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EGD = more dx

Mar 09, 2016 5:32 PM

Had a third EGD today. Stretched the esophageal strict for a third time. Ignored the small polyps this time since last time they were benign. Biopsied for a new diagnosis (dx)...Barrett's Esophagus. Yippee, another chalk mark.

Mar 09, 2016 5:50 PM

Flappy... I have that too! Isn't it wonderful? NOT!!!!

Mar 09, 2016 5:57 PM

Are you on a specific diet? My GI doc retired in 2 weeks. He originally wanted me to see one doctor, but now he wants to refer me to a GI surgeon who specializes in Barrett's & other issues.

Mar 10, 2016 8:24 AM

Flappsy, I am so sorry that you are dealing with this. I can't imagine the discomfort of having the strictures dilated.. It must be hugely uncomfortable. Do they sedate you for that procedure? Last endoscopy I had they told me I was very close to Barrett's Esophogis from my GERD issues. I haven't had one in many years but I find that I lose my voice a lot and my throat is terribly dry. Contemplating if I should make the appointment and get checked out. I just don't want to add yet another dx to the list as I know you don't. You're always in my thoughts and prayers my friend. {{{{Hugs}}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Mar 10, 2016 11:44 AM

AlwayZ, they do sedate me for the EGD's. If they end up doing biopsies or dilations, they always inject Fentanyl in the IV while I'm under, so there isn't so much pain. But the ureter time ever (post op) I woke last night at 1:10 am with severe pain in my stomach. Luckily I had some Donnatal to take. It's much better today. He said I need to avoid foods that trigger my GERD. The weird thing is that, according to research, only 10% of those with GERD go on to develop Barrett's Esophagus, and even less % develops cancer. Of course I tend to be the patient that falls into the "rarities!". Lol

Mar 11, 2016 9:03 PM

I hear you.. The same happens to me. I've had so many doctors tell me that I'm a mystery and that when they open me up things are much different than they could see on scans and MRI's, etc.. They also have said to me that I have something that rarely occurs. I'm tired of being one of those patients. {{{{Hugs}}}}πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Mar 11, 2016 9:21 PM

Oh, geez, I am so sorry to hear you have Barrett's. I have had it for about twenty years. So far so good, although I'm late for my procedure. I'm trying not to be buried beneath a mountain of doctor bills. There are several things you can do to to limit the reflux which does real bad damage. I hope you will feel better soon.

Mar 11, 2016 10:10 PM

So sorry hun. My youngest son has Barretto too. He refuses to takes meds for the reflux. He's 21 so I can't make him, but I sure worry. He's had his esophagus stretched twice and needs it again. Love & prayers to you.

Mar 12, 2016 8:31 AM

Flappys, I will be praying for you! When I saw this my heart sank for you. Just do me a favor and Please Please Please Please keep after Your Doctors and having them do the biopsies. I love my pain family here and would hate to see anything happen to any of you. Flappys your in my prayer's and I'll say an extra one for you that you will find a great doc who will treat you right and does his job like he is supposed to!

Alwayz, I'll be praying that you Don't have Barrett's! Please keep me posted! I'll be praying for you all!

Silvrry, Hun please I'll be praying for you!

Sleeping I'll be praying for your son!

Mar 12, 2016 8:34 AM

My sister's keeper I'll be praying for you as well! Just make sure you keep after your Doctors and having them do the biopsies! Prayer's for all!

Mar 12, 2016 1:02 PM

You all made me tear up. Thank you! I love you all too!!

Silvrrry, do you have any specific book or website I could find info on what not to do?

I'm really miserable today. I'm not sure stretching my esophagus was a good thing for me. My reflux comes up easier, from bending over or even my clothing pushing on my stomach. I've been this way all week, but it gets worse every day. My GI doc told me to buy OTC proposed and take it before bed, along with the double dose rx he's got me on. I asked him about the GERD meds & dementia connection and he slugged it off, saying it was not true. I'm worried though, because of my dad & grandmother's Alzheimer's, and my already dx memory loss.

