Elqe, It seems to have been the norm for me. There are many days where pain levels escalate and the fog rolls in. I feel very fatigued and sometimes I don't even know what I'm saying in a conversation. I can hear myself talking, I know I'm saying the wrong thing and usually something strange. Ccccccçcf
How do you manage to go to appointments and carry on when it gets like this? I'm dozing off while driving, can't focus, forget where I'm going and about important meetings. I will make a cup of coffee then forget I just did that. I can put dinner in the oven to cook then forget I'm cooking something and eat a sandwich.
Elqe.. I know all.biut this.. As far as hownto manage it .I don't know exactly but what I've done is write notes set timers for timers. When I think of something I write it down or I set a timer. I can't tell u how many pots I've booked out because I was gonna make tea or something and forgot I had it on the stove. As for the driving I've gotten lost in my neighborhood or hometown. Left the house and got hafway and had no idea where I was at all. For this reason I limit my driving. I've not dozzed off I hope but I have gotten very drowzy and have had to catch my head when it fell. I also have a location tracker on my phone and I let my family know I have it. So if something bad happened they could find me. Hope this helps
My phone alarm clock has a huge list of alarms set lol. Meds, appointments, alarms for when I have to go to my grandma's and give her her meds, my bf's nexium, time to try and sleep... if Ihave call the doc I have an alarm set for when to call him. It's the only way I can function. Elqe, you sound like me every day. I can't remember what it feels like to be able to function normally. I'm just glad that I learned about fibro fog, because at first I was terrified cuz I thought I was losing my freaking mind. Try the alarms and calendar. Also when going to doctors or other appointments take a list. Keep a notebook and from the time you make the appointment until you go wrote down everything that you want to talk about. Every time you think of something you want answered or to just discuss, add it to the list. Then take the list with you (keep it in your purse or wallet or whatever). Trust me it helps so much!! As for cooking, again, alarms. It may sound like an annoying way to have to live, but it will help keep you sane!! 😊😊😊 good luck and gentle hugs
Phoenix, that sounds like something that I do as well. I have them both on my phone and my tablet. It just keeps me sane and also from forgetting appointments. I also keep my appointments on my tablet but I don't delete them afterwards. It let's my team see exactly what's going on and what needs to be done.
Elqe, I too have felt the same. I've even gotten lost in my hometown, forgot where u was driving to. I can't go to the store without forgetting what I was going for. I get lost in my conversations, and yes, I have started to fall asleep while driving. I have fallen asleep during conversations. It us horrible! Please go to your doctor and have blood work done, one of the tests showed my feretin level was at 5 versus 70! That's one reason why I kept falling asleep. Please be careful.
Thank you all for your input. This doesn't sound like a nice thing to say but I am glad I'm not alone. I have physio today followed with kinestheologist. They'll ask how I am and I just say 'doing ok' because they really don't want to hear me say ' it hurts to get in and out of the car, making me ride the bike for ten minutes is a session in torture, doing squats burns my knees, and my headache's so bad I'd rather shoot myself' . I've responded with 'I'm having a bad day' before and get the 'it's in your head' bs so now I don't really talk. Just follow orders. Off to be tortured again now.
Well I would start speaking there job us to help not to hurt. I had physical therapy too and on my bad pain days they did support stretches and the arm.bike. yes it still hurt but not as bad as doing it in my own. The the body weight things I had a spotter to help me transition