Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Epidural Steroid Injections

Aug 22, 2015 5:19 AM

What are your stories? I just received my first one yesterday, and it was not pleasant at all- my sedation didn't kick in until an hour after the procedure, the lidocaine didn't actually numb me (but I have EDS and we're known for not responding to local anaesthetic), and I felt everything. I went into shock. My pulse rate jumped to 210 and my blood pressure dropped to 50/30. I woke up in my recovery room a few minutes later next to a fan, wet cloth on the back of my neck, nurse repeatedly checking my blood pressure, and my pain management doctor standing in the doorway asking where the color in my face went.
Percocet killed a good portion of the pain for the rest of the day, but all I could think when I woke up this morning was, "HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA OW."

What are your experiences with LESIs? What did you get it for? Did they ultimately help your pain? How long did your relief last? Do you plan on getting another one?

Aug 22, 2015 6:19 AM

I had one. One is all I will ever have. I wouldn't wish that kind of pain on my worst enemy. I had mine for sciatica. It hurt so bad I cried. I had absolutely no relief.

Now my other half gets them and loves them. They work from 3 months to two years for him.

Aug 22, 2015 7:42 AM

I've had 2. The first one I ever had done was in the front of my hips. The go in through the pelvic area. They honestly made it sound like no big deal. That i would be a little sore. I was not prepared for what was to come at all. The procedure its self was not unbareable but on my way out I almost passed out. They should have never let me leave like that nor should they have let me drive.

When the local wore off I was in horrible pain .. my percocet didn't even dent that pain and it got so bad I couldn't walk for almost 4 days and I cried and screamed through most of those days. I had to have my 17 yr old son (at the time) drag me to the bathroom. I will never do those kind again. I had to take an unexpected week off of work and after all that it didn't help one bit. Like ScaryAnn said I wouldn't wish that kind of pain on my worst enemy.

When I started to see a pain management specialist he suggested I try it again but in my SI joints. He believed that was what was causing my hip pain. I really didn't want to do it but when you suffer the way we do you'll try almost anything.

I finally broke down and did it. It wasn't quite as bad but I think it was because I was more prepared for the hell I knew I was going to go through. I took a prepared week off of work. Had my husband drive me and prepared for someone to be here to help me. The pain was still horrible but because it was in a different location I could at least get to the bathroom on my own (by this time we bought a new house and I have a bath in my room now not on the other side of the house which really helped)

By the end of the 2nd day I couldn't take the pain anymore and went to the ER. They calmed my pain down and the percocets helped a lot more after that. Those SI injections helped a lot and its been about 2 years since I had them done. My hip pain would have to be really bad before I would do them again but knowing what to expect, being as prepared as I could have been and the ER visit to knock the pain down a few notches helped me get through it.

I have a friend who gets them done regularly and she never goes through what I do.

They would definitely be an absolute last resort for me but the inside hips I would never ever put myself through that again!

Aug 22, 2015 8:09 AM

I have had several ranging from my cervical spine and down my thoracic spine. The first one I was in agony, no sedation and I broke a sweat so bad I was drenched and almost passed out. The next ones were done in the procedure room. The "sedation" they used was strong enough to knock me out and when I woke up I was numb where the needle was used and by later that day, the pain was back to the same level it always had been. I tried it a few times and they never worked for me. Now what they want to do is go in and burn off the nerve endings in the hopes that it will bring the pain levels down and take time for the nerves to regenerate therefore giving me some long lasting relief. I've gotten good and bad feedback. I don't know what to do because the other stuff made me feel worse for a couple of days and then the pain was the same. I don't know if I want to go through that if I don't know if it's going to help me. I wish all the best for you.

Aug 22, 2015 11:23 AM

Alwayz, my other half goes in Monday morning to have the first faze of the procedure done that you are describing he's having it done in his neck. I have to drive him home that day. I'm extremely nervous because I haven't driven in years. And the procedure in the neck is even more dangerous than the back.

