Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Enjoying life despite pain

Jun 15, 2015 3:54 PM

Hello!

Pain has robbed me of so many things I enjoyed. I wonder if anybody has found ways to enjoy life despite the pain (at least for a couple of minutes). I am writing this because I recently found some joy: I got a puppy, a chihuahua and it is such a joy to see him play around.

I am not saying that you should get a dog but I wonder if you have found other ways to enjoy life despite pain. I need more great moments in my life.

Jun 15, 2015 3:56 PM

I have been singing because that has become one of the few things I can do when moving hurts.

Jun 15, 2015 7:52 PM

Fred82, we adopted our dog (older puppy) two months ago. We lost our beloved Max a year ago to cancer. After his death we were both overwhelmed with parents needed, and my own that snowballed.

It wasn't until our Bear (boogey Bear!) joined us that I realized I wasn't enjoying any part of life except when our kids or grandkids came around. I have developed issues that currently keep me home or at a doctor's office. Bear has brought fun life back for me!!!

I do enjoy watching movies but reading is hard because i get distracted, and if it's not interesting i get bored. Lol. 🙏🌼

Jun 15, 2015 9:27 PM

Well I have 3 dogs ages 7, and 5. A cat a 1 yr.old, and 2 rabbits. They are a lot of companie. I watch certain TV programs,read on my Kindle app. Play my new granddaughter. She is such a joy. Listen to music and sing. I have a small garden and flowers I putter in when able.

Jun 16, 2015 8:14 AM

I also have a 1 year old dog. I watch a lot of TV. I'm really into quantum physics and computers I also enjoy editing photography and videos. But on those dreadful days were u cant get up to use the bathroom without horrible pain. So we can find small simple things but sometimes it doesn't feel like it will ever outweigh the pain we feel all the time

Jun 16, 2015 8:14 AM

I also have a 1 year old dog. I watch a lot of TV. I'm really into quantum physics and computers I also enjoy editing photography and videos. But on those dreadful days were u cant get up to use the bathroom without horrible pain. So we can find small simple things but sometimes it doesn't feel like it will ever outweigh the pain we feel all the time

Jun 16, 2015 8:15 AM

Sorry for the double post

Jun 16, 2015 10:18 AM

My situation is different, I have to work through the pain to take care of my kids and my Aunt who is in and out of the hospital here latley. When I have a day to where I can recuperate I love to take photos and watch TV with the kids, that's ifcmy son doesn't have football or my daughter cheer.

Jun 16, 2015 11:27 AM

I forgot, I also do family tree research, but haven't been able to sit at my computer more than 30 minutes lately. So for now it's on a back burner. 🙏🌼

Jun 16, 2015 12:42 PM

We have 4 cats from rescue homes, they can bring some laughter, even if for a slight moment, but that little moment has become very precious

Jun 17, 2015 11:00 AM

Wow, thanks to all of you for sharing. I am glad to see that there are so many things we can still enjoy.

I forgot to mention that I also enjoy watching TV shows. Let's NOT get started on the season finale of Game of Thrones ;-)

Jun 17, 2015 11:00 AM

I might have to look into getting a pet

Jun 17, 2015 10:35 PM

Apprenticelife, I use to have cats too, until I developed asthma and allergies. One of my favorites was a black and white we named Elsie, because she looked like a dairy cow. On day she got up on the arm of the sofa and sat watching all the fish swimming in our fishtank. Suddenly she jumped up and twisting her body acrobatically in the air, she pawed at the fish as if trying to catch them! That's what I miss most about cats, spontaneous actions that usually cause laughter. 🙏🌼

Jun 17, 2015 11:09 PM

We have two cats of our own, sisters, one of which is a neurotic longer haired Siamese named Sasha. She constantly talks all of the time lol. Her sister, Panda, is quiet until you turn off the lights to sleep. Then suddenly she's all "who turned off all the lights?" I love them dearly.

