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Endometriosis

Sep 11, 2016 4:05 PM

3 surgeries and its worsening over time- what's next.

Sep 11, 2016 4:06 PM

Specialists are now advising chemical injections or a hysterectomy. At 36 this frightens me and will this actually stop the pain.

Sep 11, 2016 9:38 PM

B, my family is full of the stuff, my sister almost died from it because it grew to the bottom of the lungs. Her doctor, did a histo. She was not even 30. I lost a child due to it. I was lucky because my doctor refused to do anything but laser surgery over 25 yrs ago. He was very trual and looked behind organs etc, something I was told most don't do now. He found the stuff in several places if he had not done that. Now that I have gone thru the change I am hoping for a histro.

Sep 12, 2016 7:50 AM

my wife has had a hysterectomy as well, we had 2 miscarriages, she was really depressed prior, but she immediately felt better afterwards. her stomach cavity and ovaries were full of them over and over and over again after every surgery until the hysterectomy

Sep 12, 2016 8:50 AM

I'm so sorry I feel this was the root to all my pains now. Is the doctor suggesting Lupron shot? I'll tell you my story. I was 20 years old stage 3 endometriosis I did the burn surgery to remove scar tissue, I did dye test ect. I got to stage 4 they gave me the shots and omg I had no uterine pain no laying in fetal position. That was it stage 4 they did the hysterectomy, it gave me my life back for another 20 years now I have major chronic pain, the full hysto cause me to now have degenerative bone disease, fibromalgia, osteoporosis, osteophytosis, sciatica. I forgot to mention the ptsd I suffered at the time feeling less of a woman. Please bring up bone loss and osteoporosis with your doctor, discuss the next 30 years and what to expect. I know you hurt and you want it over but as a woman you need to be treated long term so you don't end up like me. God bless you sorry you hit a sensitive area.

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