I feel so let down after my appointment with Rheumatologist today. He used Beighton score and only scored me 2 points - 1 for both legs and 1 for both elbows. He didn't examine anything that I told him was painful. He didn't ask me to do all the tests either. I have several family members with EDS. He told me if he tested me when I was younger I would have got more points. He has diagnosed me with Fibromyalgia even though he didn't do all tenderpoints. He told me fibromyalgia was psychological. He has organised an MRI to see if I have arthritis which also runs in the family. And blood tests but I have no idea what they are for apart from one which is for glucose as had glucose in my urine. Diabetes also in family. I am in UK. Any feedback would be appreciated.
New doctor ASAP! I know in the UK you are assigned doctors. I would file a complaint and demand to be seen by someone else. The doctor did not even do a complete proper exam. That is useless. Try to fight to be seen by someone else. I am sorry that you were treated like that. None of us deserve that. Sounds like this jerk needs to retire. Sending you gentle hugs across the pond.
I'm with LMB, new doc if possible. Not only is he diagnosing u wrong but he calls fibro psychological? Damn i wish these jerks could spend about a month in one of our bodies, then tell me it's all in my head!
Fibro is definitely not psychosomatic and we always have to fight so hard to prove it even though there is so much research . Stay strong 💪🏽 I would change doctors but also don't be scared to take them the latest articles and research that way they know you have sources to back you up
There is now sure fire proof of fibro with increased blood vessels in body compared to those who dont have it. It is ground breaking research and could lead to treatment and a way to help with diagnosis. Those who say it is psychological or that it doesnt exist are idiots imo.
I feel the same, rheumatology just said, yeah it's fibromyalgia and Eds, minimal tests or examinations. I'm waiting for an MRI but have been told to stop painkillers and anti inflammatory, which is causing me lots of pain (obvs) Although it is good to finally get a diagnosis I do feel a bit fobbed off. Not had any further appointments through yet so I'm in limbo really. I'm in pain, practally immobile, and depressed 😣
Wow. I am so sorry for what you're going through. I had lots of docs like that . Diagnosis me with everything but the real problem. I wish you the best . Sending prayers your way.. that doc is for sure a jerk . Fight for your right . Don't give up no matter how long it takes 😊🤗 it is not all in your head . 😊😊 the doc needs to get his head exam 🤓🤡