We had a dog, a red Min Pin. His name was Gambit, and he was my baby boy. I loved him so very much. He was about 7 when we rescued him. I really needed him. He had a lot of medical issues. I felt so bad for him sometimes. But he just was such a character, so feisty, so loving, so adorable. The staff at our local vets knew us well. His awesome vet was a miracle worker. Gammy had so many issues but very few diagnoses (like me!), and his vet always made time to see us. (He had diabetes that required insulin in the morning and night if he ate. He had to take Pepcid for nausea and acid because his kidneys weren't working properly. A special diet I made homemade. He had COPD, and required what I called his "puff", a modified inhaler. He took meds for his kidneys. He was also on prednisone and an assortment of other meds) I think his medical issues distracted me from mine. His needs made me focus less on my problems. I think he was the best gift I've ever been given, and when I had to finally let him go, I prayed that God would take some of my life and give it to him, or take me with him, cuz I couldn't bear the thought of losing him. It's been a couple years now, but I still find it really difficult to think about him without crying. I miss him so much.

Even knowing all that, I wouldn't give that up for the world. If I had the money, we'd be adopting another older Min Pin right now. Having his bright brown eyes mischievously looking at you while his little tail wags sooo hard - I cherish those memories. Animals are incredible. They can make even a terrible day brighter just by being.

Jun 18, 2015 12:06 AM

I love my kitty! She's 5 now...

If I had it my way, there'd be a farm of animals from horses to maybe a goat, a burro, ... I miss horses...

When I get work, I'll get another cat... And one day--a dog.

Jun 18, 2015 12:33 AM

Please think of my kitty. She hasa growth on her head (it's small--we are going to get it removed and biopsies), and she has a cough (I'm pretty sure they're unrelated)... :(

Jun 18, 2015 10:05 AM

Bless her heart StarryNight. Ill say a prayer for her & you! 🙏🌼

Jun 23, 2015 1:33 PM

I enjoy walks in the parc (without a dog). I sit down on a bench and listen to the birds. Sometimes I read a book. Feeling the sun on my skin is just great.

Jun 25, 2015 1:24 PM

I listen to music

Jun 25, 2015 5:36 PM

*Amie*
- I have two Min-Pins that are, besides my kids, my heart and joy.
My black & tan male is getting up in his years but for 12 is doing pretty good with no major health issues. He is the most loyal pet or person I have ever known. I cannot bear to think of what life without him will be.
Then there is the baby girl. She is chocolate & tan, 4 years old and spoiled rotten.

Jul 06, 2015 2:55 PM

StarryNight how is your kitty doing?

Jul 06, 2015 6:14 PM

I spend time with my adult sons as much as I can...

Jul 06, 2015 8:16 PM

I have a chiuahah terrier mix and just recnetly got a foster who looks almost like his twin. They give me a reason to get up and get moving! I also like to cook!

Jul 07, 2015 3:07 PM

We have a dog who i enjoy, I crochet and sew, watch tv, read books and enjoy family events where see great grandchildren. I just try to not overdo and sit when i need to. I do garden and adapt how i can do it and not cause pain. I may look weird, but hey i get veggies and flowers.

Jul 07, 2015 3:15 PM

Hi Fred82...I have a chihuahua too! He is what makes me smile...besides my family. He knows when I don't feel we'll and curls up next to me. I work full time as a nurse despite my pain...it gets my mind off my problems and I enjoy helping others. I read...alot and I have to admit I am a sucker for reality tv...hope your day is going well.

Jul 27, 2015 5:59 AM

We have 2 dogs...my snuggle buddy is my 11 yr old mini dachshund and we got a rescue dog 2 yrs ago...lab mix who is 5. Animals are second only to children in bringing joy to my life...except for my loving hubby of 9 yrs. He's so understanding and helpful.

Jul 27, 2015 6:23 AM

I have a great Dane that is going to be 10 in November which means we probably won't have her too many more years. Of course, I've had my husband for 22 years and I think I'll have him for quite a while longer. He is such an understanding person, I don't know what I would do without him. And on my bad days I'm not very nice to him, but he still stands by me. Now that's love.

Jul 27, 2015 7:48 AM

I really want a pet like most of you all have. But my wife has selective allergies to things she doesn't like. She can be around them and it has no affect on her but she doesn't like pets in the house. I wish she would just come out and say that. She has a lot of things like that. It is a little amusing until it is something that you really want. But I recently came up with a solution. I was thinking of putting a fish next to my bed. Something that may give me some live interaction. I would really love to have some live interaction. She is on the computer most of the day and with the things that I am going through, I think it would be comforting to give my attention to something else and giving it comfort and attention and letting it sense when I need comfort too. I have had pets like that before marriage and before pain. It would be awesome moreso now. But for now, I don't know what I would do without my tablet. It keeps me entertained all day long. I read books. I search all day long, watch shows. Right now I am taking pictures with it and manipulating them into art, vintage, comic book, or pencil draws through editing. That is fun. And it has been baby steps into getting me out of the house. Best wishes to you all. Hope you all feel as best as you can today.

