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Experience with pain clinics?

Aug 29, 2016 12:29 AM

So last year when my pain really started flaring I started to go to a pain clinic. However, I don't have a car and the clinic takes an hour each way on the bus, plus appointment time, and so it was really sapping my spoons. It felt like most of the treatments were unhelpful and expensive, and their therapist told me I was being very negative, when the therapist I'd been seeing for years was lauding me for being functional at all. After my appointment with their godawful psych the doctors treated me differently. With the fall and more flares I've got to start seeing doctors regularly again and I'm just not looking forward to this pain clinic, but I worry I won't be taken as seriously if I tell my doctors I want to do meds (potentially very strong ones) and PT through something other than this dedicated pain clinic. I'm not seeking drugs (most opiates and opioids make me hella sick) but I worry that I'll be forced to go through this clinic or not be taken seriously. What experiences have you guys had? I'm seeing a rheumatologist and I love my GP, but the clinic was expensive and exhausting last time around.

Aug 29, 2016 6:07 AM

Hello hunni โš˜
I am in the UK... so things are a little different here. But my pain management team are second to none. I know how hard it can be to find the right Doctors ๐Ÿค—

If u want pain medications...๐Ÿ˜ฎ u have to attend the pain management clinic, in the US... ๐Ÿค—but if u use cannabis (for which i am a great advocate)... then u cannot go to a pain management team over there ๐Ÿ˜ฒbecause they pee test u ๐Ÿค”for thc and then can ur place if u fail it! So i guess its one way or the other๐Ÿค—

For PT/osteo/acupuncture/hydro/trigger point etc etc... ๐Ÿค—is it the same... that it hinges on being part of the pain clinic?๐Ÿค— I know people on both sides of this fence... so its hard to tell. ๐Ÿ˜š

I hope u can become informed and make the bestest choice for u sweetie ๐Ÿ˜š

Aug 29, 2016 8:47 AM

The cannabis complicates things, because I've been on strong pain meds and they've always made me violently ill, but cannabis is a wonder drug for me. I've had 10/10 blinding pain where I was curled up in bed sobbing and didn't know how I got there, taken two hits of a vaporizer, and had it literally drop to a 3 within five minutes where it usually would take hours. It's illegal in my state though (there was a big push for it this year, but I'm in Utah and the mormon church came out against it which basically killed the bills) and so I've been trying to go through pain doctors. Injections help some for my joints, but I'm hypersensitive to pain meds and I've had no success. It's so frustrating because I already have something that will greatly improve my quality of life and pain, and I can't use it because it's classified to be as dangerous as heroin. :( sorry for the rant.

Aug 29, 2016 12:12 PM

It sux hunni... im so sorry.๐Ÿค” I cannot imagine how frustrating that must be! ๐Ÿค— shall we all run away to colorado...๐Ÿ˜‰and start a weed farm together ???๐Ÿ˜š

Aug 29, 2016 12:41 PM

Haha, it's next door so husband and I have talked about it once we save up enough. It's frustrating, my therapist is completely on board, but I don't want it to jeopardize my other treatments

Aug 29, 2016 12:57 PM

I tell all my medical professionals ๐Ÿ˜‰i smoke cannabis...๐Ÿ˜Š they all say... ๐Ÿค—if it works then dont stop using it. ๐Ÿ˜Here in the UK... they look at it like... ๐Ÿค”if u buy cannabis for pain control... then its less opioids that they have to pay out for... to help with ur pain!
๐Ÿ˜š I really wish they had tht way of thinking in the US...i secretly would move to colorado in a heartbeat lol ๐Ÿ˜š

Aug 30, 2016 6:38 AM

I don't use cannabis and never would, that isn't because I'm against it but because I want to be a doctor/surgeon and even if it becomes legal it would never be allowed for people in professions like these.

When my condition first began I was in and out of A&E (Same as the ER or ED) every night. I was seen by countless different doctors and specialists and I had countless IV's of massive doses of morphine and Diazepam (Valium in the US). The amount of doctors that recommended cannabis to me was unreal. They told me that they recommend it to anyone in my state or similar including some types of epilepsy and conditions like MS. They told me that because of my pain level and seizure-like-spasm episodes with 10/10 pain (which I call acute episodes) my best bet was cannabis because nothing else on this earth would ever come close to the relief that I'd get. I'm all for prescribed, medical, safely grown and quality monitored cannabis for things like MS, Cancer and many other conditions, I just hope that they find other medications that docs etc. Would be able to take.

