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Encouragement needed for severe ankle pain

Dec 26, 2016 9:08 PM

For over a week now my right ankle has been extremely painful. I have RA and all my joint hurt but for some reason my ankle had been killing me. I honestly wish for my foot to have to be removed so i wouldn't have to live with it. Obviously that is crazy and won't happen. I am crying at least every other day from the pain and frustration. I hate not being able to move well and if my ankle gets placed slightly wrong it is horrible.

I don't know what to do any more. I am still waiting for methotrexate to kick in, which will be months before knowing if it works. Until then my doc says my only other choice for any bad pain is prednisone. It messes with my brain so much that I hate being on it. I honestly can't think, I'm so moody, etc. I just hate resorting to that. I also really can't take it if I'm in classes (which start again in Jan).

In just miserable right now and I'm still dealing with coming to terms with an RA diagnosis at 20. I feel like my life is gone and I can barely leave the house. What do you guys do to get through really bad flare ups?

Dec 27, 2016 4:55 PM

Sorry you're going through that. I have lupus an overlapping disease to RA. I know the pain you deal with. I was on methotrexate for 6 months and it take that long to feel a difference. I've turned down Prednisone twice because that drug terrifies me. To me the risks outweigh the benefits. I'm now on Imuran which I don't think it's helping much. I'm also on Plaquinel and perocette. I take anticonvulsants too lupus caused Epilepsy.
The pain is definitely brutal.

Dec 28, 2016 12:07 PM

I have Sjogrens that is affecting my joints, an autoimmune disease. Since the cold snap 2 weeks ago my fingers, hands, & knees have really been in more flared pain. Over Christmas my fibro flared with Warner weather. I've been on plaquenil since 2015 and honestly couldn't make it without it. The pain before it was awful. I've taken permissions multiple times due to asthma flares, and yes I've had bone loss. But without it I have a hard time getting over upper respiratory issues. Maybe you could try taking it for a week or two. Long term is what's riskiest, and I've lost count how many times I've needed it since 2001.

Dec 28, 2016 2:30 PM

Sorry you have it too Flappy. I just will not risk taking Prednisone for a lot reasons one being any drug that I have to be tapered off of can cause seizures for me coming off. I need to keep my driver's license.
I'm glad it's been helpful to you though.
I'm on Plaquinel and Imuran, and pain killers.
Have you tried methotrexate, or Imuran?
Mtx for me started to work but affected my lungs. I had a lot of trouble breathing. Since I'm off of it, I don't have asthma attacks as often. But I still get them. It started to cause auras and migraines.

Dec 29, 2016 3:00 PM

Gibber, I totally understand your not wanting to. Seizures are terrible; my sister has had them. I'm a little concerned about a new steroid, fludrocortisone, they added to my blood pressure med (pindolol), for the POTS. It seems I'm giving out of breath easier with very little exertion. I follow up with the doctor next week. Without it my BP drops extremely low.

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