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Excruciating Pain

Dec 22, 2015 4:30 AM

I suffered terribly last night that I wonder why I am in this life as all I seem to do is suffer. My pain was a horrible 10/10 and had to finally take morphine even though my current GP wants me to avoid it but I was in so much pain. Feel so low and unhappy right now. 😒

Dec 22, 2015 4:56 AM

I'm with u calia last night and currently is awful mind numbing pain. Feels like I've been hit by everything. It feels like my organs hurt

Dec 22, 2015 5:08 AM

It's horrible and I wonder what I've done to deserve it. 😞😒 I couldn't get dressed by myself for work this morning- forced myself to go in. My fiancé helped me dress and drove me to work and will pick me up later.
I really hope tonight I can get sleep and not be in so much pain.
Hope we both get a respite Newfibrogirl. 🌻

Dec 22, 2015 5:22 AM

I comend u calia for even going to work at all. I've been out of work for a year. I could not even imagine going to work right now with my muscle spasms and weakness. I was a pasrty chef so I became a danger to others and myself as well as an HR nightmare. I pray you have some relief while u are at work and get a wonderful night sleep.

Dec 22, 2015 5:30 AM

I still ache but I think the morphine took the edge off last night. We are all at different stages of this illness as I gather this is a progressive illness.
I have taken Tramadol & Gabapentin this morning too. Luckily I have a mainly sit down job so makes it a little easier. I can't do the full extent of my duties but my boss understands but will be sent to a work medical shortly.
I hope we both get the sleep we need.

Dec 22, 2015 5:35 AM

If I may ask. How long have u been receiving treatment. I ask because I'm new to actual diagnosis. I'm only on lyrica and tromadol I e only had one visit with a rheumatologist and my follow up is not til March. My pain is getting worse and I feel maybe I should have more pain relief prescribe for the rough points.

Dec 22, 2015 6:04 AM

I only got diagnosed in November 2015. My symptoms started a few years back but became more extreme in January 2015. I had to fight to have a new GP as my old one just didn't understand and just gave me painkillers. My new GP was the one who diagnosed me. I'm awaiting my appointment with the Fibromyalgia team in my area which I was referred to by my GP.

Dec 22, 2015 6:20 AM

When were you diagnosed?

Dec 22, 2015 9:12 AM

I was diagnosis in October. But I've been having pains for at least a year

Dec 22, 2015 10:15 AM

Hope we both get treatment to help us then

Dec 22, 2015 10:19 AM

Yes.. Me too.. My doctors mentioned gapapentin for pain relief and my gp wants to out me on cymballta along with lyrica.
I think also ii may be expecting g to much from the medicine. Before my fibromayalgia got bad. I'm use to taking pain meds.like Tylenol and the pain ges away. But now with this new normal I know the pain won't go away so I'm not sure how much I should.be expecting. In myind lyrica is not working because my pain oyngoes down to a 5 and I want it be a 0.. So maybe I've got to changr my thinking. I'm not sure.

Dec 22, 2015 12:31 PM

Gentle (((hugs))) & prayers for you Calia! I remember having the higher pain levels, but thankfully my doc found out I have Sjogrens (on top of the fibro & hypothyroidism). All 3 share so many symptoms. I was keeping track and at my rheumy follow up I told her something more than fibro. I'd had a rash inside my mouth for 3 months that, along with other symptoms, were worsening. The Plaquenil rx for the sjogrens also, thankfully, reduced my fibro pain and flare ups. Keep track of everything, and research possible causes. Don't give up. Keep trying and searching for the right treatment for you. If one thing (or doctor) isn't working, find something else to try. Track how the pain started, what helps/hurts, and anything new that might be tried. If you aren't happy with the doc see if you can find another one. You are in my thoughts & prayers! (((Hugs))) πŸ™‚πŸ™πŸŒΌ

Dec 22, 2015 12:34 PM

Flappys.. I've researched sjogrens and I've not been able to tell how the desire what is what. They are so similar.

Dec 22, 2015 1:37 PM

It's very hard, and sometimes I get confused when it's body pain. But usually when my sjogrens is flaring my mouth, nose, & throat get so dry it's hard to talk or swallow folks without water.

Dec 22, 2015 2:17 PM

Really..I have thst happen too..I have points where I can't swallow my meds or even food. And I have bad dry mouth but I figured but was from all the meds. And I've had a sore or a rough patch in my mouth off and on for about two weeks

Dec 22, 2015 2:18 PM

But I've not been diagnosis with sjogrens

Dec 22, 2015 4:54 PM

Lol, not swallow folks...swallow food.

Newfibrogirl, if I hadn't developed the oral rash, which had been misdiagnosed by 3 docs, and asked my rheumy doc if she'd order a biopsy, Is not have received an official sjogrens dx. She didn't even believe it at first and called the lab doc to discuss the findings! I also get splits or crevices in the top of my tongue. Google "sjogrens rashes in the mouth" and see if anything looks like you've experienced. I get teeny tiny burning bumps hat pop up from nothing before the sjogrens flare. πŸ™‚πŸ™πŸŒΌ

Dec 22, 2015 7:43 PM

Suffering so bad lately. I take 1800mg Gabapentin, Tramadol, and Loratb (only when absolutely necessary) and still suffer so much with this horrendous disease. Except for my husband and girls, I get no family support with this disease. Happy to have found this support group. People who do not suffer with this, have no wordly idea.

Dec 22, 2015 11:31 PM

Flappsy, you really ARE my twin!!! I get splits and cracks in my tongue and they hurt and actually have left keloid scars all over my tongue. The dentist removed a few years ago but never went ahead snd did any tests so, with all I've read and the symptoms I have, I think I may be dealing with Sjogrens.. I am really scared to find out because I'm afraid that it's never going to go away. I'll have to go to the doctor and get the tests doneπŸ’•πŸ™πŸ»πŸŒ»πŸ˜ƒ

Dec 23, 2015 11:08 AM

AlwayZ, if it is Sjogrens and they start you on Plaquenil, I hope and pray you'll get a huge improvement in your pain! πŸ™‚πŸ™πŸŒΌ

Dec 23, 2015 11:19 AM

Thanks Flappsy!! You always make me feel better.πŸ’•πŸ™πŸ»πŸŒ»

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