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Endometriosis hell rollercoaster

Sep 17, 2018 6:07 PM

So in May 2018 I ended up with so sever pain I could not move and morphine was the only thing that brought the edge down. I am no currently waiting for a diagnostic laparoscopy to determine if it is actually endometriosis. I've had really bad periods from about 16. I'm currently 25 and over the years have just gotten worse. So since May I have been in and out of hospital 6 times. I have lost all my friends my mother tries to understand but doesn't get it. I am very luck to have a supportive husband but it is hard. I'm and extrovert and feed of people's positive energy I have done my whole life but now I've been bed bound for over 2 weeks straight unable to do anything basic tasks like going to the loo is like killing myself with pain. Any advice with pain I would take. Any advice in general I would take.

Sep 21, 2018 11:30 AM

ElinaRed, I'm sorry to hear you suffer with endometriosis. I had my first known episode at about 25-26. Due to excessive bleeding, the endometriosis, and ovarian cysts I had a hysterectomy at age 32. At the time I thought that was a wonderful answer to my problems. Needless to say all my internal pelvic organs have fallen out of place causing many other issues, and I've had 2 additional surgeries to repair damage. If I had it to do over again I would only let them take my ovaries. My daughter was placed on bc pills at age 15 due to extreme endometriosis & bleeding symptoms, and she remains on it to help reduce her symptoms and pain; she's 30 now. She has pelvic inflammatory disease that also causes her a lot of pain. She says she will never have a hysterectomy except if she gets cancer because of all she's watched me go through. She drinks a glass of dark wine to help her each day of her cycle. I did it too, because it does help. I come from an alcoholic family so it was very hard for me to even try it. I no longer need it but if I did I would. My doctor said it helps this the blood & semi-numb the symptoms of pain. I also used heating pads or hot water bottles. Hugs love & prayers for less pain & strength to get through it... One day at a time!🙂❤🙏🌼

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