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Jan 28, 2016 3:13 AM

Hi there gang. Anyone in the UK been successful with claiming ESA for fibromyalgia?

Jan 28, 2016 11:04 AM

They just took me off it claimed I can work. Now trying to appeal it. I have fibromyalgia, chronic fatigue, aloydynia etc. I have not worked in 10 years and did not start claiming till late last year. I worked for 20+ years and this is how they treat us. They completely ignored all the letters from 2 hospitals and my doctor. Oh apparently I can left an empty cardboard box at one time I lifted heavy filled cardboard boxes.

Jan 28, 2016 11:33 AM

Hi, I am currently awaiting for the 8th February to come around as I have had to appeal my pip decisions because not one of them lot took any notice of all my drs letters, MRI scans, rhymatoligist report, nothing and it took me 5 phone calls to tell them I needed a home visit plus letters from my gp also telling the dumb twats that I couldn't travel as far as they wanted me to go for my assessment. On the 5th letter those idiots sent me with yet another appointment that wasn't a home visit I called them again and told them what they had done and said I want their complaints procedure or I'm going to my MP and the national press and what do u know, the very next day my post arrived and their complaints procedure aswel as a HOME VISIT (WHOOHOO) was on my door matt. My home assessment was in August last year and the stupid woman wrote an assessment that didn't have anything in it that referred to me, it was like she'd assessed a completely different person or probably just made it all up (the dwp have probably got printed out copy and pasted forms that all say the same thing for everyone) so my dispute got rejected even though I was actually stuck in bed in agony when she arrived and my husband did near enough all of the talking. I suffer from Degenerative disc disease, fibromyalgia aswel as I have a fused right foot and severe depression due to constantly being in pain. I never claimed esa as I have a daughter who has special needs so I'm on income support. Your best bet is to get the citizens advice to help you as I have with mine all the way and they are very good and don't judge.

Jan 28, 2016 12:08 PM

Thanks guys. I'm dreading my pip now!!! I have just sent my forms in. It would seem most people get turned down for it. Unless you have 3 legs and 2 heads, how could you possibly be disabled??!! If I get turned down, I will definitely go to my MP. I wasn't sure if I would get ESA so just gathering evidence. I used to work 40 hrs a week and had to keep reducing them. Now I only work 10hrs per week and can't even manage that. I have been off sick for 3 weeks & fear I will soon lose my job altogether!!

Jan 28, 2016 3:34 PM

Sorry hun,it will more than likely end up going to court to appeal stage but there is some hope as I have read a few statistics where 85% of people actually win their hearing which is good but I found out the other day from my cit advice lady that the Gp they've there is actually paid by the DWP so I am really dreading it now as they probably paid him off to say what ever the hell they need him to say. My depression has become alot worse through all the crap they put you through, no wonder all these people are dying, it's a damm right joke it really is n I absolutely hate them with a passion for what they have put me through

Jan 28, 2016 4:38 PM

I had no problems with getting ESA or PIP, I'm sorry, I don't have Fibromyalgia, so can't comment on it in that respect but for me they were great. I'm quadriplegic, so it's what they would class as "Visible", Why should that even matter whether a disability is visible or invisible, the proof is in the paperwork which half the time I think they don't even look at or phone doctors ,consultants etc....my closet friend suffers with Fibro and has had to fight all the way, she got it overturned at tribunal, I hope things go well for you all. x

Jan 28, 2016 5:23 PM

BBM, I had no problem with my application last February. I moved over from DLA to PIP, and had my military husband help fill the form out. He was really good with the language used.

The assessor I saw was really nice. She wasn't great at typing, and her spelling was appalling, but she totally supported and corroborated my application. She said my form was excellently filled in - the best she'd seen - and she was sure I'd have no problem gaining enhanced level on both the mobility and care components. She was right. What I learned from that, is the most important aspect is the quality of the information on the form. The assessment is just to judge movement.

Good luck. 👍

Feb 06, 2016 7:38 PM

PIP forms need to be completed explaining your worst days otherwise don't bother be factual not wishewshyay I can't period do not put well sometimes I can no no no
U need care not prompting also

You can't do it not I try but fail

Get it

Feb 07, 2016 6:44 AM

I feel for you. I haven't claimed ESA but I went through the pip process twice. First time I was awarded 0 points and couldn't continue to tribunal as I was very unwell and in hospital. Second time I called in help from an advocate. He was excellent. He filled in the form while I spoke and knew the wording that was necessary. He made it impossible for them to offer anything other than a home assessment and recorded it so the assessor couldn't lie in the forms (like the previous one had done).
I was awarded high mobility and standard care until 2020! Very surprised especially after my first experience.
My son claimed ESA last summer after finishing college. I used the same advocate for him and he didn't even have an assessment. He was awarded after the standard period with no fuss. He has been on DLA since very young and has an indefinite award so I suspect that had a lot to do with it.
Find yourself a good advocate who knows how to fill in the forms in the language the DWP expects. Expect a battle. If it doesn't end with a battle then that's fantastic.

I do have fibromyalgia as well as asthma, severe allergies and Bronchiectasis. Apart from the crutches I use, my illnesses are invisible although my lung condition causes me to cough a lot. You must consider how much of your time you feel good or bad. Percentages are important. If you feel normal or good over 50% of the time, you won't receive a penny. If you spend over 50% of your time in bed due to pain/fatigue, or 4 or more days not getting dressed due to your condition then the assessors start to be given a picture of your life. By breaking down your days and weeks into sections, you'll also see for yourself just how much time you are not able to do. Be honest though. If you are caught in a lie, you can be in trouble for fraud.

Feb 07, 2016 6:55 AM

I have fibro, I had no problems with my PIP claim. Had my ESA assessment as my employer ended my contract on medical capability (been there 15years). Just waiting for DWP to assess my claim.

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