I really do appreciate all your prayers! I wish you all a very blessed weekend! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 12, 2016 1:39 PM

Flappsy, my GERD symptoms were like that and no matter what RX they gave me, I'd get pain in my gut and when I'd fall asleep it would all come up and out my nose and I had aspiration pneumonia several times so my lungs are scarred from that. However, the only OTC med that works for me is Zegerid OTC and I take one a day and can eat anything without acid reflux. I hope this is helpful. I wish the doc hadn't brushed off your concerns about the meds and dementia. I'll ask my gastro about it for you and let you know what he says. Sending much love and {{Hugs}} and healing prayers that you get relief and start feeling better. You're always in my thoughts and prayers, my friend. πŸ’•πŸ™πŸ»πŸŒ»πŸ˜

Mar 12, 2016 7:17 PM

I hunk I'll try the zegerid. Thanks AlwayZ! The acids already trying to come up, and it hasn't helping bending over the laundry AOL day.

Mar 13, 2016 6:18 PM

I hope that it works for you!! I want to know that you're not dealing with that nastiness any more. You've got enough on your plate. {{{Hugs}}} and prayers coming your way, my friend.πŸ’•πŸ™πŸ»πŸŒ»

Apr 19, 2016 8:28 PM

I was at doc most of day, new GI. Had to do preop paperwork. Going to do 2nd EGD but with a different addition. It's called Bravo, and it's a procedure where they attach something to the wall of my esophagus. I wear a waist monitor for 48 hours and the internal device records all kinds of readings including acid reflux or the hiatal hernia popping up. If it shows what's expected, we'll be doing hiatal hernia repair. Doc said a hiatal hernia causes Gerd which causes Barrett's esophagus. It would likely eliminate Gerd & med for it, and the Barrett's esophagus. It's scheduled for Matt 6th.

He did say that although many people have BE, it is are it becomes cancer, especially if they know the patient has it, because they are followed more closely. Very tired so turning in. Early appt tomorrow and PT in afternoon. Hugs & prayers for a good night for all! πŸ™‚πŸ’•πŸ™πŸŒΌ

Apr 19, 2016 8:56 PM

Flappylady, go rest now. You had a hard day.check in with us tomorrow, let's see how you feel. I am happy for you about getting your hernia repair surgery! Terri

Apr 19, 2016 9:41 PM

Dear Flappys, no I do not have a special web site I look to for Barrett's info. I manage my symptoms through following the handouts my Dr gave me after last procedure.
Always make sure you do not eat for 3 hours before you go to bed
Avoid the foods on the acid list like tomatoes, spicey recipes or foods, peppers including black pepper, coffee, chocolate, dairy. Ice cream is a trigger food for me ( which is probably a good thing)
My hubby put blocks under our bed that raise the head of the bed 5-6 inches which has really turned out to be a blessing. Sometimes I cannot get out of a late meal, so I must stay up the 3 hrs from the time I last ate & sometimes I must use extra pillows as well as the bed elevation. Then there are the rare nights I sleep in the recliner.
I take Dexilant everyday. Occasionally I have to augment with soda water.
I have had my Esoph. Stretched, but not for quite a while
My evening meal is smallest of the day.
I have aspirated into lung, but not for several yrs. It is a terrifying event that I do whatever I can to avoid.
When I was young and for a lot of yrs I had an eating disorder that contributed to the dx. I have to really be in control of my physical reactions because all I have to do is think of vomiting and I do so.
I try to keep on point with my self care.
I hope you can find something here to help you manage.

Apr 20, 2016 11:26 AM

Flappsy, my cousin wore that monitor and they finally found the hiatal hernia that kept putting her in the hospital with chest pains. She says it wasn't so bad but then again she's a very tough lady and says that about most things. You know, like if her arm were hanging off, she'd say it was a scratch and go to work. I used to be that way too.. Not any more. I hope all goes smoothly for you and they are able to take care of the situation with little discomfort and quick recovery. Sending you gentle {{{Hugs}} and much love my friend. πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Apr 20, 2016 9:31 PM

Thanks Terri. Surprisingly I slept 7 hours straight before walking. I guess I needed it.

Silvrrry, thank you for your advice. I do most of them already. I can't raise my the head of my bed due to the split box springs and solid mattress, and it being on a 4-side frame (headboard, footboard, side rails). But I have wedge pillows and a recliner if needed. I've had GERD since the late 80's and been on almost every PPI med there is. Lol I felt like I aspirated about a year ago, but X-ray was clear. I hadn't vomited since 2010's surgery, until Jan 27 & March 1. Totally caught off guard. Doc said likely the hernias & stretched, dilated stricture.

AlwayZ, I'm hoping this turns out well too. It would be one less meds and 3 less problems! Lol We could all use some of that!

Hugs & prayers to all for a golf night & tomorrow. πŸ™‚πŸ’•πŸ™πŸŒΌ

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