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Mar 28, 2016 6:36 PM

Hello Everyone,
I am new to this app but so far so good.
A bit about me: I was diagnosed with Fibromyalgia and CFS early last year after being in pain for most of my life. I was one of those kids who was always fatigued and could not stretch my body like the other kids. Anyway, after a long road, I am unable to take pain meds without sleeping my life away. I am wondering how many of you experience severe fatigue from your pain and how you counteract it?

Mar 28, 2016 7:02 PM

I have endless fatigue too. I take b 12 injections that I give myself that has helped some. I still struggle but I sure feel alittle better,always can tell when it is getting close to give myself another shot.

Mar 28, 2016 9:15 PM

I got a b-12 at the Doc's and felt like the real me! Yay. But the energy only lasted for 2 days. How long does it last for you? And how often to you have them?

Mar 28, 2016 10:01 PM

I also have severe fatigue in addition to pain, so far nothing has worked to help. I am getting a sleep study done, my bloodwork was normal. I have heard good things about the supplement d-ribose and maca powder from the maca people. They are both food based supplements rather than vitamins. There have been studies on d-ribose that are small but promising, and the evidence for maca is mostly anecdotal from the hundreds of years its been eaten as a staple food in south america.

Mar 29, 2016 12:49 AM

I get fatigued easily as well. My doctor told me it's from fighting all day long. Literally all I do for the fatigue is nap when I can and fight through it when I can't. I also give myself time for a lot of sleep at night. I find it doesn't always help but it also doesn't compound the problem.

Mar 29, 2016 2:13 AM

Jaynut- is your B-12 an Rx? I have severe pain from numerous disorders and the FATIGUE has kept me nearly bedridden since Jan so I am also checking back here, interested to know what works for you guys.

Mar 29, 2016 5:24 AM

I have the fatigue also with my fibro and arthritus.
Looking for answers also, its keeping me from getting to work on a regular basis, just adding to the depression and anxiety that comes with it all.
Some days I sleep most of the day, and I try to get enough sleep at night. But when I stay in bed too long the pain in my hips and arms forces me to get up.
Never heard of the b-12, will have to ask the doc about that. Thanks.
I'm also new to this app, but so far very happy to have others to talk to about it that are going thru the same things I am.

Mar 30, 2016 5:40 PM

Irritablenikky46, I have had fibro symptoms since 2007-2008, when I first started noticing fatigue and all over pain & tender points. Since then I've developed hypothyroidism & sjogrens, both which also cause fatigue. I've learned to limit my activities and spread them apart, with rest periods in between. I rely on caffeine during the day to try and prevent extended naps, but no later than 2 PM. However, if my body needs the nap then I get it; at those times caffeine doesn't help. πŸ™‚πŸ’•πŸŒΌπŸ™

Mar 31, 2016 12:26 AM

Thanks Everyone for your comments. I have B12 shots every 3 months and I do not know if they are doing anything. Today is a particularly bad day. My fatigue is through the roof and I have kept myself going until now. Thank you all for your comments. It is nice to know others understand.

Mar 31, 2016 3:22 AM

I feel tired whole the time and get pain from any simple move, I have cramps in my shoulder since a long time nothing work with it, my heart pain as well. I'm tired of it and don't know what to do..

Mar 31, 2016 7:53 AM

7autoimune.. my B12 is a RX. I give myself a shot every month of 1000mg injection.my nuerologist says to have good nerve health ,ones levels should be 450. I have tried other forms b12,but they just don't work like the injections do. I have been on them for 4 years now and my B12 levels r still low but I sure can tell when the next one is due! b12 injections r cheap too!

Mar 31, 2016 1:29 PM

Flappy, you still on the fence about Provigil/Nuvigil???? It's much easier on your cardiac/pulmonary system than all the caffiene. You are my friend and I know you are doing everything that you are told to do and more so you are faithful.. That's why I wanted to remind you about the other meds your doc mentioned earlier this s month to you........

Mar 31, 2016 2:11 PM

Oh no Terri. I get my morning coffee, then until 2pm, if I need a jolt I eat a bite size mini dark chocolate, or I drink 2-3 oz of Dr. Pepper or Jello Yellow (never more than 6 oz/day). I contacted my doc after reactions to the nuvigil, and he said stop taking it. πŸ˜€

Mar 31, 2016 2:39 PM

Awe okay!! The current treatment plan you do right now seems "sweet" to me.😁😁😁😁😁😁

Mar 31, 2016 3:53 PM

Hey Jaynut, that's interesting. Going to ask my doc about the b12 shots. I hope I remember!

Mar 31, 2016 3:56 PM

And about the energy aids, I kinda do the same thing. It helps me think but lately doesn't get me out of bed.

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