not just me" feeling! I don't like that someone else is in pain, but I like not being alone any more. For forty-three years I was told I was imagining all of it. Suddenly I get the diagnosis of hEDS and now half of my doctors believe me! I get my first nerve block on Monday, I'm hoping it makes a big difference. Bobbs, I hope yours goes back in soon, I can't express how glad I am that I stumbled that night and mine went back!

Apr 02, 2015 9:56 AM

ScaryAnn, I'm praying your nerve block brings more relief. I did 2 years of ESI's, treatment for cervical, thoracic & lumbar pain. I'm 15 months since my last treatment (tx) and just starting to have bad pain again. Its been real tolerable until recently.

Good luck & praying for you both! 🙏🌼

Apr 02, 2015 8:34 PM

Thank you FlappysLady! My other half has been getting them every few years and says they help. He just had his latest one a couple of weeks ago.

Apr 08, 2015 11:19 AM

Oh no, I'm so sorry. I have hEDS as well, and things like sneezing, coughing, laughing, and especially hiccuping can cause intense problems in my ribs and spine. I hope the nerve block helps you!

Apr 08, 2015 4:47 PM

So far I am regretting the nerve block... I'm still hoping it gets better. I'm even getting cramping in my calf now, and I haven't had that in ages. Not going to give up on it yet though. :)

Apr 08, 2015 7:34 PM

Scaryann I hate to hear that. But I think there were a couple of times that the first few days were rough. I do know my neck was bad the first time and he did the second one sooner and from that point on I did fairly well. I did use ice at the injx site every time. Praying your pain will ease up and the injx will take effect. 🙏🌼

Apr 10, 2015 5:46 AM

Hi ,I have Jhm and ospteoporosis and eds v11 , and every thing pop on me , from head to toe , I don't go to the doc any more I've learnt how to pop thing back in place myself ,I'am 47 years old and a mum of five ,every day I'am in pain ,so I do understand ,

Apr 16, 2015 11:21 AM

Hi! Sweden calling! I have HEDS too. No popping of any joints but severe fatigue and joint pain. Also a lot of dizziness. Hope you all feel better soon! Hugs! // Heidi

Apr 24, 2015 8:55 PM

Hi all, just wanted to let everyone know I'm still here. I've been sick with a nasty cold. I'm staring to be glad I had the nerveblock. I was able to walk to my brother's house then to my Dad's without my walking stick! That was the first time in over a year that I have walked that far without it. Now if only I can shake this cold.

Apr 24, 2015 9:53 PM

ScaryAnn, that's really good news about walking without the walking stick! Just don't overdo it too much too soon. 🙏🌼

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