Jul 27, 2015 7:52 AM

Hope you feel as good as you can, maybe even a little better with a small walk.

Jul 27, 2015 9:03 AM

I read books and one great one is 1000 gifts by Ann voskamp. She was challenged to keep a list of the things she was thankful for and it changed her life. I started a journal like That. Keeping track of the littlest things like a beautiful flower or the sun on your skin can change your outlook.

Jul 27, 2015 9:46 PM

Profiler, fish can interact with you. Though they can't break or media at you, they follow your moved, especially if you talk to them. We've had various fish over the years. They're also very relaxing to watch! 🐠 Go for it!!! 🙏🌼

Jul 27, 2015 11:05 PM

I make quilts. I've loved fabrics my whole life. Just being around my stash makes me feel good. When I can't handle sitting at the sewing machine I sew by hand while reclining. I go an quilting retreats when I can and I have a standing "date" with a friend to hang out one Saturday per month. We decide what to do depending on how I feel. I read a lot. I have two cats that keep me entertained and they seem to know when I'm feeling badly and offer comfort in their own way.

Aug 04, 2015 10:22 PM

I used to breed Chihuahuas when I was able to be more active. I'm recently separated and unfortunately I have to rehome 3 of my Chihuahuas. I still have my 9 yr old, 4 pound Chihuahua named Tiny. He is my best companion!!!

Aug 05, 2015 12:43 AM

I'm just getting back to art which I love love love. I also have begun singing because I can do it without much pain, and it still holds musicality. I'm hoping to eventually be able to pick up my accordion and walk around town with it like I use to.

Sep 04, 2015 12:13 AM

I have Chihuahuas n they are my kids I love them. I also make simple bracelets to pass time n keep me busy. So days though my shoulders hurt so bad I can't even move to do that. Fibro truly controls your life!!

Sep 04, 2015 6:38 AM

I live with my parents; because I had to quit working due to a car accident that was caused by my syncope (fainting). The was my job, I was in medical transportation, picking up clients and taking them to medical facilities or home; I truly loved my job. Neurologist and cardiologist couldn't find anything wrong with me, but doctor didn't want me working. Then all hell broke loose and it has been one thing after another. During all of this, I have been trying to get my social security; 5 years and I am starting a new claim.
Anyway, my parents got a Shih Tzu, he is like a baby. My parents treat him like one and he is spoiled rotten...lol I wouldn't want it any other way. If he is gone to the Groomer's I miss that little brat. He brings a lot of joy, smiles, and laughs to my life.
Good luck everyone! I know each day is a challenge and we have to deal with it as best we can.

Sep 04, 2015 11:02 PM

I really liked this. For me we had a dog but she went to doggie heaven last week. But to keep my self going I listen to old time gospel music and sing as loud as I can get by with, I also started a blog, and last I started paint by numbers. Doing the paint by numbers and being almost blind keeps your mind off of everything.

Sep 05, 2015 2:11 AM

I know it is not a manly thing to do. Bit I crocheted a blanket for my son and I want to do one for my daughter. I am not the greatest at it but the blanket came out real nice. People love it and they love the colors I chose. I did it so the kids would always have something to remember me by. Something they can put against them and snuggle up against and remember me. I felt that way about my mom's even though I wasn't fond of her. So I thought I could do this for them. After I do this for my daughter, I have no desire to do it anymore. I want to do that and make them a little book about how I felt about being their father from infancy on and the moments that I cherished. I want them to know it was the greatest job I ever had and they are my greatest success.

Sep 05, 2015 8:24 AM

Profiler, you are, indeed, a wonderful man. I read your post and it brought tears to my eyes. They are streaming down my face and I am thinking what a beautiful heart and spirit you have. There is nothing that is not manly about you. What a gift to your children to have a Father who loves them so dearly. They are very lucky indeed. I am sure your son and daughter will treasure those blankets and books forever and will keep them close at had and close in their hearts. You're a truly wonderful person, Profiler and I, for one, am very happy and proud to know you and call you friend.💕🙏🏻🌻

Sep 05, 2015 9:09 AM

Thank you Alwayz. That makes me feel special. I normally don't feel good about myself or as a good pAren't but today you have made me feel like both. Thand you. It is a good feeling to have every now and then.

