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elevated liver enzymes?

Feb 23, 2016 6:06 PM

This rheumatology appointment can't get here fast enough. My freaking liver enzymes are elevated. Could be because I take a ton of ibuprofen (stopping that now), or my liver is being attacked. I'm so not amused. Hopefully I don't need a damned hepatologist too. I'm already exhausted and haven't even started with the specialists yet. I'm going to scream now. Just out of frustration. My body hates me.

Feb 23, 2016 8:54 PM

I'm so sorry Fireyred! I wish I knew something to help lower the liver enzymes. My sister was told years ago she had Hep-C, and because she couldn't (not wanted) to take the expensive rx meds, she took milk thistle every day. Her rheumy doc said she no longer has any signs of hep-c. I don't know if that would be an option or not. I'll say a prayer for you. Hugs!! 🙂💕🙏🌼

Feb 23, 2016 9:02 PM

Fireyred I happy you got an appointment right away. I had to wait 6 months and every time I ended up in the ER it was something always wrong. Like you liver well mine was my kidneys. So I was praying all the time cause my gynecologist said she didn't want me to end up on dialysis. And I hated my body everyday and felt ugh knowing my body was attacking itself. I'm so sorry you going through this because I am too and it's the worst. I'm praying for you and make sure you let me know how your appointment goes. And if you have any questions just let me know. I may have to ask you some cause I can see we are at the same point in this process of being diagnosed.

Feb 23, 2016 9:04 PM

My mom had it, but I've been tested many times and came back negative. Her viral count was too low to pass on to me. It's just one more thing pointing toward lupus. I'm gonna go pick up copies of my lab reports tomorrow and look over them myself. After all the liver crap I went through with my mom, I should remember what I'm looking at. If I'd known they were checking my enzymes I'd have asked about the values at my appointment today.

Feb 23, 2016 9:51 PM

Yes get all the info you can

Feb 23, 2016 9:59 PM

I've never had to be my own patient advocate before. It's always been for someone else. New territory and I'm forgetting things that I'd never have forgotten if it were for someone else. I'll get better at this. Hopefully sooner rather than later.

Feb 23, 2016 10:00 PM

Fireyred, your liver enzymes are not elevated by Ibuprofen... Acetaminophen over usage causes certain liver enzymes. You do not have to stop the Ibuprofen. I would not start freaking out at this point until you know exactly how elevated they are..I have mild liver enzymes elevation . thought it was bad ..doctor assured me mine were not lethal and to relax. So that is what I am passing on to you..unless you are a chronic alcoholic, or take tons and tons of pain pills with Tylenol in it ..then relax a little until you get confirmation. I understand the fact that as a chronic pain sufferers we have a tendency to get super worried about stuff, and this is soo harmful for us mentally and emotionally. Because all of it stresses us out and increases our pain levels. Love , Terri

Feb 23, 2016 10:09 PM

I avoid acetaminophen. It doesn't work for me. I have maybe tjuree drinks a month. It shouldn't be anything that I'm doing. Hell, I even quit smoking after 17 years. My vape pen works just fine for me. It's still not healthy, but it's 6000 fewer chemicals. I'm just gonna have to look over everything, and if something doesn't make sense, I've got a friend of sorts that's a hepatologist. He's on t h e other side of the country, but he'll talk to me if I need him to. I'm not gonna stress until I have to. Right now it just bugs me a bit.

Feb 23, 2016 10:11 PM

I understand, just trying to be supportive tobyou, to help reduce stress. Glad you have that friend as a resource! Love Terri

Feb 23, 2016 10:13 PM

I greatly appreciate it. I'm neurotic enough as it is.

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