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Even my fingertips!

Oct 11, 2015 6:11 AM

This may sound completely rediculous, but there are times that I can't stand the burning and sensitivity in even my fingertips! Crazy, right? Honestly it feels like the tips of my fingers are touching a hot burner like when I text or type! I also notice that when I have that type of pain there, the tips of my toes and my heels are extra sensitive too. Anyone else?? Does the madness never end?? Ugh!

Oct 11, 2015 7:12 AM

It's not crazy at all Hun 😏. Do u have diabetes? It sounds like it might be peripheral neuropathy. My grandma has it, and my stepfather has it - altho my stepdad has it from going thru chemotherapy. My hands and fingers flare badly if I spend too much time playing PS3 games (from holding the controller).

Oct 11, 2015 7:23 AM

I don't think I do but it does run heavy in my family. My rheumatologist has taken me off of lefludimine and having me drink some nasty powder mix to get it out of my system. And he's doing an MRI nthis week to see if it's coming from my cervical spinal stenosis and bulging disks. Not from RA because my inflamation is down. If it's none of these, then it's from fibromyalgia , maybe?. Pain and numbness in my hands, feet legs and arms is making me nuts! Can't sleep! If i medicate like they want me too, I'll sleep all day, but then I'll get nothing done at home. I just recently started noticing the fingertips and thought this was pretty extreme. Idk. It frustrates me.

Oct 11, 2015 8:10 AM

I hear you. It could be Fibro, but I would confirm with one of the others here who has it, since as far as I know I don't.

Sometimes it feels as though there is no middle ground; you either suffer with the pain and problems, or you suffer with the side effects of the medications. We never get to 'win'.

Oct 11, 2015 11:35 AM

Sleepingbeauty, I was having the same symptoms in my toes and fingers, daily, until I was diagnosed with Sjogrens and started on Plaquenil. I still randomly get the burning, tingling, &/or stinging, and its usually after too long on a tablet or computer. I hope you can find the cause and get relief soon. Hugs & a prayer for you! 🙏🌼

Oct 11, 2015 12:18 PM

I have a similar pain, nerve problems and CRPS/RSD. If I type for more than a minute or so, I start burning, and can't use pencils (which sounds silly, but as a visual artist sucks). I have very little use of my dominant hand, although it is getting better, my meds work more over time.
I'd try Gallium on it. There's a cream version, or just a liquid that tastes metallic in water.
I hope you can get relief for fiber pain soon, knowing how hard it can be to do anything when your hands hurt.

Oct 11, 2015 1:51 PM

Sleeping beauty The only nerve pain I have is burning on the soles of my feet. Mine is caused from my Syrinx and Syringomyelia, as well as Fibro. It is so lovely. I also have numbness and sometimes tingling in my fingers. I have OA in my pelvic girdle, in the 80's I fractured my tail bone. Today my Spine from CS to LS is really giving me a fit.

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