Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Ehlers Danlos

Apr 15, 2019 2:25 PM

I have Ehlers Danlos syndrome

Apr 15, 2019 2:25 PM

What can help with it

Apr 18, 2019 10:45 AM

I don't have this so I can't help with it. Have you searched the topic in the chat forum? There are older posts on this. Hugs love and prayers for strength as you learn ways to help you cope with this! 🙂❤🙏🌼

Apr 20, 2019 5:51 PM

Find a support group, f b has several. You will have to keep written records with you at all times, especially if you every have to go to an emergency room. Your body will have to be handled gently. I am not trying to scare you but you will have to teach your self all you can. Like my disease which is rare even an MRI can cause damage.

Ready to start relieving your pain?

Join Community