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Excusionating Pain - Fibromyalgia

Jul 25, 2017 3:28 PM

I have a question for those whom have fibromyalgia. I've been dianosed with fibromyalgia almost a year. I've had flare ups that lasted 2 weeks at the most. The flare up were super intense! I recently started a flare uo that has been going on for more than 3 weeks! This flare up has been the worst I've ever had. Each week the symptoms multiply to other areas and the intensity is unbearable!. I can barely walk, my skin hurts to the touch, and Im not getting sleep. I'm always feeling super fatigue and about to loss my mind. I can't do anything but stay in the bed hurting until I pass out.

Have anyone experienced such prolonged flare ups?
Have you ever been symptomatic all over your body?
Have you encountered unbearable pain all over with your flare ups?

Jul 25, 2017 3:36 PM

Omg!! You just described exactly how I feel at the moment. The difference is my doctor thinks it's Lupus. I just posted on another conversation how I've been feeling and it's been 3 weeks for as well. My whole body aches. Everyday it concentrate on a new spot but always my feet. The pain in them is unexplainable

Jul 25, 2017 6:07 PM

Hi 👋🏼 I have had fibro for nearly six years so I know what your going through! You can definitely have flair ups that last weeks some of mine have lasted months at a time, Unfortunately I have severe fibromyalgia so I'm symptomatic all over the body all of the time, I'm in a pretty bad flair up now and the only advice I can give and what helps me is rest as much as possible I find heat also helps maybe heat pads or a hot water bottle on the most affected areas also magnesium flakes in the bath help if your able to bath. I really hope your flair settles down soon. I'm here if you need advice or a chat 😊

Jul 25, 2017 10:16 PM

My feet and legs always hurt as well. I need to get a second opinion regarding my diagnosis. Maybe it could be Lupus?? Never experienced this pain all over my body!

Jul 25, 2017 10:54 PM

I'm truly sorry you're going through this.

I do get entire body flare ups. From head to toe. And my body's own moisture burns. Like sweat, tears, etc. It's all very painful.

Jul 26, 2017 8:09 AM

I've been in a huge flare for a few weeks too. The humidity has been constantly high where I live and my body doesn't like it!😕

Jul 26, 2017 8:22 AM

It rained in TX yesterday. People are always saying weather has a lot to do with flare ups. I haven't figured out what type of weather influence FIBRO pain??

Jul 26, 2017 8:45 AM

It's different for everybody. The cold is worse with me. And when the barometric pressure is low.

Jul 26, 2017 8:59 AM

The humid weather and the cold make my fibro pain worse. 😞

Jul 26, 2017 5:03 PM

Im really sorry that you're in so much pain and going through this.
I've had fibro for 12 yrs. now. What has worked best for me to control my pain is acupuncture treatments. I do many many other things to help dial it down but acupunture is the only treatment that gives me adequate pain control.
I would also suggest a Magnesium Glycinate supplement at bedtime. Start with 100- 150 mg. Get the ok from your Dr. first, of course.
Magnesium helps the muscles relax. There are many forms of magnesium but the glycinated form is best absorbed by the body.
Back to acupunture..
Everyone is different and I realize that this is not for everyone. The needles are about the size of a strand of hair and with a good practitioner the insertion is virtually painless.
The biggest downside is that treatments can be expensive. There's a network of low cost acupunture clinics across the US. They are relatively small but there may be one in your area or close by. I went to one in my area for about a year and a half and they were excellent. They only charged $15 a treatment.
I go to someone else now but would be happy to post that info if you or anyone is interested.
Prayers that you get relief and rest soon 💜

Jul 26, 2017 5:06 PM

Fyi- only the left side of my head is "colored" today because this is day 2 of a severe migraine 😔

Jul 26, 2017 8:28 PM

I'm completely confused! I have Fibromyalgia CFS diagnosed 2009 Fibromyalgia CFS, it's a disease that progressively gets worse as time goes on, I'm at the very severe level have been since the third year that's when it was a struggle to function and do your normal everyday things. The whole body burning, and aching sensitivity to cold and touch. Unable to walk straight when your in pain. I'm a wimp I couldn't take the pain so I'm on Opioids prescribed by my pain clinic. And still I have very bad days to exhausted to get out of bed.

Jul 27, 2017 1:20 PM

I was diagnosed FMS in 2016 Jan Though I had been carrying around for 3 years. Not long after I had known this, I had issues cropping up with my husband, which ended up in a divorce. I had been on medication for 12 months. And now I am doing well. The drugs that was prescribed to me was HCQS and anti depressants and vitamin D tablets.
Along with that I went on for some ayurvedic(India) treatment-massages, which helped me a lot. I learned something that may help others too. 1.Take hot water bath daily. 2. All you need is a lifestyle change. I ended up eating 6 months veg and 6 months non veg. 3. Practice yoga/ meditate/ music. Sleep well. Engage yourself in hobbies. 4. Never let anyone too much into your happiness.

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