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Aug 27, 2015 1:24 PM

I know I'm not the 1st, won't be the last. I'm extremely tired of family not understanding what is going on with my body. "It's all in your head", "Why do I have to beg you to do anything" "Excuses excuses".

I'm up to my ears with what comes out of their mouth. I try so hard to do as much as I can. None of them understand that when they get loud, extremely active or they pick/tease me, I become stressed and end up with flare ups.

My problem is that on top of this, I suffer from PTSD and I'm very OCD. Having OCD makes me frustrated enough, however instead of making the family deal with that, I clean & ORGANIZE. I JUST ASK THEY KEEP IT THAT WAY. The PTSD comes with it's own challenges, I've learned to live & deal with that. I am so lost on how to deal with family induce flare ups. I mean it hurts so bad to just walk sometimes that I don't, except for going to the bathroom.

I want to scream at a few of them that are aggravating me, Why not shoot me & rid me from my imagination. (trust me, I don't want to die) . I just can't deal with the pain some days. It's kinda funny cause on days when the pain is bearable, I over do it.

Anything or if anyone has advice who's been there, I'd really appreciate some feed back.

Thank you in advance, Tiny

Aug 30, 2015 10:00 PM

Tinyboo, I'm so sorry you're having to deal with insulting family on top of the chronic pain. Until someone literally walks in our shoes it's hard for them to comprehend or be supportive. My hubby kept saying things like, "I'll be glad when you get well enough to return to work," or, " I'll be glad when they take you off all your meds. ". It frustrated me to no end trying to get him to understand neither of those things were likely to happen. One day he said something (fog block...can't remember. Lol), which resulted in me telling him to go to my next rheumatology appt. I gave him free reign to ask anything, and he hung himself. The doc scolded him and told him I'd likely never work again and certainly wouldn't be coming off the meds, as they were necessary for my health conditions. The look on his face was priceless! Here now my biggest supporter to others who doubt. Hopefully you can find a way to help your family understand. Hugs! And prayers too! 🙏🌼

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