Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Exhausted and body pain

Sep 02, 2017 11:08 AM

I feel like that procedure thru me into a flare. The cramping isn't that bad but everything else hurts. Or it could be from the busy week I had. Everyday this week except for Thursday I had a doctors appointment. My mom said you going to have to space them out. I'm like these is all the referrals that my primary doctor put in to see. My medical team consist of:
-Primary doctor
-Urologist
-Gastroenterologist
-Gynecologist
-Orthopedic doctor
-Nephrologist
-Rhuematologist
-Ophthalmologist
-Pain management
-Psychologist
-Dentist
So I have seen all these physicians at least one time to establish me as their patient. And because I have lupus and SjΓΆgren's syndrome all of these doctors are need. For instance my dentist has to keep up with my teeth because for SjΓΆgren's. And Ophthalmologist has to screen my eyes every 6 months to make sure I don't get toxicity in my eyes from taking plaquenil. The nephrologist has to manage the level of protein in my urine to make sure the lupus isn't affecting my kidneys. Each doctor plays a role to keeping me somewhat healthy.
Yes ever since I received my Medicaid my doctor been putting in referrals and some of the other doctors has put referrals in for certain test. Like the gynecologist needs me to get a MRI done to see why my prolactin so high and make sure I don't have a tumor on my pituitary gland. Which is still freaking me out. So between seeing the doctors and then having to go for several MRI'S because 2 of my doctors want it done on my knees and back. Go get an X-ray that another doctor ordered. My schedule has been booked. I'm so grateful for getting the insurance but it's been overwhelming of things each doctor has to do and monitor. Because if I continued not having insurance my body will have just getting worse and worse. My health would have gotten worse which it did starting 4years ago. So I hope I don't have to go thru a painful procedure like yesterday's. I'm extremely exhausted and use all my spoons and then some this week. I'm going to stay in the bed and try to get some sleep.

Sep 02, 2017 11:18 AM

Wow! You've got so much going on at the moment. Your definitely going to be exhausted after all of that. I'm so glad your getting proper healthcare now but it must be stressful with all them appointments! Make sure you rest as much as possible whenever you can πŸ’•β€οΈπŸ’• I will be thinking of you 😘

Sep 02, 2017 12:50 PM

@LittleLola, it's hard to do when they want X-rays, MRI'S, and bloodwork. Cause they want it right away because I'm a new patient and they each need their own test down to make a healthcare plan. But some I don't have to see anymore like the Urologist because I don't have any kidney stones right. And I don't have to see the nephrologist because she waiting on all the test the Rhuematologist going to do. And also I only have to see my psychologist but every three months because she is the only person I could see since last year when I flipped out at the hospital and said I rather just die. So that put me in behavioral hospital. But she is great especially when I'm stressed out. All the rest of the doctors are just getting started with me and it's so many thats why I try to schedule them right away just to get it over with and on to the next thing. It's funny how my primary doctor ordered an MRI for my head cause I had a headache one visit but I don't have them all the time just when I'm in a flare. So I cancelled the appointment and here it is my gynecologist ordered one because of prolactin being high and that could mean a tumor on my pituitary gland. So my doctors nurse told her and she came in the room laughing see what happens we you don't listen. And I yelled out in hallway to the nurse Tattell. We laughed about it and my doctor explained everything that my gynecologist didn't explain like oh it could be you have a tumor in your head. But I see my primary doctor so much that her and the doctor are like family to me and I'm their defiant child. So sorry for the long post just trying not to think about the MRI. What's crazy is no had called to make appointment for my back and knees to get an MRI. Oh well πŸ˜” But thanks for checking on me BIG HUGS πŸ€— πŸ’œ

Sep 02, 2017 12:57 PM

I will be thinking of you while you go through this xxx they thought there might be something wrong with my brain so I had to have a MRI but it thankfully turned out to be not that.... I was so anxious for my MRI but it wasn't as bad as I thought! πŸ’•β€οΈπŸ’•β€οΈπŸ’•

Sep 02, 2017 2:35 PM

Yeah im actually not afraid of getting the MRI, I'm just afraid of the results.

Sep 02, 2017 2:57 PM

Oh right! I was super nervous for the MRI (I'm claustrophobic) you will be worried πŸ’•πŸ’•

Ready to start relieving your pain?

Join Community