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Endometriosis, maybe?

Feb 15, 2017 4:20 PM

So I'm relatively new here, and I generally don't do social media with any kind of consistency, so we'll see how this goes. I've suffered with chronic headaches and migraines for years and have recently being in a revolving door of different doctors offices for persistent pelvic and abdominal pain, as well as physical therapy for sciatica. I've been doing my own research, since the doctors have repeatedly told me that I shouldn't be in as much pain as I am, and have found that almost all my symptoms seem to be consistent with endometriosis. The issue isn't that my doctors didn't believe me, in fact they slapped me right on birth control (although told me to take the placebo week for the first month, during which death would've been preferable), but it's almost like they took my word for it, because I was told that they would not be performing any diagnostic surgeries since they "don't do that anymore." Has anybody else had experience with this? Should I try to fight for the surgery? I have kaiser insurance if that makes a difference.

P. S. The pill only seems to be alleviating my symptoms somewhat. The cramps are milder for sure, but the migraines are worse and I'm still having trouble walking due to hip pain. So if anybody else has undergone hormone therapy for endo, I'd be interested in your experience as well.

Feb 15, 2017 4:32 PM

I don't personally but my wife did, they didn't do any surgeries to diagnosis her, actually told her it would get better after she had children and was true for her. She was diagnosed in her late teens

Feb 15, 2017 7:21 PM

They did surgery to diagnose mine 2 years ago. I also suffer from chronic migraines. They put me on birth control with out the placebo and an ageston pill. It has help tremendously with mine. I am possibly having trouble(with my bladder, could have spread) but they can't tell with out more surgery. Hope this helps!

Feb 15, 2017 8:08 PM

Is that a progesterone only pill? I was doing progesterone only for a while and it turned me into a cyst making machine. I'm trying out this one (which has the lowest dose of estrogen they can possibly give me) without the placebo for a few months and seeing how it goes.

Feb 15, 2017 9:16 PM

They do perform surguries for that still. I would consult with another ob. I had "exploritory" surgery which lead to removal of alot of tissue. Yes i got some relief. I got told it was the worst case he has ever taken care of. My symptoms 5 years later have returned, not near as severe. Im old enough now it would lead to a hysterectomy so i will wait it out and hope it does not get worse.

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