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Everyone is a doctor now...

Nov 28, 2016 2:54 PM

Since I've been diagnosed with Fibromyalgia its amazing how many people seem to be experts on the very subject! I avoid telling people about my diagnosis because of this exact reason but at some points it becomes unavoidable. As I said in a previous post my hip and leg pain has affected my walking. So I get asked alot of quesions... I'm hearing ALL the theories now. Such as how I must not be eating right or not exercising enough. I've also been told that Fibromyalgia is something doctors make up when they dont know whats wrong. Because of the pain in my hip joints I resorted to a cane to get around, particularly when i will be doing alot of walking. Ive had someone close to me laugh and say "you don't need that!"...Another person told me that I'm just having a reaction to mold... You name it, I'm hearing it! I am so frustrated and feel like Im about to lose it!! Anyone else experience this? Tips on how to handle!!!?

Nov 28, 2016 3:16 PM

I think we can all relate. Having lived with Fibro most of my life... I finally decided to just smile, say thank you for their advice and let them know you will mention it to.your doctor.. Then walk away. Trying to educate these "docs" is a waste of time and often leads to more stress. Who needs that.
(((( gentle hugs ))))

Nov 28, 2016 3:25 PM

Yes, I have experienced this before. And I am sure I will again. Tell them that until they have walked in you shoes and KNOW firsthand what that pain is like, they can fuck off!!!!! I know that it may sound harsh.. try not to let others ignorance upset you. Wish I could go with you and bash some heads for you!! Hang in there! {{{Hugs}}}💕🤗

Nov 28, 2016 3:43 PM

Well said! I'm tired of all the suggestions as well ... I'm willing to research for myself and decide what helps me ... I think all these helpers make me want to be more isolated .. that why it works here.

Nov 28, 2016 3:59 PM

Lol...You guys are right. I shouldnt let it get to me and I suppose it would be a waste of time to try to educate them cuz they don't seem to care to accurately educate themselves. I guess maybe I'm in an "overly sensitive" stage. Its just frustrating because before i do anything, whether its having alcohol, eating something, going to a party, I always think hows it going to affect my health. These are the decisions I live with everyday. Their world happens to collide with my reality for a second and they think they know it all. Dont get me wrong, Some have been very helpful and tactful in their advice by saying things such as "I heard this helps fibromyalgia, i don't know much about it but maybe u could ask your doctor if it will help."... That approach I can respect because they show they care without trying to play doctor. Im not trying to sound bitter because I truly have alot of good people in my life but I wish some people would see that uninvited advice is more harmful than helpful.

Nov 28, 2016 4:04 PM

Foggurl i totally agree with you. Ive been actively doing research and making my health decisions according to whats best for me. I want to start wearing a sign that says "Unsolicited advice? No thanks, Im good." lol

Nov 28, 2016 6:36 PM

There are a few things that might help with those you think might be open to it. Am not at home so don't have the links but Google the spoon theory. Also Google Letter to Normals.

If you can't find them.let me know.. I will be home in a few hours.

Nov 28, 2016 7:43 PM

This letter made me cry. Its like someone got inside my head and wrote it for me. Thanks for suggesting it.

Nov 28, 2016 9:04 PM

(((( gentle hugs ))))

Nov 28, 2016 10:05 PM

I can totally relate. I spent my thanksgiving being lectured on when to sit down, how to lose weight, what to eat, what to do, etc. It really bugged me. I almost congratulated them on graduating from WebMD University!

Nov 28, 2016 10:24 PM

Sorry you had to endure that Little. Thats what I like to call: "being loved to DEATH" ❤💀

Nov 28, 2016 10:27 PM

I don't have fibromialga but I do have trigeminal neuralgia, anxiety and depression and I think maybe even CFS (doctor won't even look at that and just says it's all linked to the TN) and I'm waiting to see if mental health to see if they're going to dx PTSD.
I get a lot of people trying to give me advice when I tell them....because I wear a lidocaine plaster on my cheek (as you can see on the picture) when the pain is bad I get a lot of questions and advice that helped them when they sprained their ankle or something similar!!! plus my anxiety is soo bad that I've permanently got the shakes as well so I also get a lot of "you had a good drinking session last night?" And when I say it's caused by my anxiety they tell me that I need to push thro it, it's not that bad, it's all in the past so I should have moved on by now and stop letting things to get on top of me.
I now don't even bother trying explain it any more, they don't want to understand!
I've found my son's dad who's not long been diagnosed with fibro, is always asking me for advice on pain relief as I've been on similar pain meds and I've picked up a lot of tips from here which I've passed on to him as well saying that they're only suggestions which might or might not help.
To be honest I'm not really sure why he keeps asking me as I'm no expert, I don't know much and I'm struggling a lot....but I can only offer what's been suggested on here

Sending you { { { BIG GENTLE HEALING LOVING HUGS } } } XX

Nov 28, 2016 10:35 PM

Sezzy,
You poor thing❤ its the worst feeling in the world to be judged when you are already going through so much. I never want undermine anyways pain but sometimes people make you wanna say..... Ummm not the same thing! My friend has TN too and she gets falsely accused of being drunk often because the pain causes her to slur her words. Keep your head up hon! Thankful to you for sharing your experience!
👐Sending Gentle Hugs right back at ya

Nov 29, 2016 1:39 PM

Welcome to the world of "PAIN" 🤗
welcome to my word lmao!🐫

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