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Endometriosis ??

Jul 12, 2015 4:57 PM

Anyone here with endometriosis, my daughter recently diagnosed with endometriosis and she has just found out she's pregnant her pains have tripled and nothing is helping I feel hopeless she is in so much pain and being her fist baby she really is not enjoying her pregnancy at all :(. If anyone has had/have similar experience or suffers from this is there anything that gave/gives u any relief anything at all, only recently diagnosed I am reading all I can but am still at a loss for pain help :(

Jul 12, 2015 5:42 PM

Coopz6, I'm sorry your daughter is in so much pain. After my first child I developed endometreosis and the doctors said to get pregnant because it would help clear it up, and it did for two years. I've had a finalization, partial hysterectomy, and bilateral oophorectomy, then in 2010 a large mass called paraovarian cyst removed. All this took place from 1984-1988 (births & tubalig), to 1995, 2003, & 2010. Each time they've found endometreosis. I think some women are more prone to it.

I used hearing pads and hot water bottles but being pregnant your daughter can't. She should try deep relaxation and massages of her abdomen area with lotion until after the birth. I'll be praying for you both! 🙏🌼

Jul 12, 2015 6:46 PM

Thank you flappyslady81
I don't know much about deep relaxation but will look into it for her at this point she's willing to try anything she is becoming depressed, I read that it was a myth being pregnant helped the pain but you have given me hope and hopefully it settles soon :) It sound like such a horrible painful disease and I'm sorry u suffer with it to and have gone through so much :(

Jul 12, 2015 8:32 PM

Coopz, That diagnosis was suggested to me on July 1st by my gyn. There was no evidence of it when I had my tubes tied, but knowing me and my issues, there's always a chance it could have snuck in there. I do feel for your daughter and I don't have any ideas at this point.
Yes FlappysLady, now they suggest endo after all that crap!!!!!!!!!!! Sigh.

Jul 12, 2015 9:07 PM

Coopz6, It could have been coincidental that mine improved when pregnant. After all it takes bleeding to grow every month, of that's how they explained it to me. My question for them was, "It after I had my uterus removed and no longer has cycles, how then did I still have endometreosis not once but twice more?" My baby sister had it so badly they did surgery to clean it all out because she wasn't getting pregnant. She's been totally fine since. Your sources that say it's a myth could be right.

Amanda, I do wonder if endometreosis is the "catch all" like fibromyalgia? Regardless it's no fun with either. You both have a restful night! 🙏🌼

Jul 13, 2015 7:51 AM

FlappysLady, I'm wondering that myself at this point. First they told me it wasn't an ovarian cyst but then in the same sentence suggested endo. At that point, I wasn't in the mood to argue the point with him cause I was in a lot of pain so I didn't. This coming Friday though, I am going to discuss it with the other gyn in detail because I'm really beginning to become frustrated with it.

Jul 13, 2015 1:28 PM

I have endometriosis, but have never been pregnant. Still have all my working parts, but an IUD so periods are suspended. I was put into menopause for a 6 month trial at 34 but that was awful and not a long term solution. The current situation is working so far for the most part, but I do get flares. I do biofeedback breathing for pain relief as part of my overall pain plan. I know it sounds kooky but it works for me. There are times no pain meds will work because I have endometriosis growths on my bladder and some other delicate tissues that they couldn't remove the growths from when I had my surgery. It hurts really fiercely when I flare. I breathe to get my pain down and get my nerves in check. There are several phone apps that will help guide/train you to do biofeedback breathing techniques my Dr. really likes the free one Breathe 2 Relax. It will help calm the sympathetic nervous system.

Jul 13, 2015 9:15 PM

Coopz6, I don't know where you are based, but might be worth having a look at this UK-based forum - Health unlocked endometriosis uk. You can browse topics and post questions.

Sorry to hear your daughter is having such a tough time. Usually women with endometriosis get some relief from their pain when they fall pregnant due to the change in oestrogen levels that are the main drivers of the disease. It sounds like she may have adhesions due to endometriosis, and as the pregnancy grows it will pull and stretch and break the adhesions in her pelvis causing pain.

I have lived with endometriosis for over 20 years, and had multiple surgeries to try to manage the pain. I'm menopausal now, but the adhesions from previous surgeries still cause me pain.

Jul 13, 2015 11:39 PM

I was diagnosed in 86 and lost a baby, I was lucky and the doc did laser to remove it and then I carried 2 normal babies. There are natural oils that can relieve the pain, I would contact someone such as do-terra for advice on which to use. After having the surgery I have not had a repeat of the growth, it is usually the outside of the uterus that "bleeds" unless it is allowed to get out of control. Then it spreads to the whole of the stomach. It also runs in families, my sister had it and she ended up losing all her female organs and it had started developing on her bladder. Hope that info helps and doesnot scare you too much.

Jul 14, 2015 6:56 AM

Thank you all so much it has given me some options to look into and also some concerns and questions to ask her gyno, we are in Tasmania Australia sadly I do notice here there is not much help are support on the diseases I have and I will no doubt find the same here for my daughter ,we was in Melbourne for 5 years and found a lot of help but none here :( it's a very scary thing to read and hear about and watch a love one go through . Thinking of u all and sending prayers for pain free days

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