I was Dx with fibromyalgia several months. I had constant pain everywhere. I finally got my appt at the pain clinic at the hospital and was given Neurontin & Zanaflex which have done an amazing job at handling my overall pain. However the one pain would not go away and that was a constant headache that I just couldn't get relief from. After a month and it getting worse they did an MRI and couldn't find my pituitary gland, so I was Dx with Empty Sella syndrome. I have a horrible headache constantly and just can't get rid of it. I see a neurologist next Wednesday for the first time. I hope to get answers and relief. I saw an optamologist he looked at my retinas and my left one appears that my optic nerve looks "heaped" however, he says it looks more like I was born with it instead of from a disease process. He wrote a letter to neurologist suggesting a lumbar puncture. Does anyone else have this that may give me some insight?