Sep 05, 2015 9:42 AM

Profiler - shame on you for making me cry!! Don't ever feel wrong for feeling the way you do about your kids or crocheting for that matter.. your words are beautiful and touches the heart ..to me thats more manly than the things most men do. The world just decided to stereo type our roles and thier wrong.. we need to do whats in our hearts.. what makes us happy regardless of sex!

My mom taught me how to sew and crochet when I was young and it was the best gift ever .. out of 7 I was the only one who latched on to it. I wanted a girl so bad because I wanted to give her that gift to but it wasn't in the cards for me. I have 3 amazing boys and twin step daughters. I tried to teach them but thier mom hated anthing i tried to do for or with them so they gave up on it.

When my mom died 5 years ago i was so angry that her gifts in that regard will end with me.

Sep 05, 2015 10:25 AM

So of course I got distracted by what I do to enjoy life dispite the pain while I was posting lol

I had lost my ability to sew and crochet for a long time because the repetitive motions on my hands/wrists for crocheting and my shoulders for sewing caused them to flare and be unusable. I had met someone who made chainmaille and the necklace she showed me was so pretty I wanted to try it and since I spent most of my time in bed it was worth a try... i fell in love. I've been doing it for about 4 years now. I learned all kinds of patterns an made up a few of my own revisions ... it really kept my mind off my pain. Sometimes when my hands or shoulders are acting up I have to take breaks from it but most of the time I can still do it.

Last year I realized I had run out of people to give them to and I have like 1000+ finished pieces (just goes to show you how much in bed time i usually have lol ) I started looking into selling them on etsy .. i haven't finished setting it up because I'm stuck on descriptions lol ... im a programmer. . I understand writing jibber jabber but not discriptions lol

Over the last 3 years I have also bought 3 small dogs and they just really light me up!

Sep 05, 2015 11:10 AM

I crochet to try and relax but most of the time I am unable to do so. Have had a headache for 4 days now. Nothing is helping. Have several things wrong but I get through the best way I can.

Sep 05, 2015 12:12 PM

Linda, that's so cool!!! When you get set up, let me know!! I'd love to buy one 💕

Sep 05, 2015 1:18 PM

Hi, I have had full body Pain for may years and I have found the best cure for pain is fun. Find things you enjoy and figure out how to do it. I love all types of crafts and have found ways to do them even with my limits. We also have pets which help just about everything. Plants help too. I recently started a Red Hat group for disabled women and that keeps me around people. So no matter what fun is for you try and do it everyday, it may take longer for you to do it or you may have days you can't but everyone needs something to look forward to and around reason to fight 😆

Linda if I can help let me know I've been on etsy for over a year sadly my store closes off and on but I'd be thrilled to help if I can. Don't let descriptions stop you from listing pictures Andre more important. What is your store name? Also be sure to link your listing to Facebook.

Sep 05, 2015 1:37 PM

Im sorry to hear about the long headace dancing heart. . I have had many of those types that lasted for weeks wen I first got sick. Can you get anything from your doc? If you don't mind me asking what have you tried?

I used to walk around work with sun glasses on and had to have the lights over my cube disconnected then i would come home and lay in my dark bedroom with a cold wash cloth over my head and eyes. It helped some but migraines are really rough! Your right we can only take things day by day amd gey through the best we can. I hope you find something to ease your headache soon!!!

Sep 05, 2015 1:44 PM

Thank alwayz!! I will definitely let you know when I open it!!

Sep 05, 2015 2:04 PM

Hi SmileMom!! I would love that especially from someone who has experience with etsy..

I spent a lot of time reading thier stuff and what you should and shouldn't do ..so I did a lot of work on getting things together. .. i didnt know you could post them without descriptions and i get frustrated with writing. I started it to help me get through the pain and being in bed all the time...never expected I would like it so much that I would do it during most of my free time .. but then didn't know what to do with all I have so I thought that would be a good option because I can't plan on a permanent option like opening a real store somewhere because of my health.