Aug 30, 2016 6:41 AM

I totally understand ๐Ÿค—
When u become a doctor... u will have such amazing empathy ๐Ÿ˜
Its a beautiful thing! ๐Ÿค—

Aug 30, 2016 8:53 AM

Doctors are some of the biggest drug takers....๐Ÿ˜†

Aug 30, 2016 9:49 AM

Ugh, I just know I need to do something. I had an acute attack yesterday where I was sobbing and writhing for hours and nothing helped, it was literally 10/10. :/ ain't nobody got time fo that.

Aug 30, 2016 11:01 AM

Do u have a pain management nurse u can call Schwa? ๐Ÿค—

Aug 30, 2016 12:22 PM

No, I have an appointment with my rheumatologist but in the meantime the er is pretty much what I've got, and I have a hard time wanting to go when I know I'm not dying and if I can just tough it out it will stop eventually. Husband wanted to take me but I've never been to the er for pain and I don't want to be treated like a drug seeker.

Aug 30, 2016 10:47 PM

Welp it happened again today so I made an appointment with my GP to get a prn for acute attacks during the wait for the specialist appointment. I hope this gets easier.

Aug 31, 2016 1:51 AM

Totally๐Ÿค— understand sweetheart... hope it helps in the meantime๐ŸŒน๐ŸŒน๐ŸŒน

Aug 31, 2016 7:36 AM

Schwa, I see a pain clinic an hour away from me. I know how you feel, I live in a small town and I wouldn't change that because it's a great place to raise my teenagers, anyway, when you go back be honest with your doctor about how ill the opioids make you, otherwise you are wasting your time and money, when you can be trying to figure out the best possible solution to your pain. The doctor's are supposed to be there to help you. For me morphine makes me sick and don't even touch my pain like Percocet does, but I have to switch every four to 5 months to keep from a tolerance build up like I did with the hydrocodone right before my surgery.

Praying for you hunni, that things work out for the better and that your pain eased up. Love and gentle hug's.๐Ÿ™๐ŸŒž

Aug 31, 2016 9:26 AM

I didn't like my pain clinic. There were a couple good people but they mostly see you as cookie cutter patient. The one thing that is different here in Canada then your clinics is the pharmacist at my clinic actually suggested I consider medical marijuana. I told him I had my license for a time and tried it but it didn't help. My doc's are very supportive now of me being on perocette.

Aug 31, 2016 10:22 PM

So update on the whole situation, I got in to see my GP and where I'm so sensitive to what he's able to prescribe we're gonna try Tylenol with codeine while I get hooked up with a different pain clinic to try. I'm also back on the vyvanse which I'm really hoping will help cut through the fibro fog. Thanks for all your hugs and support, it's been a really rough couple of days.

Sep 03, 2016 8:53 PM

Schwa, my pain clinic was a good one, but they do want to take over most pain care decisions and meds. And if you ho elsewhere you're kicked out. I'm not sure when your rheumy appt is, but call every day to see if there's been a cancellation. A friend of my hubby did that for his wife, every single day because the backlog of patients is months out. One day he actually called right after a cancellation and his wife was barely able to get out of bed, but he had her at the appt the next day. She has RA. Good luck! Hugs love & prayers you'll have a quicker appt and a good pain clinic experience! ๐Ÿ™‚๐Ÿ’•๐Ÿ™๐ŸŒธ

Sep 04, 2016 1:22 PM

I've got an appointment set up with a different pain clinic a little closer to me, so hopefully that will be helpful. I'm still very achy, but the acute attacks have gone... mostly I assume because I couldn't take it anymore, was naughty, and took up a friend on his offer of medical - grade cannabis. When I go to the pain clinic I'm 100% willing to try anything they can throw at me, but I just couldn't handle the interim. I'm still pretty fatigued but the vyvanse has definitely helped with weight and motivation. Fingers crossed for a longer term (and legal) solution!

Sep 05, 2016 7:53 AM

I hope this clinic will be a good one for you! ๐Ÿ˜‰๐Ÿ’•๐Ÿ™๐ŸŒธ

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