Aug 22, 2015 6:28 PM

I've had 3 in my lower back, 3 facets too. Painful as hell but it kinda fixed the pain for a little while. It really depends I guess. I keep reminding myself it might be better than what I'm actually feeling right now which is a 8-9! Almost crying in bed right now....sigh..

Aug 22, 2015 9:27 PM

Flimsywrists, Scaryann & Octobot, you're in my prayers. I had my first ESI in the L5-S1, without sedation, by an orthopedic surgeon. I almost passed out from holding my breath. I said I'd never do it again unless I was sedated. I was sent to a pain specialist in 2011 and in all I've had 2 series of 3 injections at the C6-7, T11-12, L4-5-S1, and 2 facet injx...(20) All sedated. The time i got the facets done they didn't wait until the sedative knocked me out so I was crying as I went to sleep... And I make him wait now (he knows I'm out when I'm no longer talking 95 mph...I do that when nervous!). My last injx series ended January 2012, and I'm just getting where I need the neck and SI again. The facets hurt worse after for a week while the non-facet injx hurt only 2-3 days after. 🙏🌼

Aug 22, 2015 10:10 PM

Only had facets done, never ESI. I must say that I was not expecting the amount of relief that I got(still holding after a month already), but I don't EVER want to do that again. Holy hell, that hurt. Received 1 amp of fentanyl for each side but it wasn't really enough. I was still awake enough to hear all conversations. Getting the SI done in 2 weeks. So not looking forward to that at all, but I'm not scared as I know what to expect this next time.

Aug 22, 2015 10:17 PM

Amanda, let the doc know you could hear, and if you felt anything. I told mine and he increased the me. 🙏🌼

Aug 22, 2015 10:19 PM

Oh yeah, I just talked to one of the nurses yesterday and I let her know. I actually also let her know that they needed to give me a IV push of phenergan with the narcotics cause I was sick for about 48 hours after. Apparently, anesthesia forgot last time.

Aug 23, 2015 1:24 AM

I have had two esi.

The first one was for pain in my knee. The actual injection wasn't so bad, BUT i hate needles. However about three hours over the injection I was in severe pain. I could barely walk. Instead of easing pain it intensified for a week. After the first week I didn't feel any better. That was in April.

Two weeks ago I went to see my new pain management doctor for pain in my lower back. MRI IMPRESSION shows: 1. Minimal ligamentum flavum
2. Minimal reverse grade 1 spondylolisthesis, L4 on L5. My x-rays shows aslight transverse lucency seen through the left L1 transverse process.
After examination he commented on my painful, "popping" hips and said he was going to give me an esi. I started to object because of how the first time turned out. But I was hopeful and needed some relief from the pain. Upon leaving he said he would give me another shot my next visit. Also, im to started PT for my back , if unsuccessful, he would recommend esi for my back. This injection seemed more painful . Again that evening i was in more pain than before the shot; but this time all my problem areas seemed to be affected (hips, knees, hands, etc).

I am very doubtful about going through this again. Neither shots have provided my any relief. Pray things get better for you.

Aug 23, 2015 9:12 AM

Confusedmom, Did they tell you to move your knee and ice it? No one ever told me to flex and bend it until the last 2, and it helped much more to prevent pain and stiffness. I also ordered 24-48 hr on and off. I hope you do well with the next ESI. 🙏🌼

Aug 23, 2015 9:14 AM

I was told by my pain doc that the injections would be ineffective for anything below the hips. Also, for my Tarlov cysts they could even do more damage by making them grow or worse,by the doc hitting one and inserting the meds directly into the spinal fluid. They are not FTD appoved for use in or around the spine.

Aug 23, 2015 10:17 AM

FlappysLady81 yes, but it was ineffective for me.

Zetarlov: i have been reading their are not fda approve for that use which concerns me. I understand everyone is different but i here more bad than good when it comes to esi for back. As a matter of fact when i was waiting to see pain management dr i later was in because she was having complications from spinal esi.

Aug 23, 2015 11:16 AM

Well let's all think positive for the next one! 🙏🌼

Ready to start relieving your pain?

Join Community