I named the store chainmaille boutique. . I make my own rings because a lot of chainmaillecan be bulky or made for teens and i like a more feminine side. I did create a facebook but couldn't figure out how to do a business FB so i just made a page.. i got pininterest, twitter and looked into tophatter and i reserved the website name because i would like to open a site store someday if it does well on etsy lol ... as well as logos and all the littles including adorable packaging/boxes i also make myself to send them in. I wish i could share pics with you guys here... something im proud of and always get excited about lol

My email is lindagrafferty@gmail.com if you ever want to chat about it.. would love to get your input!!!

Sep 05, 2015 2:17 PM

Thank you!!! You made my day ... i enjoy talking about the things I love that no one at home gets lol

Sep 05, 2015 2:17 PM

I can say the same to you LOL How normal is that LOL

Sep 05, 2015 2:24 PM

Pretty normal in my world .. my family is wonderful but not very crafty in the way i am and I feel bad making them listen to me about it over n over lol

Sep 05, 2015 2:41 PM

Linda you have mail 😆

Sep 05, 2015 3:32 PM

Hi all ya I try and just keep on keeping on I have fibromyalgia and I have a partially herniated disk in my back which I was told Wednesday has now on top of that has a condition called degenerative bone disease. Some days it's hard than others but doctor told me I am at no more risk of hurting myself than others know my limits. So I responded with a gym membership that includes a pool. So see how that goes it helped before so hopefully again.

Sep 05, 2015 5:22 PM

I love the pool!! Its helped so much with my pain... hope it does for you too south!!!

Sep 06, 2015 8:58 PM

Profiler, I hate the stigma of "not being manly or ladylike." Anyone can do what they enjoy. My father in law sewed quilts. He also taught me to cook. You're a wonderful husband, dad, man & friend! I used to love sewing and cross stitching. And loved making jam, jellies, and other canned goods. My CTS and Arthritis, and cervical pain put a half to them all. And neither of my kids do any of it.🙏🌼

Sep 07, 2015 2:10 AM

Hey South - be gentle on yourself with that gym membership. . The pool is great because its a low impact exercise .. sometimes we dont always know our limits right away because exercise doesn't hurt until after the fact. .. take it slow!

Sep 07, 2015 11:02 AM

Hi all

I have a mixed terrier, Scottie. I went to the shelter looking for a small dog that I could keep in the house. There was a toy dog, but she was fearful and they would not let her be adopt. So as I was into the back all the dogs , most of them too big, started barking and jumping around, except this little white and brown dog. When I walked passed his kennel, he jumped up, stood on hind legs, barked - only once, and tilted his head at me. I fell in love. I took him for a walk and went back in to take my new baby home. As I opened car door he jumped and climber in rear window, which is now he spot except when sticking in house out of window.

Scottie is so attentive and caring. On my bad days he will come snuggled up against me. And though he is a very active dog (kids loves this) he seems to tones it down for me. (I am glad for this because I hate to think he may fell neglected or unloved.) We have quiet games that I haven't seen him play with anyone else. He is amazing and takes my mind to a better place when my body is driving me crazy.

Hope everyone has or can find something that helps them

Sep 07, 2015 11:07 AM

I want a scottie...being on an isolated island they culled all dogs 10 years ago due to Muslim community. I don't blame them, just felt the governing local government was too much in their favour doing this.m

Sep 07, 2015 9:30 PM

Confusedmom, Scottie sounds awesome, like he was meant for you! That's how I feel about my Bear. I call him boogie-bear because he's mostly black and at night we can't see him, and he scares me quietly coming up behind me! Lol

Octobot i hate that for you. I can't say i understand it at all either. Is there some rule about dogs and Muslims? I'll admit i know very little about their lifestyle & beliefs, as we don't have many here. 🙏🌼

Sep 08, 2015 2:06 PM

Taking it gentle with the gym is important. I once over did it and couldn't go to the gym for 4 weeks, then had to start all over again.

Sep 09, 2015 9:40 AM

Muslims can't touch dogs, if they do, they have to wash themselves with dirt 7 times or something. Really no idea. But since this is an island, we are suppose to live harmoniously with each other, we respect their religious belief. Till now I still have no clue what's the dog issue with them.

