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Endometrios pain getting worse after hysterectomy

Oct 22, 2014 3:09 PM

Hi all,
This is a short version of my endo story.
I got my diagnosis April 2011 after an emergency surgery. Started having bad abdominal pains in the evening. Took some pain meds and managed to get some sleep. In the morning the pains got worse and I got into a cab to the hospital. They saw cysts and decided on surgery which showed endo.
Pains got better for a while but then increased again which resulted in another surgery Feb 2012. After that quite OK until August 2012. Started having pains more and more frequently and ended up in the ER for pain relief now and again and started having to take more and more strong pain killers. Got referred to a pain specialist and was/am on strong pain killers and Cymbalta. Finally decided to have a hysterectomy which was scheduled for May 2014. Now more or less 5 months later I'm still in pain and started feeling more nerve pains. Burning pain around the pelvic area and shooting down my legs. So now increased my dose of Cymbalta to 120 mg/day which does not make me happy thinking about more possible side effects. Anyone else out there having the same problems? Would be more than happy to share thoughts and hear if anyone has improved or stayed in the same place after hysterectomy.Thanks and I hope you are having a pain free evening or are feeling the best you can.

Oct 27, 2014 5:05 AM

If you still have your ovaries then you can get cramps, cysts & your body thinking it needs to prepare for your cycle, I was told it takes just over 1 year before a hysterectomy shows results. Either way I would recommend you talk to your obgyn or the one who did your procedure.

Oct 28, 2014 4:57 AM

Hey, I had a hysterectomy two years ago and I'm completely miserable. I downloaded this app tonight to try and find a pattern in the pain.

After my surgery which found severe endo, adhesions, adenomyosis, fibroids, I developed a post op abscess in my pelvis and got gravely ill. My Doc thought I just had a fever and pain from a kidney infection and delayed treating it. I finally went to the ER and a CT scan was ordered that showed the large abscess, white blood cell count was over 20,000.

I had my uterus and cervix only removed, and since recovering from that and the infection I have been in almost chronic pain. A few days on, a few days off give or take. Sometimes it's chronic pain for a week though.

Feels like a burning, stabbing, contracting, tender pain.

I describe it like my pelvis feels it has been rubbed raw with sandpaper.

It's worse than before, and I saw a specialist who thinks I have severe adhesions from the infection and endometriosis that wasn't removed and more grown back.

He wanted to do surgery and remove both ovaries and resect any endo. I was too scared to do it after the horrible experience with the complication I had.

But after two years of intense suffering and pain, not having a life, I'm having the surgery. I can't live this way anymore. I just pray it works.

I hope you feel better soon and I know how you feel, my heart goes out to you.

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