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Endometriosis

Jul 19, 2014 8:52 AM

Would love to talk to anyone else that suffers to get some new ideas. Thanks!

Jul 21, 2014 6:22 AM

Kelsey I just had a full hysterectomy at 35 years old due to bad endometriosis and adenomyosis

Jul 22, 2014 2:30 PM

Hi Kelsey. I had severe endometriosis (my uterus was fused to my intestines, and my intestines fused to my spine). I was on various medications, which suppressed female hormones (put me into an artificial menopause), but they were not very effective. I tried all the usual prescribed pain killers etc, which only took the edge off the pain. the most effective treatment I found was a combination of acupuncture and acupressure. I hope you find something to help ease your pain and symptoms. Good luck!

Jul 22, 2014 6:13 PM

Thanks! I had a partial hysterectomy last year because it was covering my uterus, right ovary and intestine. Now it's back on my bladder. They want to put me on Lupron now. Does anyone have experience with that drug? So frustrating!!

Jul 23, 2014 4:06 AM

I was given Lupron injections. Unfortunately, it didn't work too well for me. The side effects are similar to other meds I was given: hot flushes, spots, mood swings, deepening voice, insomnia etc. Eventually, I was given a total hysterectomy, and put straight on HRT. I have never looked back! It was the best decision I could make. I hope you get sorted soon.

Jul 26, 2014 8:15 PM

Lupron injections worked for me. I think it may also depend on how bad it is on whether the shots work. I had a partial hysterectomy, but it was recommended at that time to have a complete because as long as you have your ovaries you stand the chance of the endometriosis coming back. I had told them that if my ovaries looked fine not to remove them. I had endometriosis, adenomyosis and fibroid tumors when I had my partial hysterectomy. I have had endometriosis once since then. They gave me Lupron injections. I haven't had any problems since and I still have my ovaries. The doctor and I have discussed that if I do get it again to have my ovaries out. So you might want to talk to your doctor about that option as well.

Jul 27, 2014 7:59 AM

Thanks! I had one ovary removed because the endo destroyed it. But I do still have the one. I start the Lupron Tuesday so I guess I'll see how that goes before thinking about surgery again. Thanks everyone for the input!

Jul 27, 2014 3:55 PM

Good luck, Kelsey

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