Sep 09, 2015 10:10 AM

WOW!!! Washing with dirt several times sounds worse than the dog licking your face if you hate that!! I thought you were going to say 7 lashes or something drastic. So very odd to consider one of God's beautiful creatures dirty!!

Sep 09, 2015 8:01 PM

I did not know that, nor would I have guessed it. I guess many cultures really do have major differences. My neice was a wedding guest in India, and the bridesmaids spent all day getting henna painted hands and feet. She told us she couldn't go to the bathroom because she couldn't use her hands for 6-8 hours while they dried (she wouldn't let anyone assist her... Lol!) . The henna lasted nearly 2 months. 🙏🌼

Oct 20, 2015 5:02 AM

Music is my joy, reading plants, dancing when I can, sewing baby quilts, comic shows, fantasy movies, burning candles and incense, playing board games, cards, baking, smiling in a heated pool of course. Hope that helps

Oct 20, 2015 5:03 AM

Swimming in a pool that is

Oct 20, 2015 8:14 AM

I have 2 human children, ages 22 and 3. They bring me joy and pain at times as kids will do that. We have three rescue kitties a pit mix that we rescued about 3 months ago. He must think he is a chihuahua because he tries to climb up in my lap and sleep on top of me. He's very needy as he was abandoned and I cannot even imagine what he went through. I also have my 11 year old furry son Leo. He is a sharpei mix of some sort. He is the bees knees. You won't find more loyalty and pure unconditional love than from a furry child. I can't bear to call them "animals" anyhow my family is what keeps me going. When you have no choice but to get up and care for your kids, you just do what you have to do. I also love the change in seasons as it has cooled down my back pain is getting worse but sitting on the patio early in the morning with a cuppa and listening to the birds sing is very soothing to me. ✌️💜

Oct 20, 2015 9:11 AM

The cupola and the sunny patio and singing birds sounds good to me. I tend to have worse pain during the season change along with depression when all the leaves are gone and everything looks like it's all dim and dead. My favorite seasons are Spring and Fall as I love the rebirth of all of the flowers and trees and the Fall for the gorgeous colors, crisp but not cold air and just the feel good feeling of seeing natures beauty in the changing foliage. (Besides this is the best horseback riding weather). I had 2 horses but at this time in my life, I wouldn't be able to take care of them like I did years ago. Now, just being around them if I can, it brings me to a place of peace like nothing else in the world.💕😊

Oct 20, 2015 9:23 AM

Those are my favorite seasons as well for the same reason you stated. Spring is my very favorite. Regrowth, beauty, I always feel happiest during the spring. Fall I love for the beautiful colors and the relief from the heat. Winter is my least favorite and my depression gets worse as well. Everything is bear and trees look dead, my bones ache. Summer is just too darn hot for my liking. I don't deal well with being too hot. I think I have over active sweat glands and once it hits 85 or higher I'm just a mess and feel so lethargic. I love all animals, I rode horses when I was a child but now I couldn't either. That was one of the rules i was given after neck surgery. No horseback riding. It's not the actual riding, it's the falling off I guess? I love the smell of horse breath haha kind of like puppy breath. I'm weird I guess :) ✌️💜😜

Oct 20, 2015 9:32 AM

OMG!!! I love the smell of horse breath as well!!! I love their smell altogether. Folks think they stink but it's the stables where they are kept and if not cleaned every day and cleaned well, it does smell. It's a smell I've never minded and always loved (leather and horses. It's like intoxicating to me). I always threw my arms around my horses neck and hugged her and would breathe in her smell. She would also put her forehead against mine and close her eyes and then I would lift her head and give her a big old kiss on those lips of hers!! I always talked to her when grooming (for me, a "quick" grooming job or giving her the once over took me 3 hours). She was almost all white and was never dirty and you had to wear sunglasses to look at her standing out in the sun. I guess you're right, the Doctor is probably more worried about what would happen if you fell off. (Long way down and that landing isn't ever soft). I know I could still swing a leg over if I wanted to and one day I will have another horse and will do just that. For now, going to be with my best friend on her farm is going to have to do. It's like having my own horses again because I can do what I want with them. We groom together (I last maybe 10 minutes) but it's better than nothing at all. Horses... Really a part of my soul. (Can ya tell?)😊😍

Ready to start relieving your pain?

Join Community